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Cited by 49Family and Disability Support ResearchNursing care and researchFamily Support in Illness

Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study

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Toledano-Toledano, Filiberto, Moral de la Rubia, José, Nabors, Laura A., Domínguez-Guedea, Miriam Teresa, Salinas Escudero, Guillermo, Rocha Pérez, Eduardo, Luna, David, Leyva López, Ahidée·2020·Healthcare
DOI 10.3390/healthcare8040456PMC PMC7712866
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Abstract

Quality of life (QOL) is a key aspect of the health care process for children with chronic diseases and their families. Although clinical evidence regarding the impact of chronic disease on children exists, few studies have evaluated the effects of the interaction between sociodemographic and psychosocial factors on the family caregiver’s QOL, indicating a significant gap in the research literature. The present study aimed to identify the predictors of the QOL of parents of children with chronic diseases. Three parental sociodemographic predictors (age, schooling, and family income) and four psychosocial predictors (family functioning, social support, depression, and resilience) were examined. In this cross-sectional study, 416 parents of children with chronic diseases who were hospitalized at a National Institute of Health in Mexico City were interviewed. The participants completed a sociodemographic variables questionnaire (Q-SV) designed for research on family caregivers of children with chronic disease. The predicted variable was assessed through the World Health Organization Quality of Life Questionnaire. The four psychosocial predictors were assessed through the Family Functioning Scale, Social Support Networks Scale, Beck Depression Inventory, and Measurement Scale of Resilience. The regression model explained 42% of the variance in parents’ QOL. The predictors with positive weights included age, schooling, monthly family income, family functioning, social support networks, and parental resilience. The predictors with negative weights included depression. These findings suggest that strong social relationships, a positive family environment, family cohesion, personal resilience, low levels of depression, and a family income twice the minimum wage are variables associated with better parental QOL.

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  • Childhood cancer patients and their families frequently experience effects on their quality of life.

    “and effects on their quality of life [17,18].”

    From Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study (2021) · cites this paper as [18]

    The Introduction says that children with chronic diseases and their caregivers can experience deteriorating quality of life as illness progresses. The Results report that 74% of the children studied had an oncological disease, but the study assesses parents’ quality of life across diagnoses and does not separately establish how frequently childhood cancer patients and their families are affected. (LLM, conf=0.82)

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Authors
Toledano-Toledano, F., Moral de la Rubia, J., Nabors, L. A., Domínguez-Guedea, M. T., Salinas Escudero, G., Rocha Pérez, E., Luna, D., & Leyva López, A.
Affiliations
  • Evidence-Based Medicine Research Unit, Hospital Infantil de Mexico Federico Gómez, National Institute of Health, Márquez 162, Doctores, Cuauhtémoc, Mexico City 06720, Mexico
  • Facultad de Psicología, Universidad Autónoma de Nuevo León, Carlos Canseco, 110, Esq. Aguirre Pequeño, Col. Mitras Centro, Monterrey 64460, Mexico
  • University of Cincinnati (US)
  • Department of Psychology and Communication Sciences, University of Sonora, Blvd. Luis Encinas y Rosales, Col. Centro S/N Hermosillo, Sonora 83000, Mexico
  • Centro de Estudios Económicos y Sociales en Salud, Hospital Infantil de Mexico Federico Gómez, National Institute of Health, Márquez 162, Doctores, Cuauhtémoc, Mexico City 06720, Mexico
  • Servicio Nacional de Sanidad, Inocuidad y Calidad Agroalimentaria (Senasica), Anillo Perif. 5010, Insurgentes Cuicuilco, Coyoacán, Mexico City 04530, Mexico
  • Comisión Nacional de Arbitraje Médico, Mitla No. 250-8° Piso, esq. Eje 5 Sur (Eugenia), Vertiz Narvarte, Benito Juárez, Mexico City 03020, Mexico
  • Centro de Investigación en Salud Poblacional, Instituto Nacional de Salud Pública, Cuernavaca Morelos 62100, Mexico
ORCID
Venue
Healthcare
Publisher
MDPI AG
Published
2020-11-03
Volume
8
Issue
4
Pages
456
ISSN
2227-9032 (ISSN-L)
DOI
10.3390/healthcare8040456
PMC
PMC7712866
OpenAlex
W3094712663
Cited by
49
References
5
Citations by year
2026: 11 · 2025: 8 · 2024: 10 · 2023: 10 · 2022: 5 · 2021: 5
FWCI
2.00
Type
journal article
Language
en
Open access
Licence
Locations
  • Healthcare (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
Measurement and assessment of resilience in pediatric chronic disease (HIM/2013/019/SSA.1141)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Sociology and Political Science › Family Support in Illness
Keywords
quality of life, family caregivers, children with chronic illness, family functioning, social support, parental depression, resilience, sociodemographic factors, household income, family cohesion

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