Cited by 225Chronic Disease Management StrategiesHealth Policy Implementation ScienceHealth, psychology, and well-being

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Understanding the Context of Health for Persons With Multiple Chronic Conditions: Moving From What Is the Matter to What Matters

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Bayliss, E. A., Bonds, D. E., Boyd, C. M., Davis, M. M., Finke, B., Fox, M. H., Glasgow, R. E., Goodman, R. A., Heurtin-Roberts, S., Lachenmayr, S., Lind, C., Madigan, E. A., Meyers, D. S., Mintz, S., Nilsen, W. J., Okun, S., Ruiz, S., Salive, M. E., Stange, K. C.·2014·The Annals of Family Medicine

DOI 10.1370/afm.1643PMC PMC4018375

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Abstract

PURPOSE: An isolated focus on 1 disease at a time is insufficient to generate the scientific evidence needed to improve the health of persons living with more than 1 chronic condition. This article explores how to bring context into research efforts to improve the health of persons living with multiple chronic conditions (MCC). METHODS: Forty-five experts, including persons with MCC, family and friend caregivers, researchers, policy makers, funders, and clinicians met to critically consider 4 aspects of incorporating context into research on MCC: key contextual factors, needed research, essential research methods for understanding important contextual factors, and necessary partnerships for catalyzing collaborative action in conducting and applying research. RESULTS: Key contextual factors involve complementary perspectives across multiple levels: public policy, community, health care systems, family, and person, as well as the cellular and molecular levels where most research currently is focused. Needed research involves moving from a disease focus toward a person-driven, goal-directed research agenda. Relevant research methods are participatory, flexible, multilevel, quantitative and qualitative, conducive to longitudinal dynamic measurement from diverse data sources, sufficiently detailed to consider what works for whom in which situation, and generative of ongoing communities of learning, living and practice. Important partnerships for collaborative action include cooperation among members of the research enterprise, health care providers, community-based support, persons with MCC and their family and friend caregivers, policy makers, and payers, including government, public health, philanthropic organizations, and the business community. CONCLUSION: Consistent attention to contextual factors is needed to enhance health research for persons with MCC. Rigorous, integrated, participatory, multimethod approaches to generate new knowledge and diverse partnerships can be used to increase the relevance of research to make health care more sustainable, safe, equitable and effective, to reduce suffering, and to improve quality of life.

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Authors: Bayliss, E. A., Bonds, D. E., Boyd, C. M., Davis, M. M., Finke, B., Fox, M. H., Glasgow, R. E., Goodman, R. A., Heurtin-Roberts, S., Lachenmayr, S., Lind, C., Madigan, E. A., Meyers, D. S., Mintz, S., Nilsen, W. J., Okun, S., Ruiz, S., Salive, M. E., & Stange, K. C.
Affiliations: Centers for Disease Control and Prevention (US)
ORCID: Bayliss, E. A.
Boyd, C. M.
Davis, M. M.
Glasgow, R. E.
Goodman, R. A.
Madigan, E. A.
Meyers, D. S.
Okun, S.
Salive, M. E.
Stange, K. C.
Venue: The Annals of Family Medicine
Publisher: Annals of Family Medicine
Published: 2014-05-01
Volume: 12
Issue: 3
Pages: 260-269
ISSN: 1544-1709 (ISSN-L)
1544-1717
DOI: 10.1370/afm.1643
PMC: PMC4018375
OpenAlex: W2149582914
Cited by: 225
References: 106
Citations by year: 2026: 6 · 2025: 6 · 2024: 6 · 2023: 15 · 2022: 16 · 2021: 25 · 2020: 64 · 2019: 17 · 2018: 11 · 2017: 17 · 2016: 13 · 2015: 15 · 2014: 14
FWCI: 14.86
Type: journal article
Language: en
Open access: diamond
doi.org
Locations: The Annals of Family Medicine (publishedVersion)
PubMed Central (publishedVersion)
PubMed (publishedVersion)
Funders: American Cancer Society
Centers for Disease Control and Prevention
Agency for Healthcare Research and Quality
Topics: Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Health Sciences › Health Professions › General Health Professions › Health, psychology, and well-being
Keywords: multimorbidity, research collaboration, participatory research, research agenda, health care system, health policy, learning communities, research relevance, quality of life
MeSH terms: Chronic Disease, Cooperative Behavior, Health Services Research, Humans, Research, Comorbidity, Biomedical Research

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Understanding the Context of Health for Persons With Multiple Chronic Conditions: Moving From What Is the Matter to What Matters

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