The Design and Implementation of the 2016 National Survey of Children’s Health
Open accessAbstract
Introduction Since 2001, the Health Resources and Services Administration's Maternal and Child Health Bureau (HRSA MCHB) has funded and directed the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN), unique sources of national and state-level data on child health and health care. Between 2012 and 2015, HRSA MCHB redesigned the surveys, combining content into a single survey, and shifting from a periodic interviewer-assisted telephone survey to an annual self-administered web/paper-based survey utilizing an address-based sampling frame. Methods The U.S. Census Bureau fielded the redesigned NSCH using a random sample of addresses drawn from the Census Master Address File, supplemented with a unique administrative flag to identify households most likely to include children. Data were collected June 2016-February 2017 using a multi-mode design, encouraging web-based responses while allowing for paper mail-in responses. A parent/caregiver knowledgeable about the child's health completed an age-appropriate questionnaire. Experiments on incentives, branding, and contact strategies were conducted. Results Data were released in September 2017. The final sample size was 50,212 children; the overall weighted response rate was 40.7%. Comparison of 2016 estimates to those from previous survey iterations are not appropriate due to sampling and mode changes. Discussion The NSCH remains an invaluable data source for key measures of child health and attendant health care system, family, and community factors. The redesigned survey extended the utility of this resource while seeking a balance between previous strengths and innovations now possible.
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Both surveys ran every four years until 2016, when they merged into one annual survey.
“These surveys were each conducted every four years until 2016, when the surveys were combined into a single, annual survey”
From Over a Century of Leadership for Maternal and Child Health in the United States: An Updated History of the Maternal and Child Health Bureau (2025) · cites this paper as Ghandour et al., 2018
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Cites
Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
White, P. H., Cooley, W. C., & TRANSITIONS CLINICAL REPORT AUTHORING GROUP, A. A. O. P. (2018) · Pediatrics · doi:10.1542/peds.2018-2587 · Cited by 1,417 · see citing works
Visser, S. N., Danielson, M. L., Bitsko, R. H., Holbrook, J. R., Kogan, M. D., Ghandour, R. M., Perou, R., & Blumberg, S. J. (2014) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2013.09.001 · Cited by 1,263 · see citing works
Self-citationSupporting the health care transition from adolescence to adulthood in the medical home
Cooley, W. C., Sagerman, P. J., & American Academy of Pediatrics, A. A. O. F. P. (2011) · PEDIATRICS · doi:10.1542/peds.2011-0969 · Cited by 1,119 · see citing works
Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder Among Children in the US, 2007
Kogan, M. D., Blumberg, S. J., Schieve, L. A., Boyle, C. A., Perrin, J. M., Ghandour, R. M., Singh, G. K., Strickland, B. B., Trevathan, E., & van Dyck, P. C. (2009) · Pediatrics · doi:10.1542/peds.2009-1522 · Cited by 892 · see citing works
Self-citationBethell, C. D., Newacheck, P., Hawes, E., & Halfon, N. (2014) · Health Affairs · doi:10.1377/hlthaff.2014.0914 · Cited by 669 · see citing works
Self-citationDesign and Operation of the National Survey of Children's Health, 2003.
Bramlett, M. D., Blumberg, S. J., Zablotsky, B., George, J. M., Ormson, A. E., Frasier, A. M., Vstecka, D. M., Williams, K. L., Skalland, B. J., Morrison, H. M., et al. (2005) · PubMed · Cited by 491 · see citing works
Self-citationExplaining Rising Nonresponse Rates in Cross-Sectional Surveys
Brick, J. M., & Williams, D. (2012) · The Annals of the American Academy of Political and Social Science · doi:10.1177/0002716212456834 · Cited by 344 · see citing works
Design and operation of the National Survey of Children with Special Health Care Needs, 2001.
Bramlett, M. D., Blumberg, S. J., Ormson, A. E., George, J. M., Williams, K. L., Frasier, A. M., Skalland, B. J., Santos, K. B., Vsetecka, D. M., Morrison, H. M., et al. (2003) · PubMed · Cited by 305 · see citing works
Self-citationBlumberg, S. J., Luke, J. V., Ganesh, N., Davern, M. E., Boudreaux, M. H., & Soderberg, K. (2011) · PubMed · Cited by 153 · see citing works
Self-citationUnderinsurance among Children in the United States
Kogan, M. D., Newacheck, P. W., Blumberg, S. J., Ghandour, R. M., Singh, G. K., Strickland, B. B., & van Dyck, P. C. (2010) · New England Journal of Medicine · doi:10.1056/nejmsa0909994 · Cited by 120 · see citing works
Self-citationBlumberg, S. J. (2021) · doi:10.15620/cdc:100855 · Cited by 112 · see citing works
Self-citationThe National Survey of Children's Health: A New Data Resource
van Dyck, P., Kogan, M. D., Heppel, D., Blumberg, S. J., Cynamon, M. L., & Newacheck, P. W. (2004) · Maternal and Child Health Journal · doi:10.1023/b:maci.0000037693.09847.f6 · Cited by 75 · see citing works
Self-citationLavrakas, P. J., Steeh, C., Blumberg, S. J., et al. (2010) · Cited by 54 · see citing works
Self-citationData Resource Center for Child and Adolescent Health
(2012) · Choice Reviews Online · doi:10.5860/choice.50-1494 · Cited by 45 · see citing works
A Systematic Review of the Medical Home for Children Without Special Health Care Needs
Hadland, S. E., & Long, W. E. (2013) · Maternal and Child Health Journal · doi:10.1007/s10995-013-1315-9 · Cited by 34 · see citing works
Siegel, B., Tenenbaum, A., Jamanka, A., Barnes, L. L., Hubbard, C., & ZUCKERMAN, B. S. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002 · Cited by 33 · see citing works
State and Local Area Integrated Telephone Survey (SLAITS)
Unav (2009) · Harvard Dataverse · doi:10.7910/dvn/b69ixs · Cited by 4 · see citing works
Flagged first, then by citations
Research works printed but not linked: 2
- Bramlett MD, (2017). Design and operation of the National Survey of Children’s Health, 2011–2012. Vital and Health Statistics 1 (59), 1– 256. 28796596
- Carroll SH, & Zuckerberg A (2013). Do Names Matter? Experiments Comparing Different Branding and Levels of Personally Identifiable Information in a Mail Questionnaire. Proceedings of the 2013 Federal Committee on Statistical Methodology (FCSM) Research Conference, Editor.
Cited by
Sorted by citations
Mental Health Surveillance Among Children — United States, 2013–2019
Bitsko, R. H., Claussen, A. H., Lichstein, J., Black, L. I., Jones, S. E., Danielson, M. L., Hoenig, J. M., Davis Jack, S. P., Brody, D. J., Gyawali, S., et al. (2022) · MMWR Supplements · doi:10.15585/mmwr.su7102a1 · Cited by 1,723 · see citing works
Self-citationPrevalence and treatment of depression, anxiety, and conduct problems in US children
Ghandour, R. M., Sherman, L. J., Vladutiu, C. J., Ali, M. M., Lynch, S. E., Bitsko, R. H., & Blumberg, S. J. (2019) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2018.09.021 · Cited by 1,135 · see citing works
Prevalence and variation of developmental screening and surveillance in early childhood
Hirai, A. H., Kogan, M. D., Kandasamy, V., Reuland, C., & Bethell, C. (2018) · JAMA Pediatrics · doi:10.1001/jamapediatrics.2018.1524 · Cited by 195 · see citing works
Self-citationA National Mental Health Profile of Parents of Children with Medical Complexity
Bayer, N. D., Wang, H., Yu, J. A., Kuo, D. Z., Halterman, J. S., & Li, Y. (2021) · PEDIATRICS · doi:10.1542/peds.2020-023358 · Cited by 103 · see citing works
Khanijahani, A., & Sualp, K. (2022) · Community Mental Health Journal · doi:10.1007/s10597-021-00808-7 · Cited by 31 · see citing works
Medication Use in Youth With Autism and Attention-Deficit/Hyperactivity Disorder
Rast, J. E., Anderson, K. A., Roux, A. M., & Shattuck, P. T. (2021) · Academic Pediatrics · doi:10.1016/j.acap.2020.05.015 · Cited by 12 · see citing works
Warren, M. D., & Kavanagh, L. D. (2025) · Maternal and Child Health Journal · doi:10.1007/s10995-023-03629-0 · Cited by 9 · see citing works
“These surveys were each conducted every four years until 2016, when the surveys were combined into a single, annual survey (Ghandour et al., 2018).”
(Zachary) Lu, Z. (2025) · European Child & Adolescent Psychiatry · doi:10.1007/s00787-025-02777-8 · Cited by 3 · see citing works
Chowdhury, S. K., Marshall, J., Boone, B., & Kirby, R. S. (2026) · Journal of Ambulatory Care Management · doi:10.1097/jac.0000000000000543 · Cited by 1 · see citing works
Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children
Graaf, G., Gigli, K., Hughes, P., & Thomas, K. C. (2026) · Child and Adolescent Social Work Journal · doi:10.1007/s10560-026-01101-w
- Authors
- Ghandour, R. M., Jones, J. R., Lebrun-Harris, L. A., Minnaert, J., Blumberg, S. J., Fields, J., Bethell, C., & Kogan, M. D.
- Affiliations
- United States Department of Health and Human Services (US)
- Centers for Disease Control and Prevention (US)
- United States Census Bureau (US)
- Johns Hopkins University (US)
- Corresponding author
- Ghandour, Reem M.
- Venue
- Maternal and Child Health Journal
- Published
- 2018-05-09
- Volume
- 22
- Issue
- 8
- Pages
- 1093-1102
- ISSN
- 1092-7875 (ISSN-L)
- 1573-6628
- PMC
- PMC6372340
- OpenAlex
- W2800121673
- Cited by
- 253
- References
- 17
- Citations by year
- 2026: 32 · 2025: 28 · 2024: 26 · 2023: 43 · 2022: 31 · 2021: 49 · 2020: 25 · 2019: 10 · 2018: 8 · 2016: 1
- FWCI
- 52.33
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Maternal and Child Health Journal (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institutes of Health (CC999999)
- Health Resources and Services Administration
- Maternal and Child Health Bureau
- Topics
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Health Sciences › Health Professions › General Health Professions › Health and Medical Studies
- Physical Sciences › Mathematics › Statistics and Probability › Survey Sampling and Estimation Techniques
- Keywords
- National Survey of Children's Health, survey redesign, child health, children with special health care needs, address-based sampling, online surveys, response rate, survey incentives, contact strategies, health care utilization, family and community factors
- MeSH terms
- Child Health, Adolescent, Child, Child Health Services, Child, Preschool, Family Characteristics, Female, Health Surveys, Humans, Male, Research Design, Disabled Children, Children with Disabilities
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