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Cited by 50Adolescent and Pediatric HealthcareAutism Spectrum Disorder ResearchDown syndrome and intellectual disability research

The Transition to the Adult Health Care System Among Youths With Autism Spectrum Disorder

Open access
Nathenson, Robert A., Zablotsky, Benjamin·2017·Psychiatric Services
DOI 10.1176/appi.ps.201600239PMC PMC5567738
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Abstract

OBJECTIVE: The study examined how health care utilization patterns among youths with autism spectrum disorder (ASD) change as they transition into the adult health care system. METHODS: Data came from the Clinformatics Data Mart Database, a nationally diverse, clinically rich, private insurance claims database. The analytic sample consisted of youths ages 16 to 23 who were diagnosed as having ASD (N=16,338). Cross-sectional multivariate linear regressions determined whether service usage in home, office or outpatient, inpatient, and emergency department (ED) settings differed by age. RESULTS: The proportion of youths with ASD who received services declined with age in each setting except the ED. A similar reduction existed in number of visits to office or outpatient settings and inpatient settings, while home and ED visits remained stable. Service utilization declined faster among youths with co-occurring intellectual disability. CONCLUSIONS: There is a notable decline in service utilization across multiple settings as youths with ASD transition from pediatric to adult health care.

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  • Scheduled outpatient and inpatient visits decline with age for autistic youth, especially for those with a co-occurring intellectual disability, and the use of emergency services increases.

    “This may partly explain why scheduled outpatient and inpatient visits decline with age for autistic youth, especially for those with a co-occurring ID 75 and why the use of emergency services increases.”

    From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [75]

    The Results report that outpatient and inpatient visits decline with age, with a faster decline in some measures for youths with co-occurring intellectual disability. But the Results say emergency-department use did not change with age, and the Discussion describes it as steady—not increasing. (LLM, conf=0.90)

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Authors
Nathenson, R. A., & Zablotsky, B.
Affiliations
National Center for Health Statistics (US)
ORCID
Venue
Psychiatric Services
Publisher
American Psychiatric Association Publishing
Published
2017-07-01
Volume
68
Issue
7
Pages
735-738
ISSN
  • 0022-1597 (ISSN-L)
  • 1075-2730
  • 1557-9700
DOI
10.1176/appi.ps.201600239
PMC
PMC5567738
OpenAlex
W2604325617
Cited by
50
References
15
Citations by year
2026: 2 · 2025: 1 · 2024: 5 · 2023: 7 · 2022: 7 · 2021: 8 · 2020: 10 · 2019: 6 · 2018: 3 · 2017: 1
FWCI
10.75
Type
journal article
Language
en
Open access
Locations
  • Psychiatric Services (publishedVersion)
  • PubMed (publishedVersion)
  • Europe PMC (PubMed Central) (acceptedVersion)
  • PubMed Central (acceptedVersion)
Funders
National Institutes of Health (CC999999)
Topics
  • Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
Keywords
autism spectrum disorder, transition to adult care, health care utilization, adolescents and young adults, emergency department visits, inpatient visits, outpatient visits, intellectual disability
MeSH terms
Autism Spectrum Disorder, Adolescent, Adult, Ambulatory Care, Cross-Sectional Studies, Emergency Service, Hospital, Female, Humans, Male, Patient Acceptance of Health Care, Young Adult, Transition to Adult Care

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