Cited by 502Mental Health and Patient InvolvementHealth Policy Implementation ScienceCommunity Health and Development

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Evaluating patient and stakeholder engagement in research: moving from theory to practice

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Esmail, Laura, Moore, Emily, Rein, Alison·2015·Journal of Comparative Effectiveness Research

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Abstract

Despite the growing demand for research that engages stakeholders, there is limited evidence in the literature to demonstrate its value – or return on investment. This gap indicates a general lack of evaluation of engagement activities. To adequately inform engagement activities, we need to further investigate the dividends of engaged research, and how to evaluate these effects. This paper synthesizes the literature on hypothesized impacts of engagement, shares what has been evaluated and identifies steps needed to reduce the gap between engagement's promises and the underlying evidence supporting its practice. This assessment provides explicit guidance for better alignment of engagement's promised benefits with evaluation efforts and identifies specific areas for development of evaluative measures and better reporting processes.

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Authors: Esmail, L., Moore, E., & Rein, A.
Affiliations: AcademyHealth (US)
ORCID: Esmail, Laura
Moore, Emily
Venue: Journal of Comparative Effectiveness Research
Publisher: Becaris Publishing Limited
Published: 2015-03
Volume: 4
Issue: 2
Pages: 133-145
ISSN: 2042-6305 (ISSN-L)
2042-6313
DOI: 10.2217/cer.14.79
OpenAlex: W2096611776
Cited by: 502
References: 68
Citations by year: 2026: 32 · 2025: 43 · 2024: 65 · 2023: 59 · 2022: 58 · 2021: 57 · 2020: 52 · 2019: 41 · 2018: 45 · 2017: 31 · 2016: 14 · 2015: 3
FWCI: 5.62
Type: journal article
Language: en
Open access: hybrid
doi.org
Licence: cc-by-nc-nd
Locations: Journal of Comparative Effectiveness Research (publishedVersion, cc-by-nc-nd)
PubMed (publishedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Keywords: patient engagement, stakeholder engagement, engagement outcomes, return on investment
MeSH terms: Humans, Patient Participation, Professional-Patient Relations, Comparative Effectiveness Research, Patient Outcome Assessment

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Evaluating patient and stakeholder engagement in research: moving from theory to practice

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