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Cited by 24Dementia and Cognitive Impairment ResearchNursing care and researchGeriatric Care and Nursing Homes

Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities

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Duggleby, Wendy, Jovel Ruiz, Kathya, Ploeg, Jenny, McAiney, Carrie, Peacock, Shelley, Nekolaichuk, Cheryl, Holroyd-Leduc, Jayna, Ghosh, Sunita +8 more·2018·Pilot and Feasibility Studies
DOI 10.1186/s40814-018-0356-7PMC PMC6208108
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Abstract

Following institutionalization of a relative with Alzheimer disease and related dementias (ADRD), family carers continue to provide care. They must learn to negotiate with staff and navigate the system all of which can affect their mental health. A web-based intervention, My Tools 4 Care-In Care (MT4C-In Care) was developed by the research team to aid carers through the transitions experienced when their relative/friend with ADRD resides in a long-term care (LTC) facility. The purpose of this study was to evaluate MT4C-In Care for feasibility, acceptability, ease of use, and satisfaction, along with its potential to help decrease carer’s feelings of grief and improve their hope, general self-efficacy, and health-related quality of life. The study was a mixed-methods single-arm repeated measures feasibility study. Participants accessed MT4C-In Care over a 2-month period. Data were collected at baseline and 1 and 2 months. Using a checklist, participants evaluated MT4C-In Care for ease of use, feasibility, acceptability, and satisfaction. Measures were also used to assess the effectiveness of the MT4C-In Care in improving hope (Herth Hope Index), general self-efficacy (GSES), loss and grief (NDRGEI), and health-related quality of life (SF12v2) of participants. Qualitative data were collected at 2 months and informed quantitative findings. The majority of the 37 participants were female (65%; 24/37), married (73%; 27/37), and had a mean age of 63.24 years (SD = 11.68). Participants reported that MT4C-In Care was easy to use, feasible, and acceptable. Repeated measures ANOVA identified a statistically significant increase over time in participants hope scores (p = 0.03) and a significant decrease in grief (< 0.001). Although significant differences in mental health were not detected, hope (r = 0.43, p = 0.03) and grief (r = − 0.66, p < 0.001) were significantly related to mental health quality of life. MT4C-In Care is feasible, acceptable, and easy to use and shows promise to help carers of family members with ADRD residing in LTC increase their hope and decrease their grief. This study provides the foundation for a future pragmatic trial to determine the efficacy of MT4C-In Care. ClinicalTrials.gov NCT03571165. June 30, 2018 (retrospectively registered).

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  • Informal caregivers appreciate the ability to reflect on one's experiences in internet interventions.

    “ability to reflect on one's experiences (e.g., Duggleby et al., 2018)”

    From ICBT program for improving informal caregiver well-being: A qualitative study (2021) · cites this paper as Duggleby et al., 2018

  • The finding that some participants preferred written materials over the online format has been previously observed in other internet intervention studies for informal caregivers.

    “Such finding has been previously observed in other internet intervention studies for informal caregivers (e.g., Duggleby et al., 2018)”

    From ICBT program for improving informal caregiver well-being: A qualitative study (2021) · cites this paper as Duggleby et al., 2018

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  1. [26]Duggleby W, et al. A mixed methods study of hope, transitions and quality of life in family caregivers of persons with Alzheimer’s disease. BMC Geriatr. 2011;11(88). PMC3268103 22192235
  2. [33]Jovel-Ruiz, K., W. Duggleby, and A. Williams, Quality of life: caregivers of persons with dementia and multiple chronic conditions. International journal of care and caring., Resubmitted June 27, 2018.

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Authors
Duggleby, W., Jovel Ruiz, K., Ploeg, J., McAiney, C., Peacock, S., Nekolaichuk, C., Holroyd-Leduc, J., Ghosh, S., Brazil, K., Swindle, J., Forbes, D., Woodhead Lyons, S., Parmar, J., Kaasalainen, S., Cottrell, L., & Paragg, J.
Affiliations
  • University of Alberta (CA)
  • McMaster University (CA)
  • University of Waterloo (CA)
  • University of Saskatchewan (CA)
  • University of Calgary (CA)
  • Queen's University Belfast (GB)
  • Western University (CA)
  • Alberta Health Services (CA)
Corresponding author
Duggleby, Wendy
ORCID
Venue
Pilot and Feasibility Studies
Publisher
Springer Science and Business Media LLC
Published
2018-10-31
Volume
4
Issue
1
Pages
165-165
ISSN
2055-5784 (ISSN-L)
DOI
10.1186/s40814-018-0356-7
PMC
PMC6208108
OpenAlex
W2899451693
Cited by
24
References
28
Citations by year
2026: 2 · 2025: 5 · 2024: 5 · 2023: 1 · 2022: 3 · 2021: 4 · 2020: 3 · 2019: 1
FWCI
1.57
Type
journal article
Language
en
Open access
Licence
Locations
  • Pilot and Feasibility Studies (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Research Portal (Queen's University Belfast) (acceptedVersion, cc-by)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • Libraries and Cultural Resources (University of Calgary) (submittedVersion)
Funders
Canadian Frailty Network
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
Keywords
family caregivers, dementia, Alzheimer's disease and related dementias, long-term care facilities, online intervention, caregiver mental health, grief, hope, self-efficacy, health-related quality of life, feasibility, acceptability, ease of use

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