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The Problem Areas in Diabetes Scale: An evaluation of its clinical utility
Abstract
OBJECTIVE: To evaluate the reliability and concurrent and discriminant validity of the Problem Areas in Diabetes (PAID) scale, a new measure of emotional functioning in diabetes. RESEARCH DESIGN AND METHODS: A battery of questionnaires, including the PAID, was completed by 256 volunteer diabetic outpatients. In our analyses, we examined the PAID's internal structure and compared mean IDDM and NIDDM treatment group scores in regression analyses to explore its discriminant validity. We also evaluated concurrent validity from the correlations between the PAID and diabetes-specific measures of coping and health attitudes and HbA1c. RESULTS: Principal component analyses identified a large emotional adjustment factor, supporting the use of the total score. Significant sizable correlations were found between the PAID and a range of selected health attitudinal measures. There were significant differences (with small-to-moderate effect sizes) in PAID scores between IDDM and NIDDM patients and between IDDM and NIDDM insulin- and tablet-treated subgroups; no differences were found between NIDDM insulin- and tablet-treated subgroups. CONCLUSIONS: The study findings provided support for the construct validity of the PAID, including evidence for discriminant validity from its ability to detect differences between IDDM and NIDDM treatment groups expected to differ in the emotional impact of life with diabetes. Future studies should explore the PAID's performance in nonspecialist treatment settings as well as its responsiveness to clinical change.
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“However, participants were experiencing severe diabetes distress (>40) (Welch et al., 1997).”
From An online acceptance, commitment, and self-compassion based treatment to decrease psychological distress in people with type 2 diabetes: A feasibility randomised-controlled trial (2023) · cites this paper as Welch et al., 1997
In the citing paper
“The original PAID Scale and the Swedish version of the scale (Swe-PAID-20), which will be used in this study, have been proven in terms of validity and reliability.25 32 33”
From Acceptance and commitment therapy (ACT) for adult type 1 diabetes management: Study protocol for a randomised controlled trial (2018) · cites this paper as [33]
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Chawla, A., Saha, C., & Marrero, D. G. (2009) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721709354607 · Cited by 22
“Since its development, the PAID has been used as a screening tool for depression, has been shown to be responsive to change, and has been shown to have high validity and reliability, even in varying patient populations.(6-9) Longitudinal PAID data have been obtained from several diabetes-related interventional studies.”
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“95) and validity of the questionnaire have been demonstrated (Welch et al., 1997).”
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“Scores ≥40 on the PAID are suggestive of distress related to diabetes.(25) Cronbach's alpha for the PAID in this sample was 0.”
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“Clinicians can use this tool to assess changes in a patient’s emotional adjustment to living with diabetes in general or can specifically evaluate the impact of self-care behaviors.(44) However, more research must be completed to identify a relationship between improved symptoms of emotional distress and diabetic outc…”
Methodvan Puffelen, A. L., Rijken, M., Heijmans, M., Nijpels, G., Rutten, G. E. H. M., & Schellevis, F. (2014) · BMC Health Services Research · doi:10.1186/1472-6963-14-144 · Cited by 21
“The PAID has a strong concurrent and discriminant validity [37], has been proven to be responsive to change [38] and has been validated for Dutch T2DM patients [36,37].”
BackgroundDiabetes Distress in Adolescents and Young Adults Living With Type 1 Diabetes
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“The problem areas in diabetes (PAID) questionnaire is a reliable and valid tool to determine diabetes specific emotional distress [12, 13, 18].”
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“Likewise the measures that are diabetes-specific, such as Problem Areas in Diabetes (PAID) (4), are not preference-based and so cannot be used directly to generate QALYs.”
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“The problem areas in diabetes scale (PAID) has been widely used in various countries and has good reliability and validity in measuring the emotional disorders of patients.([3,4,11,13,14]) In this study, a simplified version of the scale PAID-5 (consisting of items 3, 6, 12, 16, 19 of PAID) was used to conduct a quest…”
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“Diabetes-related distress: PAID [33] X X”
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“Similar to children and their caregivers, adolescents and their caregivers experienced reduced diabetes distress (PAID-T, P � 0 .”
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“Patients also completed the Problem Areas in Diabetes Questionnaire (PAID), 12 which measures diabetes-related distress, and the state version of the State-Trait Anxiety Inventory (STAI-State), 13 which assesses anxiety symptoms.”
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Depression and Anxiety in Older and Middle‐aged Adults With Diabetes
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“A total score of ≥40 was used as the threshold to indicate significant diabetes-related distress [23].”
MethodWhat characterises diabetes distress and its resolution? A documentary analysis
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“Included in case note analysis (n= 63) Excluded from case note analysis (n= 7) Single attenders (n= 22) Attended 2+ appointments (n= 41) DD (n= 24) DD and established psychological morbidity (n= 13) General distress (n= 4) Type 1 diabetesa 23 4 9 8 5 1 Type 2 diabetesa 31 2 8 14 6 3 Single attenders 22 N/A 22 12 3 7 P…”
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“N.B.: construction and psychometric validation of health beliefs, susceptibility, DLC, self-efficacy, and PAID scales were evaluated in the pilot study as mentioned earlier.”
BackgroundInfluentialon behalf of the Diacourse study group, van Puffelen, A. L., Kasteleyn, M. J., de Vries, L., Rijken, M., Heijmans, M., Nijpels, G., & Schellevis, F. (2020) · Journal of Diabetes & Metabolic Disorders · doi:10.1007/s40200-019-00479-y · Cited by 12
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“Construct validity of PAID had been investigated in American, Dutch and Swedish contexts [24-27].”
BackgroundDevelopment and pilot of a low-literacy diabetes education book using social marketing techniques
Kavin, M., Añel‐Tiangco, R. M., Mauger, D. T., & Gabbay, R. A. (2010) · Diabetes Therapy · doi:10.1007/s13300-010-0009-1 · Cited by 14
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“86) [19, 20], and the mental health score of the SF-12® Health Survey [21].”
BackgroundElliott, D., Lawton, J., Rankin, D., Emery, C., Campbell, M., Dixon, S., & Heller, S. R. (2012) · BMC Endocrine Disorders · doi:10.1186/1472-6823-12-28 · Cited by 14
“Emotional Well-being: is assessed using the Hospital Anxiety and Depression Scale (HADS; [15]), the diabetes-specific Problem Areas in Diabetes Scale (PAID [16]).”
MethodEvaluating the Psychometric Properties of the Arabic Version of the Diabetes Distress Scale
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“Participants then completed the Problem Areas in Diabetes (PAID) Scale to assess baseline levels of diabetes-specific distress [13,14] and the Confidence in Diabetes Scale (CIDS) to assess baseline levels of diabetes-specific self-efficacy [15].”
MethodKloos, C., Burghardt, K., Müller, U., Kramer, G., Muller, N., Wolf, G., & Kuniß, N. (2019) · Experimental and Clinical Endocrinology & Diabetes · doi:10.1055/a-0983-1559 · Cited by 14
“To screen for depression and evaluate diabetes-related stress the Well-Being 5 (5 questions, score 0–25, higher scores are associated with higher well-being) and PAID questionnaire (20 questions, score 0–100, higher scores are associated with higher distress) were used [12, 13].”
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Do diabetologists recognise self-management problems in their patients?
Keers, J. C., Links, T. P., Bouma, J., Gans, R. O. B., ter Maaten, J. C., Wolffenbuttel, B. H. R., Sluiter, W. J., & Sanderman, R. (2004) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2004.02.018 · Cited by 14
“Diabetes-related distress was measured using the Problem Areas in Diabetes scale (PAID) [13, 14 ].”
MethodElotla, S. F., Fouad, A., Mohamed, S. F., Joudeh, A. I., Mostafa, M., Hayek, S. E., Shah, J., & Ahmed, H. A. S. (2022) · Journal of Family and Community Medicine · doi:10.4103/jfcm.jfcm_238_22 · Cited by 13
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“One of the mostly recommended tools is the Problem Areas in Diabetes (PAID) scale [9].”
MacLeish, S. A., Hood, K. K., Polonsky, W. H., Wood, J., Bode, B. W., Forlenza, G. P., Laffel, L. M., Buckingham, B. A., Criego, A. B., Schoelwer, M. J., et al. (2024) · Diabetes Obesity and Metabolism · doi:10.1111/dom.15906 · Cited by 13
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“However, in clinical practice, most patients with diabetes feel the current therapeutic strategy to be a burden or distress, especially continuing diet and exercise therapy for a long period [4].”
BackgroundBrakenridge, C. J., Gardiner, P. A., Grigg, R., WINKLER, E. A. H., Fjeldsoe, B. S., Schaumberg, M. A., Owen, N. G., Eakin, E., Biddle, S., Moodie, M., et al. (2022) · BMC Public Health · doi:10.1186/s12889-022-13123-x · Cited by 14
“Managing diabetes The Problem Areas in Diabetes (PAID) [84] scale assesses perceptions of the intervention and its influence on subjective diabetes management.”
BackgroundCallan, J. A., Sereika, S. M., Cui, R., Tamres, L. K., Tarneja, M., Greene, B., Slyke, A. V., Wu, M., Lukac, G. R., & Dunbar‐Jacob, J. M. (2022) · The Science of Diabetes Self-Management and Care · doi:10.1177/26350106221133027 · Cited by 13
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A Conceptual Model for Quality of Life Among People with Type 2 Diabetes in the Philippines
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“betes mellitus and has been validated in a Singaporean population [25, 26].”
BackgroundAssessing Psychosocial Variables
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“Adjusting to diabetes has been associated with specific emotional distress that measures a wide range of feelings related to living with diabetes and its treatment, including guilt, anger, depressed mood, worry, and fear.(18) It is presumed that emotional distress, as represented by the presence of depression and/or p…”
BackgroundBruijnes, M., Kesteloo, M., & Brinkman, W. (2023) · Frontiers in Digital Health · doi:10.3389/fdgth.2023.1149374 · Cited by 12
Overland, J., Abousleiman, J., Chronopoulos, A., Leader, N. J., Molyneaux, L. M., & Gilfillan, C. P. (2014) · Diabetes Therapy · doi:10.1007/s13300-014-0092-9 · Cited by 12
“These included the Diabetes Treatment Satisfaction Questionnaire (DTSQ), status and change measures (used under license) [4, 5], the Confidence in Diabetes Self-Care (CIDS) scale [8], and the Problem Areas in Diabetes Management (PAID) scale [9].”
MethodMalanda, U. L., Bot, S. D. M., Kostense, P. J., Snoek, F. J., Dekker, J. M., & Nijpels, G. (2009) · BMC Family Practice · doi:10.1186/1471-2296-10-26 · Cited by 11
Diabetes sleep treatment trial: Premise, design, and methodology
Chasens, E. R., Atwood, C. W., Burke, L. E., Korytkowski, M. T., Stansbury, R. C., Strollo, P. J., & Sereika, S. M. (2018) · Contemporary Clinical Trials · doi:10.1016/j.cct.2018.11.014 · Cited by 12
Totesora, D., Ramos-Rivera, M. I., Florencio, M. Q. V., & Reyes-Sia, P. N. (2019) · Journal of the ASEAN Federation of Endocrine Societies · doi:10.15605/jafes.034.02.10 · Cited by 13
“11 This an English self-report scale comprising of 16 items which focuses on four domain, namely (1) glucose management; (2) dietary control; (3) physical activity; and (4) health-care use.”
BackgroundMethodInfluentialThe psychopathology of recurrent diabetic ketoacidosis: A case–control study
Garrett, C. J., Moulton, C. D., Choudhary, P., Amiel, S. A., Fonagy, P., & Ismail, K. (2020) · Diabetic Medicine · doi:10.1111/dme.14505 · Cited by 15
“Mean HbA1c IFCC mmol/mol (SD) 86 (27) 101 (23) 72 (22) <0.”
Παπαθανασίου, Α., Shea, S., Koutsovasilis, A., Melidonis, A. J., Papavasiliou, E., & Lionis, C. D. (2008) · PubMed Central · Cited by 12
Vakharia, J. D., Thaweethai, T., Licht, P., Wexler, D. J., & Delahanty, L. M. (2023) · Journal of the Academy of Nutrition and Dietetics · doi:10.1016/j.jand.2023.02.018 · Cited by 13
Dallosso, H., Mandalia, P., Gray, L. J., Chudasama, Y. V., Choudhury, S., Taheri, S., Patel, N., Khunti, K., & Davies, M. J. (2022) · Nutrition Metabolism and Cardiovascular Diseases · doi:10.1016/j.numecd.2022.03.017 · Cited by 11
Shapiro, M. S. (2022) · Primary Care Clinics in Office Practice · doi:10.1016/j.pop.2021.11.007 · Cited by 12
Mayberry, L. S., El-Rifai, M., Nelson, L. A., Parks, M., Greevy, R. A., LeStourgeon, L. M., Molli, S., Bergner, E. M., Spieker, A. J., Aikens, J. E., et al. (2022) · Contemporary Clinical Trials · doi:10.1016/j.cct.2022.106956 · Cited by 11
Hayashino, Y., Okamura, S., Tsujii, S., Ishii, H., Ishii, H., Kuwata, H., Tsujii, S., Okamura, S., Matsunaga, S., Sakuramachi, Y., et al. (2023) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2023.04.018 · Cited by 11
Sakane, N., Kato, K., Hata, S., Nishimura, E., Araki, R., Kouyama, K., Hatao, M., Matoba, Y., Matsushita, Y., Domichi, M., et al. (2023) · Internal Medicine · doi:10.2169/internalmedicine.0332-22 · Cited by 11
“Higher scores indicate greater diabetes-related distress, and a cut-off score of 40 indicates high distress (21, 22).”
BackgroundHolloway, E. E., Gray, S., Mihalopoulos, C., Versace, V. L., Gautier, R. L., Chatterton, M. L., Hagger, V. L., Halliday, J., Henshaw, K., Harrap, B., et al. (2023) · Trials · doi:10.1186/s13063-023-07338-5 · Cited by 11
“The PAID scale is valid, reliable and sensitive to change [32].”
MethodScollan‐Koliopoulos, M., Herrera, I., Romano, K., Gregory, C., Rapp, K., & Bleich, D. (2012) · Journal of Family Medicine and Primary Care · doi:10.4103/2249-4863.104955 · Cited by 11
Robins, L., Newby, J. M., Wilhelm, K. A., Smith, J. S., Fletcher, T., Ma, T., Finch, A. W., Campbell, L. V., & Andrews, G. (2015) · BMJ Open Diabetes Research & Care · doi:10.1136/bmjdrc-2015-000144 · Cited by 11
Lee, H. J., Jang, J., Lee, S. A., Oh, S. S., & Park, E. (2019) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph16224441 · Cited by 11
“In another study that used the PAID questionnaire, the scores of the IDDM (insulin dependent diabetes mellitus) and NIDDM (non-insulin-dependent diabetes mellitus) groups differed in terms of the type of diabetes treatment [21].”
Method
Metadata
- Authors
- Welch, G. W., Jacobson, A. M., & Polonsky, W. H.
- Affiliations
- Mental Health Unit, Balboa Medical Center San Diego, California
- Joslin Diabetes Center (US)
- ORCID
- Polonsky, William H
- Venue
- Diabetes Care
- Publisher
- American Diabetes Association
- Published
- 1997-05-01
- Volume
- 20
- Issue
- 5
- Pages
- 760-766
- ISSN
- 0149-5992 (ISSN-L)
- 1935-5548
- OpenAlex
- W2134365893
- Cited by
- 664
- References
- 0
- Citations by year
- 2026: 20 · 2025: 20 · 2024: 35 · 2023: 37 · 2022: 49 · 2021: 46 · 2020: 35 · 2019: 37 · 2018: 28 · 2017: 33 · 2016: 23 · 2015: 31 · 2014: 32 · 2013: 25 · 2012: 37
- FWCI
- 0.71
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Diabetes Care (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (5r01dk027845-14)
- National Institute of Diabetes and Digestive and Kidney Diseases (DK27845, DK42315, R01DK042315)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- Problem Areas in Diabetes scale, emotional adjustment, type 1 diabetes, type 2 diabetes, discriminant validity, concurrent validity, psychometric properties, coping, health attitudes, insulin-treated diabetes, HbA1c
- MeSH terms
- Adaptation, Psychological, Adult, Attitude to Health, Demography, Diabetes Mellitus, Diabetes Mellitus, Type 1, Diabetes Mellitus, Type 2, Diet, Diabetic, Education, Emotions, Female, Humans, Hypoglycemic Agents, Insulin, Male, Middle Aged, Surveys and Questionnaires, Socioeconomic Factors, Reproducibility of Results, Discriminant Analysis
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