A Sociodemographic variables questionnaire (Q-SV) for research on family caregivers of children with chronic disease
Open accessAbstract
Background: Chronic diseases in childhood can affect the physical and mental health of patients and their families. The literature on pediatric chronic diseases has found important associations between the sociodemographic variables of children and their caregivers and negative health consequences in families. Methods: In this study, we aimed to design and validate a questionnaire on sociodemographic variables that would be useful for research on pediatric chronic diseases; and investigate the relationship between sociodemographic variables and psychosocial variables among family caregivers. First, we created a questionnaire that consists of 20 demographic, medical, and family-related items based on a literature review and expert evaluations. This questionnaire was then validated by 335 expert reviewers in the field of Social Work, who work daily with the families of patients with chronic diseases in 10 National Institutes of Health of Mexico. The validation was based on three empirical criteria created specifically for this study, and the reviewers evaluated the usefulness, relevance, and permanence of the items. In a second cross-sectional, correlational and comparative study, a total of 446 family caregivers of children with chronic diseases were interviewed, and they completed the Sociodemographic Variables Questionnaire for research on family caregivers of children with chronic sociodemographic diseases and four psychosocial measurement instruments for evaluating anxiety, depression, caregiver burden and quality of life. Results: Based on the results of the first study, we created the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic diseases, and it includes 17 items that assess demographic, medical, and family characteristics. The results of the second study showed that the 17 sociodemographic variables obtained in the validation by expert judges are useful for measuring and evaluating the relationship between psychosocial variables in families of children with chronic diseases. Conclusions: Psychosocial and sociodemographic factors are relevant for the development of research processes for families that care for children with chronic diseases.
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There is a set of contextual factors and sociodemographic characteristics in family caregivers of pediatric patients that increase the risk of suffering repercussions on physical and psychological health.
“There is also a set of contextual factors and sociodemographic characteristics in family caregivers of pediatric patients that increase the risk of suffering repercussions on physical and psychological health [19].”
From Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study (2021) · cites this paper as [19]
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Bernier, P., Desjardins, L., Charette, M.-C., Harnois, J., Poirier, É., & Daigle, K. (2024) · Canadian Oncology Nursing Journal · doi:10.5737/23688076344514 · Cited by 1 · see citing works
Nogueira, A. J., & Ribeiro, M. T. (2024) · Clinics and Practice · doi:10.3390/clinpract14010010 · Cited by 1 · see citing works
AlQahtani, S., Aldubayan, K., Alshehri, S. S., Almuhareb, G., & Mahnashi, A. (2024) · Diagnostics · doi:10.3390/diagnostics14202256 · Cited by 1 · see citing works
Unraveling Gender Differences in Obsessive-Compulsive Disorder: A Focus on Key Micronutrients
Algin, S., Sajib, M. W. H., Ahmed, S. N., Siddique, M. R., Reza, M. T., Tanzilla, N. J., Ahmed, T., Islam, M. K., Patel, P., & Haque, M. (2025) · Cureus · doi:10.7759/cureus.79667 · Cited by 1 · see citing works
AlQahtani, S., Aldubayan, K., AlShehri, S., Almuhareb, G., & Mahnashi, A. (2024) · Preprints.org · doi:10.20944/preprints202408.1419.v1 · Cited by 1 · see citing works
Mengelers, A. M. H. J. (2021) · doi:10.26481/dis.20210614am
EVIDÊNCIAS CIENTÍFICAS SOBRE OS FATORES ASSOCIADOS À ATROFIA MUSCULAR ESPINHAL EM CRIANÇAS
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Nabuco, A. C. D. F., Linard, G. L., da Costa, P. Q., Medeiros, R. F. B., & Linard, C. F. B. M. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-2
O ACESSO DA CRIANÇA COM DOENÇA CRÔNICA NA BUSCA DE CUIDADO NA UNIDADE DE PRONTO ATENDIMENTO
Rodrigues, M. E. N. G., Muniz, M. J. B., Sena, S. S., Gomes, I. L. V., & Pinto, F. J. M. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-18
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Almeida, B. D. S., Cavalcante, J. B., Soares, N. A., de Vasconcelos, C. M. C. S., & Bezerra, I. N. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-15
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Afonso, L. R., do Nascimento, C. E. M., Farias, B. D. O., Brandão, C. B., Coelho, A. C. V. D., & Sampaio, J. J. C. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-21
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Saúde da população em tempos complexos: olhares diversos
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Gomes, M. L. F., de Moura, F. J. N., Araújo, N. I. R. D., Beliero, A. M., Vasconcelos, A. Á., Gomes, C. C. T. F., & Pinto, F. J. M. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-3
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de Lima, E. O., Cavalcante, A. S. P., Borges, J. W. P., de Barros, N. F., & da Silva, M. R. F. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-4
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Oliveira, P. H. M., de Vasconcelos, G. G., Barbalho, E. D. V., & Pinto, F. J. M. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-20
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Gomes, M. L. F., Cardoso, A. N., Rodrigues, K. S., & Pinto, F. J. M. (2022) · Amplla Editora eBooks · doi:10.51859/amplla.spt853.1122-12
Guimarães, G. R. R., de Moraes, J. R. M. M., Christoffel, M. M., da Silva, L. F., Pacheco, S. T. D. A., & Rodrigues, E. D. C. (2022) · Revista Enfermagem UERJ · doi:10.12957/reuerj.2022.70344 · Cited by 2 · see citing works
Ronca, R. P., da Rocha, M. M., Campos, D., Cymrot, R., & Blascovi‐Assis, S. M. (2023) · Estudos de Psicologia (Campinas) · doi:10.1590/1982-0275202340e210053
Grado de ansiedad del cuidador primario del niño hospitalizado
Carrillo, A. M., & Cantón-Habas, V. (2023) · NURE Investigación · doi:10.58722/nure.v20i125.2394
Meng, R., Ying, Y., Luo, Y., Huang, M., Miller, C. B., Xie, Y., Jia, Y., Fan, L., Chen, W., Yi, J., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26752438
Meng, R., Ying, Y., Luo, Y., Huang, M., Miller, C. B., Xie, Y., Jia, Y., Fan, L., Chen, W., Yi, J., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26752441
Rusyd, A., Margono, H. M., & Utama, M. R. (2026) · Journal of Psychosocial Rehabilitation and Mental Health · doi:10.1007/s40737-026-00535-w
- Authors
- Toledano-Toledano, F., Rodríguez-Rey, R., Moral de la Rubia, J., & Luna, D.
- Venue
- BMC Psychology
- Published
- 2019-12
- Volume
- 7
- Issue
- 1
- Pages
- 85-85
- ISSN
- 2050-7283 (ISSN-L)
- PMC
- PMC6925508
- OpenAlex
- W2995405183
- Cited by
- 61
- References
- 66
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 7 · 2023: 15 · 2022: 20 · 2021: 8 · 2020: 5 · 2019: 1 · 2018: 3
- FWCI
- 15.78
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Psychology (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- ABACUS. Repositorio de Producción Científica (Universidad Europea) (submittedVersion, cc-by-nc-nd)
- LA Referencia (Red Federada de Repositorios Institucionales de Publicaciones Científicas) (submittedVersion, cc-by-nc-nd)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Vedecká Grantová Agentúra MŠVVaŠ SR a SAV
- Hospital Infantil de México Federico Gómez
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Education › Health Education and Validation
- Keywords
- children with chronic illness, family caregivers, questionnaire validation, psychosocial factors, caregiver burden, anxiety, depression, quality of life
- MeSH terms
- Social Workers, Adaptation, Psychological, Adolescent, Adult, Anxiety, Mental Disorders, Child, Chronic Disease, Cross-Sectional Studies, Depression, Female, Humans, Male, Middle Aged, Quality of Life, Surveys and Questionnaires, Socioeconomic Factors, Caregivers, Young Adult
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