Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions
Abstract
Few youth with autism spectrum disorder (ASD) nationally report receiving services to help them transition from the pediatric health care system to the adult health care system. For example, only one-fifth (21.1%) of youth with ASD receive any transition planning services. To better understand why the transition from pediatric to adult health care is so difficult, we interviewed pediatric health care providers with extensive experience serving youth with ASD. We gathered information about the strategies and interventions they use to transition their patients with ASD to an adult provider. Five interventions or strategies are currently being used. These include providing families with written medical summaries to give to adult providers, compiling lists of available adult providers or community resources, coordinating care and communication between individual pediatric and adult providers, making transition-specific appointments, and using checklists to track transition progress. Other interventions or strategies were identified as needed but not currently in practice, and these focused on education and training. For example, informational workshops were suggested to train families and youth about transition. Training adult providers and medical students was also seen as important. Several respondents additionally identified the need for a transition center where all services could be coordinated in one place. With large numbers of youth with ASD becoming young adults, it seems that pediatric practices might want to consider some of the activities described here. Some of these activities, such as family educational seminars and written medical summaries, are likely relatively easy for a practice to implement.
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- Authors
- Kuhlthau, K. A., Warfield, M. E., Hurson, J., Delahaye, J., & Crossman, M. K.
- Affiliations
- Harvard University (US)
- Brandeis University (US)
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2014-02-04
- Volume
- 19
- Issue
- 3
- Pages
- 262-271
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2113352282
- Cited by
- 64
- References
- 27
- Citations by year
- 2026: 3 · 2025: 3 · 2024: 2 · 2023: 1 · 2022: 8 · 2021: 8 · 2020: 8 · 2019: 7 · 2018: 10 · 2017: 6 · 2016: 4 · 2015: 2 · 2014: 2
- FWCI
- 10.43
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Funders
- U.S. Public Health Service (R40 MC 19925)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Keywords
- autism spectrum disorder, transition to adult care, pediatric providers, transition planning, provider perspectives, care coordination, provider training, family education
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Attitude of Health Personnel, Humans, Interprofessional Relations, Interviews as Topic, Pediatrics, Young Adult, Transition to Adult Care
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