Cited by 237Grief, Bereavement, and Mental HealthPalliative and Oncologic CareFamily Support in Illness

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Parental Grief After Losing a Child to Cancer: Impact of Professional and Social Support on Long-Term Outcomes

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Kreicbergs, Ulrika C., Lannen, Patrizia, Onelov, Erik, Wolfe, Joanne·2007·Journal of Clinical Oncology

DOI 10.1200/jco.2006.10.0743

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Abstract

Purpose: It is still uncertain whether or not parents can ever come to terms with the loss of a child and whether professional or social support facilitate the long-term grief process. Methods: A Swedish population-based study, which sent an anonymous, mail-in questionnaire to parents who had lost a child to a malignancy 4 to 9 years earlier, gained the participation of 449 (80%) of 561 parents. Parents were asked whether, and to what extent, they had worked through their grief. Questions were also asked regarding those who provided parents with support. We examined candidate factors to determine their associations with greater likelihood of working through parental grief. Results: Overall, most parents (74%) stated that they had worked through their grief “a lot” or “completely” at the time of the follow-up. Parents who had shared their problems with others during the child's illness (fathers: relative risk [RR], 3.0; 95% CI, 1.8 to 5.0; mothers: RR 1.9; 95% CI, 1.2 to 2.8) and who had access to psychological support during the last month of their child's life (fathers: RR 1.4; 95% CI, 1.0 to 1.8; mothers: RR 1.3; 95% CI, 1.1 to 1.6) were more likely to have worked through their grief. In cases where health care staff offered parents counseling during the child's last month, the parents were more likely to have worked through their grief (fathers: RR 1.5; 95% CI, 1.2 to 1.8; mothers; RR 1.2; 95% CI, 1.1 to 1.4). Conclusion: Most parents eventually work through the grief associated with losing a child to cancer. In the long term, sharing the emotional burden with others facilitates the grieving process.

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Loss, sadness and depression
Bowlby, J. (1980) · Medical Entomology and Zoology · Cited by 1,303
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Bereavement: Reactions, Consequences, and Care.
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Bereavement and Health: The Psychological and Physical Consequences of Partner Loss.
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Authors: Kreicbergs, U. C., Lannen, P., Onelov, E., & Wolfe, J.
Affiliations: University of Bern (CH)
From the Phyllis F. Cantor Center; Department of Pediatric Oncology; the Center for Outcomes and Policy Research, Dana Farber Cancer Institute; Department of Medicine, Children's Hospital, Boston, MA; Department of Women and Child's Health; Division of Clinical Cancer Epidemiology, Karolinska Institutet, Stockholm, Sweden; and the Department of Psychology, Universität Bern, Berne, Switzerland
ORCID: Kreicbergs, Ulrika C.
Wolfe, Joanne
Venue: Journal of Clinical Oncology
Publisher: American Society of Clinical Oncology (ASCO)
Published: 2007-08-01
Volume: 25
Issue: 22
Pages: 3307-3312
ISSN: 0732-183X (ISSN-L)
1527-7755
DOI: 10.1200/jco.2006.10.0743
OpenAlex: W2110136777
Cited by: 237
References: 30
Citations by year: 2026: 6 · 2025: 10 · 2024: 10 · 2023: 11 · 2022: 13 · 2021: 20 · 2020: 24 · 2019: 15 · 2018: 14 · 2017: 11 · 2016: 10 · 2015: 23 · 2014: 12 · 2013: 11 · 2012: 9
FWCI: 8.36
Type: journal article
Language: en
Open access: bronze
doi.org
Locations: Journal of Clinical Oncology (publishedVersion)
PubMed (publishedVersion)
Funders: Charles H. Hood Foundation
Svenska Sällskapet för Medicinsk Forskning
National Cancer Institute (K07CA096746)
Topics: Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
Keywords: parental grief, child cancer, bereavement, grief processing, social support, professional support, psychological support, parents, long-term outcomes
MeSH terms: Adolescent, Adult, Attitude to Death, Child, Female, Grief, Humans, Male, Neoplasms, Parent-Child Relations, Parents, Professional-Family Relations, Surveys and Questionnaires, Registries, Regression Analysis, Social Support, Sweden, Chi-Square Distribution

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Parental Grief After Losing a Child to Cancer: Impact of Professional and Social Support on Long-Term Outcomes

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