Patient journey mapping to investigate quality and cultural safety in burn care for Aboriginal and Torres Strait Islander children and families – development, application and implications
Open accessAbstract
Background: Quality and safety in Australian healthcare is inequitably distributed, highlighted by gaps in the provision of quality care for Aboriginal and Torres Strait Islander children. Burns have potential for long-term adverse outcomes, and quality care, including culturally safe care, is critical to recovery. This study aimed to develop and apply an Aboriginal Patient Journey Mapping (APJM) tool to investigate the quality of healthcare systems for burn care with Aboriginal and Torres Strait Islander children. Study design: Interface research methodology, using biomedical and cultural evidence, informed the modification of an existing APJM tool. The tool was then applied to the journey of one family accessing a paediatric tertiary burn care site. Data were collected through yarning with the family, case note review and clinician interviews. Data were analysed using Emden’s core story and thematic analysis methods. Reflexivity informed consideration of the implications of the APJM tool, including its effectiveness and efficiency in eliciting information about quality and cultural safety. Results: Through application of a modified APJM tool, gaps in quality care for Aboriginal and Torres Strait Islander children and families were identified at the individual, service and system levels. Engagement in innovative methodology incorporating more than biomedical standards of care, uncovered critical information about the experiences of culturally safe care in complex patient journeys. Conclusion: Based on our application of the tool, APJM can identify and evaluate specific aspects of culturally safe care as experienced by Aboriginal and Torres Strait Islander peoples and be used for quality improvement.
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Patient journey mapping has been effectively used to understand patient experience, improve quality of care, and inform health service redesign/improvement.
“Of the existing literature, patient journey mapping has been effectively used to understand the patient experience [16–18], improve the quality of care [7, 19], and for informing health service redesign/improvement [13, 15, 20].”
From The hospital-to-home care transition experience of home care clients: an exploratory study using patient journey mapping (2023) · cites this paper as [19]
Citation [7] is attached to the claim that patient journey mapping has improved quality of care. The Results report that mapping identified gaps in care, and the Discussion says it generated recommendations for changes in practice. The paper does not report that those changes were implemented or that care quality improved; its conclusion says the tool can be used for quality improvement. (LLM, conf=0.85)
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- Authors
- Fraser, S., Mackean, T., Grant, J., Hunter, K., Ryder, C., Kelly, J., Holland, A. J. A., Griffin, B., Clapham, K., Teague, W. J., Darton, A., & Ivers, R. Q.
- Affiliations
- UNSW Sydney (AU)
- Flinders University (AU)
- Charles Sturt University (AU)
- The University of Adelaide (AU)
- The University of Sydney (AU)
- Griffith University (AU)
- University of Wollongong (AU)
- The University of Melbourne (AU)
- NSW Agency for Clinical Innovation (AU)
- Corresponding author
- Fraser, Sarah
- ORCID
- Venue
- BMC Health Services Research
- Published
- 2022-11-28
- Volume
- 22
- Issue
- 1
- Pages
- 1428-1428
- ISSN
- 1472-6963 (ISSN-L)
- PMC
- PMC9703784
- OpenAlex
- W4310184908
- Cited by
- 10
- References
- 36
- Citations by year
- 2026: 3 · 2025: 4 · 2024: 1 · 2023: 2
- FWCI
- 1.34
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Health Services Research (publishedVersion, cc-by)
- Research Square (acceptedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Charles Sturt University Research Output (CRO) (submittedVersion, cc-by)
- Research Online (University of Wollongong) (submittedVersion)
- Adelaide Research & Scholarship (AR&S) (University of Adelaide) (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Figshare (submittedVersion)
- Minerva Access (University of Melbourne) (submittedVersion, cc-by)
- Griffith Research Online (submittedVersion, cc-by)
- Funders
- Medical Research Council
- National Health and Medical Research Council (1059038)
- Topics
- Social Sciences › Health › Indigenous Health, Education, and Rights
- Social Sciences › Sociology and Political Science › Cultural Competency in Health Care
- Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
- Keywords
- patient journey mapping, Aboriginal and Torres Strait Islander children, burn treatment, culturally safe care, quality of care, health equity, family experiences, quality improvement, Indigenous health
- MeSH terms
- Indigenous Peoples, Australia, Burns, Child, Health Facilities, Humans, Quality of Health Care, Racial Groups, Healthcare Disparities, Culturally Competent Care
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