Ethical justification for conducting public health surveillance without patient consent

Lee, Lisa M.; Heilig, Charles M.; White, Angela

doi:10.2105/ajph.2011.300297

Cited by 109Ethics and bioethics in healthcarePublic Health Policies and EducationEthics in Clinical Research

Ethical justification for conducting public health surveillance without patient consent

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Lee, Lisa M., Heilig, Charles M., White, Angela·2012·American Journal of Public Health

DOI 10.2105/ajph.2011.300297PMC PMC3490562

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Abstract

Public health surveillance by necessity occurs without explicit patient consent. There is strong legal and scientific support for maintaining name-based reporting of infectious diseases and other types of public health surveillance. We present conditions under which surveillance without explicit patient consent is ethically justifiable using principles of contemporary clinical and public health ethics. Overriding individual autonomy must be justified in terms of the obligation of public health to improve population health, reduce inequities, attend to the health of vulnerable and systematically disadvantaged persons, and prevent harm. In addition, data elements collected without consent must represent the minimal necessary interference, lead to effective public health action, and be maintained securely.

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Additional file 1 of Prioritization of ethical concerns regarding HIV molecular epidemiology by public health practitioners and researchers
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Authors: Lee, L. M., Heilig, C. M., & White, A.
Affiliations: Western University (CA)
ORCID: Lee, Lisa M.
Heilig, Charles M.
Venue: American Journal of Public Health
Publisher: American Public Health Association
Published: 2012-01
Volume: 102
Issue: 1
Pages: 38-44
ISSN: 0090-0036 (ISSN-L)
1541-0048
DOI: 10.2105/ajph.2011.300297
PMC: PMC3490562
OpenAlex: W2021917448
Cited by: 108
References: 53
Citations by year: 2026: 10 · 2025: 4 · 2024: 7 · 2023: 11 · 2022: 9 · 2021: 8 · 2020: 13 · 2019: 9 · 2018: 8 · 2017: 6 · 2016: 5 · 2015: 4 · 2014: 5 · 2013: 6 · 2012: 3
FWCI: 4.40
Type: journal article
Language: en
Open access: green
www.ncbi.nlm.nih.gov
Locations: American Journal of Public Health (publishedVersion)
PubMed Central (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
Health Sciences › Health Professions › General Health Professions › Public Health Policies and Education
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
Keywords: disease surveillance, patient consent, moral justification, individual autonomy, infectious disease surveillance, population health, health disparities, vulnerable populations, harm prevention, data security
MeSH terms: Bioethics, Humans, Informed Consent, Population Surveillance, Public Health, Risk, Social Responsibility, United States

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Ethical justification for conducting public health surveillance without patient consent

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