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Cited by 261Adolescent and Pediatric HealthcareChild and Adolescent HealthHospital Admissions and Outcomes

The DOI matches its Crossref record; 9 of the 9 references it cites were found in a registry or an index.

Current Status of Transition Preparation Among Youth With Special Needs in the United States

McManus, Margaret A., Pollack, Lauren R., Cooley, W. Carl, McAllister, Jeanne W., Lotstein, Debra, Strickland, Bonnie, Mann, Marie Y.·2013·Pediatrics
DOI 10.1542/peds.2012-3050
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Abstract

Objective To examine current US performance on transition from pediatric to adult health care and discuss strategies for improvement. Methods The 2009-2010 National Survey of Children with Special Health Care Needs is a nationally representative sample with 17 114 parent respondents who have youth with special health care needs (YSHCN) ages 12 and 18. They are asked about transition to an adult provider, changing health care needs, increasing responsibility for health care needs, and maintaining insurance coverage. We analyzed the association of selected characteristics with successful transition preparation. Results Overall, 40% of YSHCN meet the national transition core outcome. Several factors are associated with transition preparation, including female gender; younger age; white race; non-Hispanic ethnicity; income ≥400% of poverty; little or no impact of condition on activities; having a condition other than an emotional, behavioral, or developmental condition; having a medical home; and being privately insured. Conclusions Most YSHCN are not receiving needed transition preparation. Although most providers are encouraging YSHCN to assume responsibility for their own health, far fewer are discussing transfer to an adult provider and insurance continuity. Although changes in sample design limit trend analysis, there have been no discernible improvements since this transition outcome was measured in the 2005-2006 National Survey of Children with Special Health Care Needs. T…

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  1. National Committee on Quality Assurance, 2011, Standards for Patient-Centered Medical Home (PCMH)

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Metadata

Authors
McManus, M. A., Pollack, L. R., Cooley, W. C., McAllister, J. W., Lotstein, D., Strickland, B., & Mann, M. Y.
Affiliations
  • The National Alliance to Advance Adolescent Health, Washington, DC;
  • The National Health Care Transition Center, Concord, New Hampshire;
  • University of California, Los Angeles (US)
  • Health Resources and Services Administration (US)
ORCID
Venue
Pediatrics
Publisher
American Academy of Pediatrics (AAP)
Published
2013-06-01
Volume
131
Issue
6
Pages
1090-1097
ISSN
  • 0031-4005 (ISSN-L)
  • 1098-4275
DOI
10.1542/peds.2012-3050
OpenAlex
W1996390031
Cited by
261
References
9
Citations by year
2026: 7 · 2025: 16 · 2024: 13 · 2023: 11 · 2022: 12 · 2021: 16 · 2020: 22 · 2019: 23 · 2018: 41 · 2017: 23 · 2016: 22 · 2015: 26 · 2014: 25 · 2013: 2
FWCI
57.39
Type
journal article
Language
en
Open access
closed
Locations
  • PEDIATRICS (publishedVersion)
  • PubMed (publishedVersion)
Funders
  • U.S. Public Health Service (U39MC18176)
  • Maternal and Child Health Bureau
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
  • Health Sciences › Nursing › Leadership and Management › Hospital Admissions and Outcomes
Keywords
transition to adult care, youth with special health care needs, transition preparation, patient-centered medical home, health care needs, National Survey of Children with Special Health Care Needs, health disparities
MeSH terms
Adolescent, Adult, Child, Child Health Services, Continuity of Patient Care, Female, Humans, Male, Socioeconomic Factors, United States, Health Care Surveys, Children with Disabilities, Disabled Children, Needs Assessment, Transition to Adult Care

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