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Cited by 120Adolescent and Pediatric HealthcareAutism Spectrum Disorder ResearchChild and Adolescent Health

The DOI matches its Crossref record; 40 of the 40 references it cites were found in a registry or an index.

Disparities in Transition Planning for Youth With Autism Spectrum Disorder

Cheak-Zamora, Nancy C., Yang, Xuejing, Farmer, Janet E., Clark, Mary·2013·Pediatrics
DOI 10.1542/peds.2012-1572
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Abstract

OBJECTIVE: Little is known about accessibility to health care transition (HCT) services for youth with autism spectrum disorder (ASD). This study expands our understanding by examining the receipt of HCT services in youth with ASD compared with youth with other special health care needs (OSHCN). METHODS: We used the 2005–2006 National Survey of Children with Special Health Care Needs to examine receipt of HCT services for youth (aged 12–17 years) with ASD and youth with OSHCN. Logistic regression analyses explored whether individual, family, or health system factors were associated with receipt of HCT services for youth with ASD. RESULTS: Whereas half of youth with OSHCN received HCT services, less than a quarter of youth with ASD did. Only 14% of youth with ASD had a discussion with their pediatrician about transitioning to an adult provider, less than a quarter had a discussion about health insurance retention, and just under half discussed adult health care needs or were encouraged to take on appropriate responsibility. Logistic regression analyses indicated that having a developmental disability or multiple health conditions in addition to ASD and quality of health care were strong predictors of HCT, whereas demographic and family variables accounted for little variance. CONCLUSIONS: Youth with ASD experience disparities in access to HCT services. Youth with comorbid conditions are at greatest risk for poor access to HCT services and increased quality of care has a positive effect. Research is needed to understand barriers to care and develop policy and practice guidelines tailored for youth with ASD.

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Crossref · 10.1542/peds.2012-1572

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Metadata

Authors
Cheak-Zamora, N. C., Yang, X., Farmer, J. E., & Clark, M.
Affiliations
  • Departments of Health Sciences and
  • Public Health Program, and
  • University of Missouri (US)
Corresponding author
Clark, Mary
ORCID
Farmer, Janet E.
Venue
Pediatrics
Publisher
American Academy of Pediatrics (AAP)
Published
2013-03-01
Volume
131
Issue
3
Pages
447-454
ISSN
  • 0031-4005 (ISSN-L)
  • 1098-4275
DOI
10.1542/peds.2012-1572
OpenAlex
W2167298162
Cited by
120
References
40
Citations by year
2026: 4 · 2025: 6 · 2024: 6 · 2023: 7 · 2022: 13 · 2021: 14 · 2020: 24 · 2019: 6 · 2018: 10 · 2017: 8 · 2016: 6 · 2015: 7 · 2014: 6 · 2013: 3
FWCI
16.80
Type
journal article
Language
en
Open access
closed
Locations
  • PEDIATRICS (publishedVersion)
  • PubMed (publishedVersion)
Funders
U.S. Public Health Service (H6MMC11059)
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
Keywords
autism spectrum disorder, care transitions, transition planning, youth with special health care needs, health care disparities, health care access, transition to adult care, comorbidities, developmental disabilities, quality of care, National Survey of Children with Special Health Care Needs
MeSH terms
Adolescent, Child, Child Development Disorders, Pervasive, Continuity of Patient Care, Cross-Sectional Studies, Female, Health Services Accessibility, Humans, Male, Health Care Surveys, Needs Assessment, Healthcare Disparities

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