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The Problem Areas in Diabetes Scale: An evaluation of its clinical utility
Abstract
OBJECTIVE: To evaluate the reliability and concurrent and discriminant validity of the Problem Areas in Diabetes (PAID) scale, a new measure of emotional functioning in diabetes. RESEARCH DESIGN AND METHODS: A battery of questionnaires, including the PAID, was completed by 256 volunteer diabetic outpatients. In our analyses, we examined the PAID's internal structure and compared mean IDDM and NIDDM treatment group scores in regression analyses to explore its discriminant validity. We also evaluated concurrent validity from the correlations between the PAID and diabetes-specific measures of coping and health attitudes and HbA1c. RESULTS: Principal component analyses identified a large emotional adjustment factor, supporting the use of the total score. Significant sizable correlations were found between the PAID and a range of selected health attitudinal measures. There were significant differences (with small-to-moderate effect sizes) in PAID scores between IDDM and NIDDM patients and between IDDM and NIDDM insulin- and tablet-treated subgroups; no differences were found between NIDDM insulin- and tablet-treated subgroups. CONCLUSIONS: The study findings provided support for the construct validity of the PAID, including evidence for discriminant validity from its ability to detect differences between IDDM and NIDDM treatment groups expected to differ in the emotional impact of life with diabetes. Future studies should explore the PAID's performance in nonspecialist treatment settings as well as its responsiveness to clinical change.
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“However, participants were experiencing severe diabetes distress (>40) (Welch et al., 1997).”
From An online acceptance, commitment, and self-compassion based treatment to decrease psychological distress in people with type 2 diabetes: A feasibility randomised-controlled trial (2023) · cites this paper as Welch et al., 1997
In the citing paper
“The original PAID Scale and the Swedish version of the scale (Swe-PAID-20), which will be used in this study, have been proven in terms of validity and reliability.25 32 33”
From Acceptance and commitment therapy (ACT) for adult type 1 diabetes management: Study protocol for a randomised controlled trial (2018) · cites this paper as [33]
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Screening for depression and diabetes‐related distress in a diabetes outpatient clinic
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Diabetes distress, illness perceptions and glycaemic control in adults with type 2 diabetes
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“95) and factor analyses revealed a single global emotional distress factor [11].”
BackgroundInfluentialEsbitt, S. A., Tanenbaum, M. L., & Gonzalez, J. S. (2012) · Springer eBooks · doi:10.1007/978-0-85729-751-8_2 · Cited by 43
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“The Outcomes The primary outcomes were HbA1c and total cholesterol levels, and well-being, which were measured by the Problem Areas In Diabetes (PAID) scale [14] and the mental component summary score from the SF-12 (SF12, mcs) [15].”
MethodNaik, A. D., White, C. D., Robertson, S. M., Armento, M. E. A., Lawrence, B. M., Stelljes, L. A., & Cully, J. A. (2012) · BMC Geriatrics · doi:10.1186/1471-2318-12-37 · Cited by 39
“The Problem Areas in Diabetes Scale (PAID) was used to assess diabetes-specific emotional distress [29,30].”
MethodDiabetes-related emotional distress instruments: A systematic review of measurement properties
Lee, J., Lee, E., Kim, C., & Moon, S. H. (2015) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2015.07.004 · Cited by 39
Psychological adjustment to diabetes mellitus: highlighting self-integration and self-regulation
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“Almost 40 percent of individuals reported feeling burdened by their diabetes on the PAID scale”
InfluentialPapathanasiou, A., Koutsovasilis, A., Shea, S. A., Philalithis, A. E., Papavasiliou, S. S., Melidonis, A. J., & Lionis, C. D. (2012) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2012.01875.x · Cited by 38
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“Diabetes-related distress PAID: Problem Areas In Diabetes scale [63]†‡ All participants”
BackgroundPsychosocial and Psychiatric Challenges of Diabetes Mellitus
Weinger, K., & Lee, J. (2006) · Nursing Clinics of North America · doi:10.1016/j.cnur.2006.07.002 · Cited by 36
Hara, Y., Hisatomi, M., Ito, H., et al. (2014) · BioPsychoSocial Medicine · doi:10.1186/1751-0759-8-16 · Cited by 36
“have used the Problem Areas in Diabetes scale and other tools to compare the effect of insulin therapy, OHA therapy, and diet therapy on coping and emotional well-being, although they reported finding no significant differences between insulin- and OHA-treated subgroups of patients with type 2 diabetes mellitus [15].”
MethodEffects of Mindfulness on Psychological Distress and HbA1c in People with Diabetes
Pearson, S., Wills, K. E., Woods, M., & Warnecke, E. (2018) · Mindfulness · doi:10.1007/s12671-018-0908-1 · Cited by 38
“95) (Welch et al. 1997) and is sensitive to change over time; effect sizes range from 0.”
InfluentialValidation of the Turkish Version of the Problem Areas in Diabetes Scale
Veld, E. M. J. H. I. ’., Makine, C., Nouwen, A., Karşıdağ, Ç., Kadıoğlu, P., Karşıdağ, K., & Pouwer, F. (2011) · Cardiovascular Psychiatry and Neurology · doi:10.1155/2011/315068 · Cited by 36
“Unexpectedly, and incongruent with other studies, the PAID was not related to HbA1c levels [8, 10, 11, 14, 15].”
BackgroundResultChin, Y. W., Lai, P. S. M., & Chia, Y. C. (2017) · BMC Family Practice · doi:10.1186/s12875-017-0601-9 · Cited by 35
“Several disease specific instruments have been developed to identify and assess diabetes distress: the Diabetes Distress Scale (DDS-17) [19], the Diabetes Health Profile (DHP-18) [20], the Diabetes-specific Quality-of-Life Scale (DSQOLS) [21], the Questionnaire on Stress in patients with Diabetes (QSD) [22] and the Pr…”
Backgroundfor the Diabetes Distress and Care Registry at Tenri Study Group, Hayashino, Y., Okamura, S., Tsujii, S., & Ishii, H. (2018) · Diabetologia · doi:10.1007/s00125-018-4657-4 · Cited by 35
“across different studies and has discriminative validity [7, 16].”
BackgroundTest of the modified dual pathway model of eating disorders in individuals with type 1 diabetes
Rancourt, D., Foster, N. C., Bollepalli, S., Fitterman-Harris, H. F., Powers, M. A., Clements, M. A., & SMITH, L. B. (2019) · International Journal of Eating Disorders · doi:10.1002/eat.23054 · Cited by 41
How does anger coping style affect glycemic control in diabetes patients?
Yi, J. P., Yi, J. C., VITALIANO, P. P., & Weinger, K. (2008) · International Journal of Behavioral Medicine · doi:10.1080/10705500802219481 · Cited by 36
“The PAID has high internal consistency and validity (Cronbach’s alpha = 0.95; Polonsky et al., 1995; Welch, Jacobson, & Polonsky, 1997 ).”
BackgroundInfluentialWeinger, K., Greenlaw, S. M., Yi, J. P., Lin, S. X., & Rodriguez, M. (2005) · Diabetes Care · doi:10.2337/diacare.28.7.1791 · Cited by 35
“After giving informed written consent, patients completed a battery of psychological tests consisting of the Problem Areas in Diabetes scale (13,14), Self-Management Questionnaire (15), Self-Care Inventory-R (16,17), Brief Symptom Index (18), Coping Styles Questionnaire (19), Rosenberg Self Esteem Questionnaire (20,21…”
MethodValidation of the Spanish version of the Problem Areas in Diabetes (PAID-SP) Scale
Vázquez, M. B., Hernández‐Mijares, A., Marco, J. H., Domínguez, J. R., & Pomares, F. (2014) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2014.09.012 · Cited by 34
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Winkley, K., Stahl, D. R., Chamley, M., Stopford, R., Boughdady, M., Thomas, S., Amiel, S. A., Forbes, A., & Ismail, K. (2015) · Patient Education and Counseling · doi:10.1016/j.pec.2015.08.015 · Cited by 34
“25 to achieve a final score between 0 and 100, scores≥ 40 represent high risk of emotional burnout [28].”
BackgroundThe role of overprotection by the partner in coping with diabetes: A moderated mediation model
Schokker, M. C., Links, T. P., Bouma, J., Keers, J. C., Sanderman, R., Wolffenbuttel, B. H. R., & Hagedoorn, M. (2010) · Psychology and Health · doi:10.1080/08870440903342325 · Cited by 34
Pibernik-Okanović, M., Hermanns, N., Ajduković, D., Kos, J., Prašek, M., Šekerija, M., & Lovrenčić, M. V. (2015) · Trials · doi:10.1186/s13063-015-0833-8 · Cited by 34
“Emotional symptoms in individuals with milder depressive symptoms (CES-D 16) and no serious problems related to diabetes (PAID 40) did not improve but remained within subclinical scores’ range.”
MethodInfluentialHayashino, Y., Okamura, S., Matsunaga, S., Tsujii, S., & Ishii, H. (2012) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2012.04.005 · Cited by 33
“[8] Welch GW, Jacobson AM, Polonsky WH.”
The distress experienced by people with type 2 diabetes
West, C., & McDowell, J. R. S. (2002) · British Journal of Community Nursing · doi:10.12968/bjcn.2002.7.12.10901 · Cited by 33
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“[21] Welch GW, Jacobson AM, Polonsky WH.”
BackgroundInfluentialThe assessment and management of quality of life of older adults with diabetes mellitus
Kassem, L. S., & Aron, D. C. (2020) · Expert Review of Endocrinology & Metabolism · doi:10.1080/17446651.2020.1737520 · Cited by 35
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“20 21 Detailed information on these three scales can be found in the online supplementary material.”
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Self‐compassion and psychological distress in chronic illness: A meta‐analysis
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Treatment Response in Type 2 Diabetes Patients with Major Depression
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“Diabetes (PAID) [31].”
Diabetes Distress and Associated Factors in Patients with Diabetes Mellitus in South East Nigeria
Onyenekwe, B. M., Young, E. E., Nwatu, C. B., Okafor, C. I., & Ugwueze, C. V. (2020) · Dubai Diabetes and Endocrinology Journal · doi:10.1159/000508706 · Cited by 35
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“Moreover the compliance scale showed significant correlations with the ITSQ overall score and the Problem Areas in Diabetes (PAID) instrument [33-35].”
MethodSkinner, T. C., Khunti, K. K., Carey, M., Dallosso, H. M., Heller, S. R., & Davies, M. J. (2014) · Diabetic Medicine · doi:10.1111/dme.12484 · Cited by 28
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Development and validation of a scale to measure diabetes burnout
Abdoli, S., Miller-Bains, K. L., Fanti, P., Silveira, M. S., & Hessler, D. (2021) · Journal of Clinical & Translational Endocrinology · doi:10.1016/j.jcte.2021.100251 · Cited by 32
“, Problem Areas in Diabetes Scales [PAID] [33] or Type 1- Diabetes Distress Scale [T1-DDS]32) do not assess the unique dimensions of diabetes burnout.”
BackgroundHart, H. E., Redekop, K., Bilo, H. J. G., Jong, B. M., & Berg, M. (2007) · PubMed · Cited by 29
Elliott, D., Rankin, D., Jacques, R., Lawton, J., Emery, C., Campbell, M. J., Dixon, S., & Heller, S. R. (2014) · Diabetic Medicine · doi:10.1111/dme.12621 · Cited by 27
Alvarado-Martel, D., Fernández, M. Á. R., Vigaray, M. C., Carrillo, A., Boronat, M., Expósito‐Montesdeoca, A. B., Nattero‐Chávez, L., Sánchez, M. P., Quevedo, P. L., Santana-Suarez, A. D., et al. (2017) · Frontiers in Psychology · doi:10.3389/fpsyg.2017.00904 · Cited by 27
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“Diabetes-related distress was measured by The Problem Areas In Diabetes (PAID) [44,45].”
MethodInfluentialChristensen, M. O., Berg, A. K., Rytter, K., Hommel, E., Thyssen, J. P., Svensson, J., & Nørgaard, K. (2019) · Diabetes Technology & Therapeutics · doi:10.1089/dia.2019.0007 · Cited by 28
“Validity has been demonstrated in other countries and languages, 25,27,32,33 and the PAID scale has been translated and used in several other Danish studies.”
Liu, J., Bispham, J. A., Fan, L., Poon, J. L., Hughes, A. S., McAuliffe‐Fogarty, A. H., Varnado, O. J., & Mitchell, B. D. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-038462 · Cited by 30
Grandparenthood status and health outcomes in midlife African American women with type 2 diabetes.
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Exploring patient information needs in type 2 diabetes: A cross sectional study of questions
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Depressive Symptoms in Patients with Type 2 Diabetes Mellitus: Do Stress and Coping Matter?
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“These results are in agreement with prior findings showing that high scores on the avoidance, passive resignation and diabetes integration subscales are associated with greater emotional distress in patients with type 1 and type 2 diabetes (Welch et al., 1997).”
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“The Problem Areas in Diabetes (PAID) measure is a 20 item questionnaire that uses a Likert-scale to assess an individual’s diabetesrelated distress [22].”
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Diabetes Learning in Virtual Environments
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“Emotional functioning using the ‘Problem Areas in Diabetes’ (PAID) questionnaire [20] continuity of care using the ‘Continuity of Care Questionnaire’ [21].”
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“Emotional adjustment to diabetes was measured using the 20-item Problem Areas in Diabetes scale (PAID; [35,36]) Items are rated on a 5-point Likert scale (0-4) and assess distress caused by treatment, food, diet, social support, and emotional XSL • FO RenderX issues.”
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Diabetes burnout among emerging adults with type 1 diabetes: a mixed methods investigation
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Hybrid Closed Loop Using a Do-It-Yourself Artificial Pancreas System in Adults With Type 1 Diabetes
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A study of a pre-operative intervention in patients with diabetes undergoing cardiac surgery
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“Diabetes distress is conceptually different from diabetes-related depression, and evaluation and treatment of diabetes distress has clinical utility because moderate to high distress is related to poor diabetes outcomes [10].”
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“However, this difference was not associated with differences in adjustment, a finding that conflicts with that of Welch, Jacobson, and Polonsky (1997), who reported that their subjects with ID and NID differed significantly on a measure of emotional functioning in diabetes.”
ResultRyan, A. K., Pakenham, K. I., & Burton, N. W. (2020) · Australian Psychologist · doi:10.1111/ap.12429 · Cited by 24
Groeneveld, L., Beulens, J. W. J., Blom, M. T., van Straten, A., van der Zweerde, T., Elders, P. J. M., & Rutters, F. (2024) · Sleep Medicine · doi:10.1016/j.sleep.2024.05.029 · Cited by 25
Fisher, L., Guzman, S., Polonsky, W. H., & Hessler, D. (2024) · Diabetic Medicine · doi:10.1111/dme.15446 · Cited by 24
“…of each of the five commonly used DD measures is presented in Table 1, displayed in order of year developed: the Problem Areas in Diabetes (PAID), 23 the Diabetes Distress Scale (DDS), 24 the Type 1-Diabetes Distress Scale (T1-DDS), 1 the Type 2 Diabetes Distress Assessment System (T2-DDAS) 25…”
Self-citationComprehensive health assessment and five‐yr follow‐up of allogeneic islet transplant recipients
Radosevich, D. M., JEVNE, R. L., Bellin, M. D., Kandaswamy, R., Sutherland, D. E. R., & Hering, B. J. (2013) · Clinical Transplantation · doi:10.1111/ctr.12265 · Cited by 25
Manan, M. M. (2014) · JOURNAL OF CLINICAL AND DIAGNOSTIC RESEARCH · doi:10.7860/jcdr/2014/10481.5309 · Cited by 25
“[34] Welch GW, Jacobson AM, Polonsky WH.”
RetractedUchinuma, H., Ichijo, M., Harima, N., & Tsuchiya, K. (2020) · BMC Endocrine Disorders · doi:10.1186/s12902-020-0542-5 · Cited by 23
Masyuko, S. J., Ngongo, C. J., Smith, C., & Nugent, R. A. (2021) · PLoS ONE · doi:10.1371/journal.pone.0245269 · Cited by 24
Kılıç, A., Hudson, J. L., Scott, W., McCracken, L. M., & Hughes, L. D. (2022) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2022.110728 · Cited by 32
Huisman, S. D., Hendrieckx, C., Bot, M., Pouwer, F., & Nefs, G. (2022) · Diabetic Medicine · doi:10.1111/dme.14953 · Cited by 24
Byrne, M., Newell, J., Coffey, N., Hara, M. C. O., Cooke, D. D., & Dinneen, S. F. (2012) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2012.09.017 · Cited by 25
Góis, C., Akiskal, H. S., Akiskal, K. K., & Figueira, M. L. (2012) · Journal of Affective Disorders · doi:10.1016/j.jad.2012.05.028 · Cited by 24
“Not surprisingly, psychological adjustment to T2DM explains 48% of the variance in diabetes-specific distress (Welch et al., 1997) and it also directly correlates with depressive symptoms and metabolic control (Gois et al.”
BackgroundCorathers, S. D., Mara, C. A., Chundi, P. K., & Kichler, J. (2017) · Current Diabetes Reports · doi:10.1007/s11892-017-0872-5 · Cited by 23
Disease-related emotional distress of Hispanic and non-Hispanic type 2 diabetes patients.
Welch, G. W., Schwartz, C. E., Santiago-Kelley, P., Garb, J., Shayne, R., & Bode, R. K. (2007) · PubMed · Cited by 24
Self-citationDefining and Measuring Resilience in Children with a Chronic Disease: a Scoping Review
van der Laan, S. E. I., van der Sprenkel, E. E. B., Lenters, V. C., Finkenauer, C., van der Ent, C. K., & Nijhof, S. L. (2023) · Adversity and Resilience Science · doi:10.1007/s42844-023-00092-2 · Cited by 33
Abraham, M. B., Smith, G. J., Dart, J., Clarke, A. D., Bebbington, K. R., Fairchild, J. M., Ambler, G. R., Cameron, F. J., Davis, E. A., & Jones, T. W. (2024) · Diabetes Care · doi:10.2337/dc24-0276 · Cited by 23
Watson, N. A., Dyer, K. A., Buckley, J. D., Brinkworth, G. D., Coates, A. M., Parfitt, G., Howe, P. R. C., Noakes, M., & Murphy, K. J. (2018) · Nutrition Journal · doi:10.1186/s12937-018-0367-5 · Cited by 24
Metadata
- Authors
- Welch, G. W., Jacobson, A. M., & Polonsky, W. H.
- Affiliations
- Mental Health Unit, Balboa Medical Center San Diego, California
- Joslin Diabetes Center (US)
- ORCID
- Polonsky, William H
- Venue
- Diabetes Care
- Publisher
- American Diabetes Association
- Published
- 1997-05-01
- Volume
- 20
- Issue
- 5
- Pages
- 760-766
- ISSN
- 0149-5992 (ISSN-L)
- 1935-5548
- OpenAlex
- W2134365893
- Cited by
- 664
- References
- 0
- Citations by year
- 2026: 20 · 2025: 20 · 2024: 35 · 2023: 37 · 2022: 49 · 2021: 46 · 2020: 35 · 2019: 37 · 2018: 28 · 2017: 33 · 2016: 23 · 2015: 31 · 2014: 32 · 2013: 25 · 2012: 37
- FWCI
- 0.71
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Diabetes Care (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (5r01dk027845-14)
- National Institute of Diabetes and Digestive and Kidney Diseases (DK27845, DK42315, R01DK042315)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- Problem Areas in Diabetes scale, emotional adjustment, type 1 diabetes, type 2 diabetes, discriminant validity, concurrent validity, psychometric properties, coping, health attitudes, insulin-treated diabetes, HbA1c
- MeSH terms
- Adaptation, Psychological, Adult, Attitude to Health, Demography, Diabetes Mellitus, Diabetes Mellitus, Type 1, Diabetes Mellitus, Type 2, Diet, Diabetic, Education, Emotions, Female, Humans, Hypoglycemic Agents, Insulin, Male, Middle Aged, Surveys and Questionnaires, Socioeconomic Factors, Reproducibility of Results, Discriminant Analysis
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