Web-based interventions to improve mental health, general caregiving outcomes, and general health for informal caregivers of adults with chronic conditions living in the community: rapid evidence review
Open accessAbstract
BACKGROUND: Most adults with chronic conditions live at home and rely on informal caregivers to provide support. Caregiving can result in negative impacts such as poor mental and physical health. eHealth interventions may offer effective and accessible ways to provide education and support to informal caregivers. However, we know little about the impact of Web-based interventions for informal caregivers of community-dwelling adults with chronic conditions. OBJECTIVE: The purpose of this rapid evidence review was to assess the impact of Web-based interventions on mental health, general caregiving outcomes, and general health for informal caregivers of persons with chronic conditions living in the community. METHODS: A rapid evidence review of the current literature was employed to address the study purpose. EMBASE, MEDLINE, PsychInfo, CINAHL, Cochrane, and Ageline were searched covering all studies published from January 1995 to July 2016. Papers were included if they (1) included a Web-based modality to deliver an intervention; (2) included informal, unpaid adult caregivers of community-living adults with a chronic condition; (3) were either a randomized controlled trial (RCT) or controlled clinical trial (CCT); and (4) reported on any caregiver outcome as a result of use or exposure to the intervention. RESULTS: A total of 20 papers (17 studies) were included in this review. Study findings were mixed with both statistically significant and nonsignificant findings on various caregiver outcomes. Of the 17 included studies, 10 had at least one significant outcome. The most commonly assessed outcome was mental health, which included depressive symptoms, stress or distress, and anxiety. Twelve papers examined the impact of interventions on the outcome of depressive symptoms; 4 found a significant decrease in depressive symptoms. Eight studies examined the outcome of stress or distress; 4 of these found a significant reduction in stress or distress as a result of the intervention. Three studies examined the outcome of anxiety; 2 of these found significant reductions in anxiety. Other significant results of the interventions were seen in the outcomes of caregiver gain (ie, positive aspects of caregiving), knowledge, bonding, reduction of anger-hostility, and negative mood. Based on this review, it is not possible to determine which interventions were most effective since studies differed in their design, sample, and intervention. Study results suggest that Web-based interventions may result in reduced depressive symptoms, anxiety, and stress or distress among informal caregivers of adults with chronic conditions in the community. CONCLUSIONS: This is the first review assessing the impact of Web-based technologies on mental health, general caregiving outcomes, and general health for caregivers of adults with chronic conditions living in the community. Further rigorous research is needed that includes adequately powered studies examining the critical components of the intervention and the dosage needed to have an effect.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Findings across mental health outcomes of internet interventions for informal caregivers are inconsistent.
“However, findings across mental health outcomes are inconsistent.”
From ICBT program for improving informal caregiver well-being: A qualitative study (2021) · cites this paper as Ploeg et al., 2017
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Hoffmann, T. C., Glasziou, P. P., Boutron, I., Milne, R., Perera, R., Moher, D., Altman, D. G., Barbour, V., Macdonald, H., Johnston, M., et al. (2014) · BMJ · doi:10.1136/bmj.g1687 · Cited by 10,548 · see citing works
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study
Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340 · cited 1× · see citing works
“Furthermore, a prospective population-based cohort study found that, among older caregivers, a state of mental or emotional strain was associated with a 63% higher risk of mortality compared with noncaregivers [10].”
BackgroundPinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857 · see citing works
Expediting systematic reviews: methods and implications of rapid reviews
Ganann, R., Ciliska, D., & Thomas, H. (2010) · Implementation Science · doi:10.1186/1748-5908-5-56 · Cited by 752 · see citing works
Boots, L. M. M., de Vugt, M. E., van Knippenberg, R. J. M., Kempen, G. I. J. M., & Verhey, F. R. J. (2014) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4016 · Cited by 449 · see citing works
Design, Evaluation, and Translation of Nursing Interventions
Sidani, S., & Braden, C. J. (2011) · Wiley eBooks · doi:10.1002/9781118785553 · Cited by 281 · see citing works
Dam, A. E. H., de Vugt, M. E., Klinkenberg, I. P. M., Verhey, F. R. J., & van Boxtel, M. P. J. (2016) · Maturitas · doi:10.1016/j.maturitas.2015.12.008 · Cited by 263 · see citing works
Worksite-Based Internet Multimedia Program for Family Caregivers of Persons With Dementia
Beauchamp, N., Irvine, A. B., Seeley, J., & Johnson, B. (2005) · The Gerontologist · doi:10.1093/geront/45.6.793 · Cited by 218 · see citing works
Blom, M. M., Zarit, S. H., Groot Zwaaftink, R. B. M., Cuijpers, P., & Pot, A. M. (2015) · PLOS ONE · doi:10.1371/journal.pone.0116622 · Cited by 210 · see citing works
Cristancho-Lacroix, V., Wrobel, J., Cantegreil-Kallen, I., Dub, T., Rouquette, A., & Rigaud, A.-S. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.3717 · Cited by 205 · see citing works
Hollander, M. J., Liu, G., & Chappell, N. L. (2009) · Healthcare Quarterly · doi:10.12927/hcq.2009.20660 · Cited by 193 · see citing works
Dementia Caregivers’ Responses to 2 Internet-Based Intervention Programs
Marziali, E., & Garcia, L. J. (2011) · American Journal of Alzheimer's Disease & Other Dementias® · doi:10.1177/1533317510387586 · Cited by 186 · see citing works
Marziali, E., & Donahue, P. (2006) · The Gerontologist · doi:10.1093/geront/46.3.398 · Cited by 185 · see citing works
Ploeg, J., Matthew-Maich, N., Fraser, K., Dufour, S., McAiney, C., Kaasalainen, S., Markle-Reid, M., Upshur, R., Cleghorn, L., & Emili, A. (2017) · BMC Geriatrics · doi:10.1186/s12877-017-0431-6 · Cited by 183 · see citing works
Hattink, B. J. J., Meiland, F. J. M., van der Roest, H. G., Kevern, P., Abiuso, F., Bengtsson, J. E., Giuliano, A., Duca, A., Sanders, J., Basnett, F., et al. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4025 · Cited by 162 · see citing works
Cheng, H. Y., Chair, S. Y., & Chau, J. P. C. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.01.005 · Cited by 162 · see citing works
Technology-Driven Interventions for Caregivers of Persons With Dementia
Godwin, K. M., Mills, W. L., ANDERSON, J. A., & Kunik, M. E. (2013) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317513481091 · Cited by 159 · see citing works
Kajiyama, B., Thompson, L. W., Eto-Iwase, T., Yamashita, M., Mario, J. D., Tzuang, M., & Gallagher-Thompson, D. E. (2013) · Aging & Mental Health · doi:10.1080/13607863.2013.775641 · Cited by 157 · see citing works
Hoffmann, T., Glasziou, P., Boutron, I., Milne, R., Perera, R., Moher, D., Altman, D. G., Barbour, V., Macdonald, H., Johnston, M., et al. (2016) · Das Gesundheitswesen · doi:10.1055/s-0041-111066 · Cited by 154 · see citing works
Smith, G. C., Egbert, N., Dellman-Jenkins, M., Nanna, K., & Palmieri, P. A. (2012) · Rehabilitation Psychology · doi:10.1037/a0029587 · Cited by 140 · see citing works
CHESS improves cancer caregivers’ burden and mood: Results of an eHealth RCT.
DuBenske, L. L., Gustafson, D. H., Namkoong, K., Hawkins, R. P., Atwood, A. K., Brown, R., Chih, M., Mctavish, F. M., Carmack, C. L., Buss, M. K., et al. (2013) · Health Psychology · doi:10.1037/a0034216 · Cited by 138 · see citing works
Dew, M. A., Goycoolea, J. M., Harris, R., Lee, A., Zomak, R. A., Dunbar‐Jacob, J. M., Rotondi, A. J., Griffith, B. P., & Kormos, R. L. (2004) · The Journal of Heart and Lung Transplantation · doi:10.1016/j.healun.2003.07.002 · Cited by 137 · see citing works
A systematic review of networked technologies supporting carers of people with dementia
Powell, J., Chiu, T., & Eysenbach, G. (2008) · Journal of Telemedicine and Telecare · doi:10.1258/jtt.2008.003018 · Cited by 113 · see citing works
Hu, C., Kung, S., Rummans, T. A., Clark, M. M., & Lapid, M. I. (2015) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2014-002817 · Cited by 113 · see citing works
Torkamani, M., the ALADDIN Collaborative Group, McDonald, L., Aguayo, I. S., Kanios, C., Katsanou, M.-N., Madeley, L., Limousin, P. D., Lees, A. J., Haritou, M., et al. (2014) · Journal of Alzheimer s Disease · doi:10.3233/jad-132156 · Cited by 108 · see citing works
Pierce, L. L. B., Steiner, V., Khuder, S., Govoni, A. L., & Horn, L. J. (2009) · Disability and Rehabilitation · doi:10.1080/09638280902751972 · Cited by 99 · see citing works
Using Web-Based Interventions to Support Caregivers of Patients With Cancer: A Systematic Review
Kaltenbaugh, D., Klem, M. L., Hu, L., Turi, E., Haines, A., & Hagerty Lingler, J. (2015) · Oncology Nursing Forum · doi:10.1188/15.onf.156-164 · Cited by 98 · see citing works
Interventions for Hispanic Caregivers of Patients with Dementia
Llanque, S. M., & Enriquez, M. (2012) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317512439794 · Cited by 98 · see citing works
An eHealth system supporting palliative care for patients with non–small cell lung cancer
Gustafson, D. H., DuBenske, L. L., Namkoong, K., Hawkins, R. P., Chih, M., Atwood, A. K., Johnson, R., Bhattacharya, A., Carmack, C. L., Traynor, A. M., et al. (2013) · Cancer · doi:10.1002/cncr.27939 · Cited by 93 · see citing works
Corry, M., While, A., Neenan, K., & Smith, V. A. (2014) · Journal of Advanced Nursing · doi:10.1111/jan.12523 · Cited by 90 · see citing works
McKechnie, V., Barker, C., & Stott, J. C. H. (2014) · International Psychogeriatrics · doi:10.1017/s1041610214001045 · Cited by 84 · see citing works
Use of an Online Community to Provide Support to Caregivers of People With Dementia
Pagan‐Ortiz, M. E., Cortés, D. E., Rudloff, N. D., Weitzman, P. F., & Levkoff, S. E. (2014) · Journal of Gerontological Social Work · doi:10.1080/01634372.2014.901998 · Cited by 79 · see citing works
Jackson, D. M., Roberts, G., Wu, M., Ford, R. C., & Doyle, C. (2016) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2016.06.013 · Cited by 76 · see citing works
Hattink, B. J. J., Meiland, F. J. M., Overmars-Marx, T., de Boer, M., Ebben, P. W. G., van Blanken, M., Verhaeghe, S., Stalpers-Croeze, I., Jedlitschka, A., Flick, S. E., et al. (2016) · Disability and Rehabilitation: Assistive Technology · doi:10.3109/17483107.2014.932022 · Cited by 70 · see citing works
Creating a Bond Between Caregivers Online: Effect on Caregivers’ Coping Strategies
Namkoong, K., DuBenske, L. L., Shaw, B. R., Gustafson, D. H., Hawkins, R. P., Shah, D. V., Mctavish, F. M., & Cleary, J. F. (2011) · Journal of Health Communication · doi:10.1080/10810730.2011.585687 · Cited by 66 · see citing works
Fisher, K., Griffith, L. E., Gruneir, A., Panjwani, D., Gandhi, S., Li, S., Gafni, A., Patterson, C., Markle‐Reid, M., & Ploeg, J. (2016) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2016.10.009 · Cited by 66 · see citing works
Mahoney, D. F., Mutschler, P. H., Tarlow, B., & Liss, E. (2008) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2007.0046 · Cited by 64 · see citing works
Do Technology-Based Support Groups Reduce Care Burden Among Dementia Caregivers? A Review
Lee, E. (2015) · Journal of Evidence-Informed Social Work · doi:10.1080/15433714.2014.930362 · Cited by 56 · see citing works
Emotional Support, Physical Help, and Health of Caregivers of Stroke Survivors
Steiner, V., Pierce, L. L. B., Drahuschak, S., Nofziger, E. J., Buchman, D., & Szirony, T. A. (2008) · Journal of Neuroscience Nursing · doi:10.1097/01376517-200802000-00008 · Cited by 48 · see citing works
Peterson, K., Floyd, N., Ferguson, L., Christensen, V., & Helfand, M. (2016) · Systematic Reviews · doi:10.1186/s13643-016-0306-5 · Cited by 42 · see citing works
Web-Based Training in Family Advocacy
McLaughlin, K. A., Glang, A. E., Beaver, S. V., Gau, J. M., & Keen, S. (2012) · Journal of Head Trauma Rehabilitation · doi:10.1097/htr.0b013e31824e1d43 · Cited by 39 · see citing works
Online Support for Employed Informal Caregivers
Klemm, P. R., Hayes, E. R., Diefenbeck, C. A., & Milcarek, B. I. (2013) · CIN Computers Informatics Nursing · doi:10.1097/cin.0000000000000009 · Cited by 34 · see citing works
Supporting people who care for older family members
Parmar, J., Jetté, N., Brémault‐Phillips, S., & Holroyd-Leduc, J. M. (2014) · Canadian Medical Association Journal · doi:10.1503/cmaj.131831 · Cited by 11 · see citing works
Flagged first, then by citations
Research works printed but not linked: 1
- [2]Centers for Disease Control and Prevention CDC 2016 2017-02-22 Chronic disease overview https://www.cdc.gov/chronicdisease/overview/ 30869850
Cited by
Sorted by citations
Zhu, Z., Xu, S., Wang, H., Liu, Z., Wu, J., Guo, L., Miao, J., Zhang, C., Yang, Y., Sun, W., et al. (2020) · EClinicalMedicine · doi:10.1016/j.eclinm.2020.100443 · Cited by 602 · see citing works
The psychological impact of COVID-19 pandemic on health care workers in a MERS-CoV endemic country
Temsah, M.-H. A., Alsohime, F., Alamro, N., Al-Eyadhy, A. A., Alhasan, K. A., Jamal, A. A., AlMaglouth, I., Aljamaan, F., Al‐Amri, M., Barry, M. A., et al. (2020) · Journal of Infection and Public Health · doi:10.1016/j.jiph.2020.05.021 · Cited by 351 · see citing works
Leng, M., Zhao, Y., Xiao, H., Li, C., & Wang, Z. (2020) · Journal of Medical Internet Research · doi:10.2196/19468 · Cited by 184 · see citing works
RetractedWorsening of Preexisting Psychiatric Conditions During the COVID-19 Pandemic
Płomecka, M. B., Gobbi, S., Neckels, R., Radziński, P., Skórko, B., Lazzeri, S., Almazidou, K., Dedić, A., Bakalović, A., Hrustić, L., et al. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.581426 · Cited by 184 · see citing works
Sherifali, D., Ali, M. U., Ploeg, J., Markle-Reid, M., Valaitis, R., Bartholomew, A., Fitzpatrick-Lewis, D., & McAiney, C. (2018) · Journal of Medical Internet Research · doi:10.2196/10668 · Cited by 151 · see citing works
Mobile Apps for Caregivers of Older Adults: Quantitative Content Analysis
Grossman, M. R., Zak, D. K., & Zelinski, E. M. (2018) · JMIR mhealth and uhealth · doi:10.2196/mhealth.9345 · Cited by 121 · see citing works
Zhao, Y., Feng, H., Hu, M., Hu, H., Li, H., Ning, H., Chen, H., Liao, L., & Peng, L. (2019) · Journal of Medical Internet Research · doi:10.2196/13415 · Cited by 102 · see citing works
Seifert, A., Reinwand, D. A., & Schlomann, A. (2019) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2019.00568 · Cited by 105 · see citing works
Caregiver-Focused, Web-Based Interventions: Systematic Review and Meta-Analysis (Part 2)
Ploeg, J., Ali, M. U., Markle‐Reid, M., Valaitis, R. K., Bartholomew, A., Fitzpatrick‐Lewis, D., McAiney, C. A., & Sherifali, D. (2018) · Journal of Medical Internet Research · doi:10.2196/11247 · Cited by 94 · see citing works
Bennett, C. B., Ruggero, C. J., Sever, A. C., & Yanouri, L. (2020) · Journal of Psychotherapy Integration · doi:10.1037/int0000217 · Cited by 87 · see citing works
Carter, G., Monaghan, C., & Santin, O. (2020) · Health & Social Care in the Community · doi:10.1111/hsc.12944 · Cited by 79 · see citing works
Boots, L. M., de Vugt, M. E., Smeets, C. M., Kempen, G. I., & Verhey, F. R. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7666 · Cited by 61 · see citing works
Santin, O., McShane, T., Hudson, P., & Prue, G. (2018) · Psycho-Oncology · doi:10.1002/pon.4969 · Cited by 73 · see citing works
Lorca-Cabrera, J., Ferré‐Grau, C., Arques, R. M., Raigal‐Aran, L., Falcó‐Pegueroles, A., & Albacar-Riobóo, N. (2019) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2019.104003 · Cited by 68 · see citing works
Duggleby, W., Ploeg, J., McAiney, C., Peacock, S., Fisher, K., Ghosh, S., Markle-Reid, M., Swindle, J., Williams, A., Triscott, J. A., et al. (2018) · Journal of Medical Internet Research · doi:10.2196/10484 · Cited by 67 · see citing works
Bangerter, L. R., Griffin, J. M., Harden, K., & Rutten, L. J. F. (2018) · JMIR Aging · doi:10.2196/11237 · Cited by 66 · see citing works
mHealth Interventions to Support Caregivers of Older Adults: Equity-Focused Systematic Review
Garnett, A., Northwood, M., Ting, J. J., & Sangrar, R. (2022) · JMIR Aging · doi:10.2196/33085 · Cited by 60 · see citing works
Mental Health Impact of COVID-19: A global study of risk and resilience factorsPreprint
Płomecka, M. B., Gobbi, S., Neckels, R., Radziński, P., Skórko, B., Lazzeri, S., Almazidou, K., Dedić, A., Bakalović, A., Hrustić, L., et al. (2020) · doi:10.31234/osf.io/zj6b4 · Cited by 58 · see citing works
The information needs of parents of children with early-onset epilepsy: A systematic review
Nevin, S. M., Wakefield, C. E., Schilstra, C. E., McGill, B. C., Bye, A., & Palmer, E. E. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.107382 · Cited by 48 · see citing works
Electronic Health Interventions in the Case of Multiple Sclerosis: From Theory to Practice
Scholz, M., Haase, R., Schriefer, D., Voigt, I., & Ziemssen, T. (2021) · Brain Sciences · doi:10.3390/brainsci11020180 · Cited by 43 · see citing works
McCarron, H. R., Zmora, R., & Gaugler, J. E. (2019) · JMIR Aging · doi:10.2196/13378 · Cited by 41 · see citing works
Alvariza, A., Tibell, L. H., Holm, M., Steineck, G., & Kreicbergs, U. C. (2020) · BMC Palliative Care · doi:10.1186/s12904-020-0530-6 · Cited by 39 · see citing works
Mobile phone apps for family caregivers: A scoping review and qualitative content analysis
Park, J. Y. E., Tracy, C. S., & Gray, C. S. (2022) · Digital Health · doi:10.1177/20552076221076672 · Cited by 38 · see citing works
Melchiorre, M. G., Lamura, G., & Barbabella, F. (2018) · PLoS ONE · doi:10.1371/journal.pone.0207292 · Cited by 35 · see citing works
Burgdorf, J. G., Wolff, J. L., Chase, J. D., & Arbaje, A. I. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17762 · Cited by 37 · see citing works
Rico‐Blázquez, M., García-Sanz, P., Martín-Martín, M., López-Rodríguez, J. A., Morey-Montalvo, M., Sanz‐Cuesta, T., Rivera-Álvarez, A., Araujo-Calvo, M., Frías-Redondo, S., Escortell‐Mayor, E., et al. (2021) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2021.103955 · Cited by 34 · see citing works
Spencer, L., Potterton, R., Allen, K. L., Musiat, P., & Schmidt, U. H. (2019) · Journal of Medical Internet Research · doi:10.2196/10876 · Cited by 30 · see citing works
Vicente, M. M., Delgado, M. G., Prieto, J. P., Domínguez, P. R., & Gusi, N. (2020) · International Psychogeriatrics · doi:10.1017/s104161022000157x · Cited by 31 · see citing works
Helping Dementia Caregivers Manage Medical Problems: Benefits of an Educational Resource
Zimmerman, S. I., Sloane, P. D., Ward, K., Beeber, A., Reed, D., Lathren, C., Matchar, B. G., & Gwyther, L. P. (2018) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317517749466 · Cited by 29 · see citing works
Informal Caregivers Disclose Increasingly More to a Social Robot Over Time
Laban, G., Morrison, V. L., Kappas, A., & Cross, E. S. (2022) · CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) · doi:10.1145/3491101.3519666 · Cited by 28 · see citing works
ICBT program for improving informal caregiver well-being: A qualitative study
Biliunaite, I., Dumarkaite, A., Kazlauskas, E., Sanderman, R., & Andersson, G. (2021) · Internet Interventions · doi:10.1016/j.invent.2021.100361 · Cited by 22 · see citing works
Santin, O., Jenkins, C., Nghiem, H. L. P., Prue, G., Reid, J., Lohfeld, L. H., & Ho, H. T. (2020) · Psycho-Oncology · doi:10.1002/pon.5368 · Cited by 26 · see citing works
Vicente, M. M., Delgado, M. G., Prieto, J. P., Adsuar, J. C., & Gusi, N. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17031078 · Cited by 26 · see citing works
Duggleby, W., Jovel Ruiz, K., Ploeg, J., McAiney, C., Peacock, S., Nekolaichuk, C., Holroyd-Leduc, J., Ghosh, S., Brazil, K., Swindle, J., et al. (2018) · Pilot and Feasibility Studies · doi:10.1186/s40814-018-0356-7 · Cited by 24 · see citing works
Psychological well‐being and family distress of Italian caregivers during the COVID‐19 outbreak
Fusar‐Poli, L., Surace, T., Meo, V., Patania, F., Avanzato, C., Pulvirenti, A., Aguglia, E., & Signorelli, M. S. (2021) · Journal of Community Psychology · doi:10.1002/jcop.22772 · Cited by 23 · see citing works
Płomecka, M. B., Gobbi, S., Neckels, R., Radziński, P., Skórko, B., Lazzeri, S., Almazidou, K., Dedić, A., Bakalović, A., Hrustić, L., et al. (2021) · JMIR Mental Health · doi:10.2196/28736 · Cited by 20 · see citing works
Levinson, A. J., Ayers, S., Butler, L., Παπαϊωάννου, Α., Marr, S., & Sztramko, R. (2020) · JMIR Aging · doi:10.2196/21264 · Cited by 18 · see citing works
Chin, W. J., Ho, Y. L. S., Ramazanu, S., Itoh, S., Klainin‐Yobas, P., & Wu, X. V. (2021) · Journal of Advanced Nursing · doi:10.1111/jan.15130 · Cited by 19 · see citing works
McKay, R. C., Wuerstl, K. R., Casemore, S., Clarke, T., McBride, C. B., & Gainforth, H. L. (2019) · Social Science & Medicine · doi:10.1016/j.socscimed.2019.112456 · Cited by 16 · see citing works
Lally, R. M., Eisenhauer, C. M., Buckland, S., & Kupzyk, K. A. (2018) · Oncology nursing forum · doi:10.1188/18.onf.e111-e124 · Cited by 16 · see citing works
Designing video stories around the lived experience of severe mental illness
Honary, M., McNaney, R., & Lobban, F. A. (2018) · Nordic Conference on Human-Computer Interaction · doi:10.1145/3240167.3240188 · Cited by 16 · see citing works
Zhou, Y., Bai, Z., Wan, K., Qin, T., He, R., & Xie, C. (2024) · BMC Geriatrics · doi:10.1186/s12877-024-05018-w · Cited by 15 · see citing works
Bamgboje-Ayodele, A., Levesque, J., Gerges, M., & Girgis, A. (2020) · Journal of psychosocial oncology · doi:10.1080/07347332.2020.1850600 · Cited by 12 · see citing works
Silaule, O., Casteleijn, D., Adams, F., & Nkosi, N. G. (2023) · Interactive Journal of Medical Research · doi:10.2196/48587 · Cited by 17 · see citing works
A pilot study of mobilized intervention to help caregivers of oncology patients manage distress
Pensak, N. A., Carr, A. L., Jones, J., Mikulich‐Gilbertson, S. K., Kutner, J. S., Kilbourn, K. M., Sannes, T. S., Brewer, B. W., Kolva, E., Joshi, T., et al. (2020) · Psycho-Oncology · doi:10.1002/pon.5597 · Cited by 15 · see citing works
Caregivers of People with Substance use or Mental Health Disorders in the US
Timko, C., Lor, M. C., Rossi, F. S., Peake, A., & Cucciare, M. A. (2022) · Substance Abuse · doi:10.1080/08897077.2022.2074605 · Cited by 14 · see citing works
A knowledge graph-based recommender system for dementia care: Design and evaluation study
Sun, Y., Leng, M., Lu, W., Li, B., Lv, F., Zhang, W., & Wang, Z. (2024) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2024.105554 · Cited by 14 · see citing works
Hayashi, E., Mitani, H., Murayama, H., Anzai, T., Studer, R. L., Cotton, S. E., Jackson, J., Bailey, H. M. L., Kitagawa, H., & Oyama, N. (2021) · Geriatric Nursing · doi:10.1016/j.gerinurse.2021.01.010 · Cited by 14 · see citing works
What Male Caregivers of Women With Breast Cancer Want in an Online Intervention: A Qualitative Study
Bamgboje‐Ayodele, A., Levesque, J. V., Gerges, M., & Girgis, A. (2020) · Journal of Patient Experience · doi:10.1177/2374373520926098 · Cited by 13 · see citing works
Montero-Cuadrado, F., Galan-Martin, M. A., Sánchez-Sánchez, J., Lluch, E., Mayo-Íscar, A., & Cuesta-Vargas, A. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17207359 · Cited by 12 · see citing works
Li, J., Feng, L.-F., Wu, A. M. S., Mai, J.-C., Yu-xia, C., Mo, P. K. H., & Lau, J. T. F. (2021) · Journal of Medical Internet Research · doi:10.2196/21316 · Cited by 13 · see citing works
Landtblom, A., Guala, D., Martin, C., Hau, S. O., Haghighi, S., Jansson, L., & Fredrikson, S. (2019) · PLoS ONE · doi:10.1371/journal.pone.0218453 · Cited by 12 · see citing works
Young, H. M., Bell, J. F., Tonkikh, O., Kilaberia, T. R., Whitney, R. L., Mongoven, J. M., Link, B. M., & Kelly, K. (2022) · JMIR Formative Research · doi:10.2196/38735 · Cited by 12 · see citing works
Ho, H. T., Jenkins, C., Ta, H. Q., Bui, C. L., Hoang, M. V., & Santin, O. (2021) · Journal of Global Health · doi:10.7189/jogh.11.03095 · Cited by 11 · see citing works
Remote Care for Caregivers of People With Psychosis: Mixed Methods Pilot Study
Romm, K. L., Nilsen, L., Gjermundsen, K., Holter, M., Fjell, A., Melle, I. S., Repål, A., & Lobban, F. A. (2020) · JMIR Mental Health · doi:10.2196/19497 · Cited by 11 · see citing works
Levesque, J. V., Gerges, M., & Girgis, A. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-019530 · Cited by 10 · see citing works
Vicente, M. M., Prieto, J. P., Domínguez, P. R., & Gusi, N. (2020) · Healthcare · doi:10.3390/healthcare8010054 · Cited by 11 · see citing works
Coumoundouros, C., von Essén, L., Sanderman, R., & Woodford, J. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-035406 · Cited by 10 · see citing works
Salehinejad, S., Jannati, N., Azami, M., Mirzaee, M., & Bahaadinbeigy, K. (2022) · Journal of Information Science · doi:10.1177/01655515221081353 · Cited by 9 · see citing works
Collins-Pisano, C., Leggett, A. N., Gambee, D., & Fortuna, K. L. (2023) · JMIR Human Factors · doi:10.2196/41202 · Cited by 9 · see citing works
Dale, J. R., Nanton, V., Day, T., Apenteng, P. N., Bernstein, C. J., Smith, G. G., Strong, P., & Procter, R. (2023) · JMIR Aging · doi:10.2196/41185 · Cited by 9 · see citing works
Budhrani-Shani, P., Raeesi, K., Walter, E., Lewis, K., Wang, W., Cohen, L. G., Yeh, G. Y., Lengacher, C. A., & Wayne, P. M. (2021) · Pilot and Feasibility Studies · doi:10.1186/s40814-021-00793-4 · Cited by 9 · see citing works
Programs Addressed to Family Caregivers/Informal Caregivers Needs: Systematic Review Protocol
Sousa, L., Gemito, M. L., Ferreira, R., de Pinho, L. G., da Fonseca, C. J. V., & Lopes, M. J. (2022) · Journal of Personalized Medicine · doi:10.3390/jpm12020145 · Cited by 9 · see citing works
Tibell, L. H., Alvariza, A., Kreicbergs, U. C., Wallin, V. B., Steineck, G., & Holm, M. (2022) · Palliative & Supportive Care · doi:10.1017/s1478951522001602 · Cited by 8 · see citing works
Delvallée, M., Garreau, R., Termoz, A., Ploteau, P.-M., Derex, L., Schott, A., & Haesebaert, J. (2024) · Digital Health · doi:10.1177/20552076241240895 · Cited by 7 · see citing works
Family Caregivers’ Experiences during the COVID-19 Pandemic: Qualitative Study
Rico‐Blázquez, M., Sánchez-Ruano, R., Oter‐Quintana, C., Polentinos-Castro, E., García, Á. M., Otones-Reyes, P., González‐Beltrán, D., & Martínez-Marcos, M. (2024) · Healthcare · doi:10.3390/healthcare12100970 · Cited by 8 · see citing works
Healthcare and social care professionals’ experiences of respite care: a critical incident study
Gusdal, A. K., Söderman, M., Pettersson, T., Kaup, J., & Gustafsson, L. (2024) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.1080/17482631.2024.2352888 · Cited by 7 · see citing works
Jansen, R., & Reid, M. (2020) · JMIR mhealth and uhealth · doi:10.2196/13179 · Cited by 7 · see citing works
Exploring interface design to support caregivers’ needs and feelings of trust in online content
Hussein, T., Chauhan, P. K., Dalmer, N. K., Rudzicz, F., & Boger, J. N. (2020) · Journal of Rehabilitation and Assistive Technologies Engineering · doi:10.1177/2055668320968482 · Cited by 7 · see citing works
García‐Tizón, S. J., Bueno, B., & Navarro, A. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13678 · Cited by 7 · see citing works
Ozluk, P., Cobb, R., Hoots, A., & Sylwestrzak, M. (2022) · Journal of Medical Internet Research · doi:10.2196/28504 · Cited by 7 · see citing works
Type and efficacy of online training for informal carers: a narrative review
Bressington, D. T., Gray, R. J., Barclay, K., Overy, C., & Blackberry, I. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1603020 · Cited by 6 · see citing works
Dealing with Loved Ones’ Addiction: Development of an App to Cope with Caregivers’ Stress
Renati, R., Bonfiglio, N. S., & Rollo, D. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph192315950 · Cited by 6 · see citing works
Martindale-Adams, J. L., Clark, C. D., Martin, J. R., Henderson, C. R., & Nichols, L. O. (2022) · Journal of Participatory Medicine · doi:10.2196/35318 · Cited by 6 · see citing works
Zhi, S., Ma, D., Song, D., Gao, S., Sun, J., He, M., Zhu, X., Dong, Y., Gao, Q., & Sun, J. (2023) · International Journal of Mental Health Nursing · doi:10.1111/inm.13177 · Cited by 6 · see citing works
Activity participation patterns of community mental health consumers
Jennings, C., Lhuede, K., Bradley, G., Pepin, G., & Hitch, D. (2021) · British Journal of Occupational Therapy · doi:10.1177/0308022620945166 · Cited by 5 · see citing works
Lovell, B., & Wetherell, M. A. (2024) · Journal of Child and Family Studies · doi:10.1007/s10826-024-02876-1 · Cited by 5 · see citing works
Duggleby, W., O’Rourke, H. M., Swindle, J., Peacock, S., McAiney, C. A., Baxter, P. E., Thompson, G. N., Dubé, V., Nekolaichuk, C., Ghosh, S., et al. (2020) · BMC Geriatrics · doi:10.1186/s12877-020-01690-w · Cited by 5 · see citing works
Perception of COVID‐19 pandemic restrictions on dental researchers
Souza, G. M. D., Tiwari, T., Fox, C. H., Miguez, P. A., Letra, A., Geisinger, M. L., Patel, M. P., Shaddox, L. M., & Ioannidou, E. (2022) · Journal of Dental Education · doi:10.1002/jdd.13104 · Cited by 5 · see citing works
Silva, E. M. G. D. S. E., da Silva, S. T., de Holanda, L. J., Borges, D. T., Fernandes, A. P. M., da Silva, K. E. R., Ribeiro, T. S., de Melo, L. P., Valentim, R. A. D. M., Nagem, D. A. P., et al. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1164370 · Cited by 5 · see citing works
Burden of informal caregivers of people without natural speech: a mixed-methods intervention study
Zinkevich, A., Uthoff, S. A. K., Wirtz, M. A., Boenisch, J., Sachse, S. K., Bernasconi, T., Feldhaus, M., & Ansmann, L. (2022) · BMC Health Services Research · doi:10.1186/s12913-022-08824-3 · Cited by 5 · see citing works
Jibb, L., Yu, A., Nanos, S. M., Malfitano, C., Foran, L., Hunt, K., Malakian, A., Zimmermann, C., Schultebraucks, K., Pham, N., et al. (2025) · Psycho-Oncology · doi:10.1002/pon.70310 · Cited by 4 · see citing works
Xu, C., Cao, Z., Yang, H., Gao, Y., Sun, L. N., Hou, Y., Cao, X., Jia, P., & Wang, Y. (2020) · Journal of Medical Internet Research · doi:10.2196/18998 · Cited by 4 · see citing works
Robinson, T. D., Pollard, T., & Sarver, W. L. (2021) · Journal of Ambulatory Care Management · doi:10.1097/jac.0000000000000400 · Cited by 4 · see citing works
Hernández, R., Cohn, M., Hernandez, A., Daviglus, M. L., Martinez, L., Martínez, Á., Martinez, I., Durazo-Arvizú, R., & Moskowitz, J. T. (2020) · JMIR Research Protocols · doi:10.2196/17721 · Cited by 4 · see citing works
Pilot Study of a Transitional Intervention for Family Caregivers of Older Adults
McCusker, J., Lambert, S., Yaffe⃰, M. J., Cole, M. G., Hidalgo, M., Amir, E., de Raad, M., & Belzile, É. (2018) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s071498081800051x · Cited by 4 · see citing works
Levinson, A. J., Ayers, S., Clark, S., Woodburn, R., Dobbins, M., Duarte, D. G. G., Grad, R. M., Kates, N., Marr, S., Oliver, D., et al. (2024) · JMIR Research Protocols · doi:10.2196/64718 · Cited by 3 · see citing works
Effectiveness of My Tools for Care-in Care: A Pragmatic Randomized Controlled Trial
O’Rourke, H. M., Swindle, J., Baxter, P. E., Peacock, S., Thompson, G. N., Ghosh, S., Chacinski, D., Holroyd-Leduc, J. M., Dubé, V., & Duggleby, W. (2025) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2025.105484 · Cited by 3 · see citing works
Yank, V. A., Gale, R. C., Nevedal, A., Okwara, L., Koenig, C. J., TRIVEDI, R. B., Dupke, N. J., Kabat, M., & Asch, S. M. (2021) · Journal of Medical Internet Research · doi:10.2196/16495 · Cited by 3 · see citing works
Silva, E. M. G. D. S. E., de Melo, L. P., de Souza, A. A., de Holanda, L. J., Ribeiro, T. S., Valentim, R. A. D. M., & Lindquist, A. R. R. (2022) · Frontiers in Aging Neuroscience · doi:10.3389/fnagi.2022.951397 · Cited by 3 · see citing works
Hüzmeli, E. D., Güntel, M., Tambağ, H., Kutlu, Y., Lekesiz, E., Dağlı, O., Baytak, S., Gökçek, Ö. C., Demetgül, Ö., Duman, T., et al. (2025) · Disability and Rehabilitation · doi:10.1080/09638288.2025.2451208 · Cited by 2 · see citing works
BİRİNCİ, E., Bayram, C., & Özkaraman, A. (2025) · Journal of Evaluation in Clinical Practice · doi:10.1111/jep.70063 · Cited by 2 · see citing works
Building Better Website Resources: What People Diagnosed with Sarcoma and Their Carers Want to Know
Halkett, G. K. B., Davies, J., Maxwell‐Smith, C., Farnell, C., Basson, M., Rice-Brading, T., Sousa, M. S., Sproul, J., DeJong, H. M., Dhillon, H. M., et al. (2025) · Current Oncology · doi:10.3390/curroncol32120691 · Cited by 2 · see citing works
The rationale and evidence for virtual methods of training for caregivers a narrative review
Budhrani-Shani, P., & Mathews, N. J. (2020) · Journal of Nursing Research and Practice · doi:10.37532/jnrp.2020.4(2).1-6 · Cited by 2 · see citing works
Jansen, R., & Reid, M. (2020) · Issues in Mental Health Nursing · doi:10.1080/01612840.2020.1774017 · Cited by 2 · see citing works
Family Caregivers’ Experiences and Education When Caring for Individuals after Joint Arthroplasty
O’Neil, E., Ngan, J., Miller, W. C., & Mohammadi, S. (2023) · Physical & Occupational Therapy In Geriatrics · doi:10.1080/02703181.2023.2172125 · Cited by 2 · see citing works
Effect of Interventions on Informal Caregivers of Older Adults: A Scientific Mini Review
Zhylkybekova, A., Koshmaganbetova, G. K., Grjibovski, A. M., & Glushkova, N. (2023) · Медицинский журнал Западного Казахстана · doi:10.18502/wkmj.v65i4.14678 · Cited by 2 · see citing works
Mazhar, M., Mahmood, H., & Speck, M. (2024) · Journal of Professional & Applied Psychology · doi:10.52053/jpap.v5i2.269 · Cited by 2 · see citing works
Xu, Z., Ghisi, G. L. D. M., Cui, L., Zeng, F., Zhou, X., Yue, Z., & Chen, H. (2022) · JMIR Formative Research · doi:10.2196/37046 · Cited by 2 · see citing works
Care for the Caregiver : Internet intervention for informal caregivers in Lithuania
Biliūnaitė, I. (2022) · Linköping studies in behavioural science · doi:10.3384/9789179291877 · Cited by 1 · see citing works
- Authors
- Ploeg, J., Markle-Reid, M., Valaitis, R., McAiney, C., Duggleby, W., Bartholomew, A., & Sherifali, D.
- Affiliations
- McMaster University (CA)
- University of Alberta (CA)
- Corresponding author
- Ploeg, Jenny
- ORCID
- Venue
- Journal of Medical Internet Research
- Publisher
- JMIR Publications Inc.
- Published
- 2017-07-28
- Volume
- 19
- Issue
- 7
- Pages
- e263
- ISSN
- 1438-8871 (ISSN-L)
- PMC
- PMC5554353
- OpenAlex
- W2739664154
- Cited by
- 126
- References
- 43
- Citations by year
- 2026: 2 · 2025: 11 · 2024: 14 · 2023: 11 · 2022: 17 · 2021: 16 · 2020: 33 · 2019: 8 · 2018: 13 · 2017: 1
- FWCI
- 2.91
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- Journal of Medical Internet Research (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Funders
- McMaster University
- Ontario Ministry of Health and Long-Term Care
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Keywords
- online intervention, informal caregivers, chronic disease, caregiver mental health, depressive symptoms, anxiety, digital health interventions, caregiver knowledge, community-dwelling adults, caregiver support programs, anger-hostility, negative mood, caregiver burden, caregiver self-efficacy, caregiver support
- MeSH terms
- Adult, Mental Disorders, Chronic Disease, Humans, Mental Health, Quality of Life, Residence Characteristics, Caregivers, Internet
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review