Decision making in recovery-oriented mental health care.
Open accessAbstract
OBJECTIVE: Patient-centered communication has been linked to patient satisfaction, treatment adherence and outcomes. Shared decision making (SDM) has been advocated as an important and ethically essential aspect of patient-centered care, but SDM has received relatively little attention in mental health care, despite studies indicating that consumers want to be involved in making decisions. This is particularly important in a recovery-oriented system, where consumers are active participants in their treatment and rehabilitation. Because medication management is a key component of recovery from severe mental illnesses, this study explores how consumers and providers make decisions in medication management consultations. METHODS: Four providers (3 psychiatrists, 1 nurse practitioner) and 40 consumers with severe mental illness (10 consumers per provider) were recruited from a community mental health center with a recovery-oriented focus. We directly observed 40 medication management appointments. Observations were audio recorded and transcribed. We used emergent thematic analysis to characterize decision making processes. RESULTS: Providers initiated most decisions, although they often invited consumers to participate in decision making. Decisions initiated by consumers elicited a greater degree of discussion and disagreement, but also frequently resulted in consumers' preferences prevailing. Consultations generally exhibited more characteristics of person-centeredness than SDM. CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: While we observed a high degree of person-centeredness, SDM was not prevalent. Interventions helping consumers to take greater initiative when working with service providers may be helpful. For example, programs using tools such as peer instruction, Internet-based software, and individual case-manager instruction all have shown promise for enhancing SDM in mental health treatment. Further research is needed to determine the degree of SDM in other settings (e.g., with case managers) and the impact of SDM on consumers' recovery.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
SDM has a positive impact on patients' satisfaction and adherence to treatments, as well as on quality of life and empowerment.
“studies have demonstrated that it has a positive impact on the patient’s levels of satisfaction and adherence to treatments, as well as on his/her quality of life and empowerment [7].”
From The role of shared decision-making in improving adherence to pharmacological treatments in patients with schizophrenia: A clinical review (2020) · cites this paper as [7]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Effectiveness of Antipsychotic Drugs in Patients with Chronic Schizophrenia
Lieberman, J. A., Stroup, T. S., McEvoy, J. P., Swartz, M. S., Rosenheck, R. A., Perkins, D. O., Keefe, R. S. E., Davis, S. M., Davis, C. E., Lebowitz, B. D., et al. (2005) · New England Journal of Medicine · doi:10.1056/nejmoa051688 · Cited by 5,892 · see citing works
Charles, C., Gafni, A., & Whelan, T. (1997) · Social Science & Medicine · doi:10.1016/s0277-9536(96)00221-3 · Cited by 4,137 · cited 1× · see citing works
“In spite of this, most of the observed decisions fell short of what constitutes SDM as defined by Charles et al. (1997, 1999) and Montori et al. (2006).”
ResultPatient Self-management of Chronic Disease in Primary Care
Bodenheimer, T. (2002) · JAMA · doi:10.1001/jama.288.19.2469 · Cited by 3,598 · see citing works
Patient-centredness: a conceptual framework and review of the empirical literature
Mead, N., & Bower, P. (2000) · Social Science & Medicine · doi:10.1016/s0277-9536(00)00098-8 · Cited by 2,993 · see citing works
The impact of patient-centered care on outcomes.
Stewart, M., Brown, J. B., DONNER, A. P., McWhinney, I. R., Oates, J., Weston, W. W., & Jordan, J. (2000) · PubMed · Cited by 2,508 · see citing works
Charles, C. A., Gafni, A., & Whelan, T. J. (1999) · Social Science & Medicine · doi:10.1016/s0277-9536(99)00145-8 · Cited by 2,336 · see citing works
An integrative model of shared decision making in medical encounters
Makoul, G. T., & Clayman, M. L. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.06.010 · Cited by 1,639 · see citing works
Expanding Patient Involvement in Care
Greenfield, S., Kaplan, S. H., & Ware, J. E. (1985) · Annals of Internal Medicine · doi:10.7326/0003-4819-102-4-520 · Cited by 1,459 · see citing works
Discovering the Neural Basis of Human Social Anxiety: A Diagnostic and Therapeutic Imperative
Charney, D. S. (2004) · American Journal of Psychiatry · doi:10.1176/appi.ajp.161.1.1 · Cited by 1,428 · see citing works
Handbook of health communication
Thompson, T. L. (2008) · Cited by 1,121 · see citing works
Interventions for improving the adoption of shared decision making by healthcare professionals
Légaré, F., Ratté, S., Stacey, D., Kryworuchko, J., Gravel, K., Graham, I. D., & Turcotte, S. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006732.pub2 · Cited by 832 · see citing works
The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements
Dixon, L. B., Dickerson, F., Bellack, A. S., Bennett, M., Dickinson, D., Goldberg, R. W., Lehman, A., Tenhula, W. N., Calmes, C., Pasillas, R. M., et al. (2010) · Schizophrenia Bulletin · doi:10.1093/schbul/sbp115 · Cited by 774 · see citing works
Practice Guideline for the Treatment of Patients With Schizophrenia Second Edition
(2007) · American Psychiatric Association Publishing eBooks · doi:10.1176/appi.books.9780890423363.45859 · Cited by 733 · see citing works
Towle, A., Godolphin, W., Greenhalgh, T., & Gambrill, J. (1999) · BMJ · doi:10.1136/bmj.319.7212.766 · Cited by 646 · see citing works
Grisso, T., & Appelbaum, P. S. (1995) · Law and Human Behavior · doi:10.1007/bf01499323 · Cited by 595 · see citing works
Patient Participation in Medical Consultations
Street, R. L., Gordon, H. S., Ward, M. M., Krupat, E., & Kravitz, R. L. (2005) · Medical Care · doi:10.1097/01.mlr.0000178172.40344.70 · Cited by 574 · see citing works
A Typology of Shared Decision Making, Informed Consent, and Simple Consent
Whitney, S. N., McGuire, A. L., & McCullough, L. B. (2004) · Annals of Internal Medicine · doi:10.7326/0003-4819-140-1-200401060-00012 · Cited by 541 · see citing works
Shared Decision Making and Medication Management in the Recovery Process
Deegan, P. E., & Drake, R. E. (2006) · Psychiatric Services · doi:10.1176/appi.ps.57.11.1636 · Cited by 489 · see citing works
Rao, J. K., Anderson, L. A., Inui, T. S., & Frankel, R. M. (2007) · Medical Care · doi:10.1097/01.mlr.0000254516.04961.d5 · Cited by 469 · see citing works
Self-citationMontori, V. M., Gafni, A., & Charles, C. (2006) · Health Expectations · doi:10.1111/j.1369-7625.2006.00359.x · Cited by 399 · see citing works
Loh, A., Simon, D., Wills, C. E., Kriston, L., Niebling, W., & Härter, M. (2007) · Patient Education and Counseling · doi:10.1016/j.pec.2007.03.023 · Cited by 382 · see citing works
Shared Decision-Making and Evidence-Based Practice
Adams, J. R., & Drake, R. E. (2006) · Community Mental Health Journal · doi:10.1007/s10597-005-9005-8 · Cited by 302 · see citing works
Shared decision making interventions for people with mental health conditions
Duncan, E., Best, C., & Hagen, S. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007297.pub2 · Cited by 256 · see citing works
Evaluation of a Patient Activation and Empowerment Intervention in Mental Health Care
Alegría, M., Polo, A. J., Gao, S., Santana, L., Rothstein, D., Jiménez, A., Hunter, M. L., Mendieta, F., Oddo, V., & Normand, S. (2008) · Medical Care · doi:10.1097/mlr.0b013e318158af52 · Cited by 255 · see citing works
Do Patients With Schizophrenia Wish to Be Involved in Decisions About Their Medical Treatment?
Hamann, J., Cohen, R., Leucht, S., Busch, R. M., & Kissling, W. (2005) · American Journal of Psychiatry · doi:10.1176/appi.ajp.162.12.2382 · Cited by 254 · see citing works
The impact of patient participation on adherence and clinical outcome in primary care of depression
Loh, A., Leonhart, R., Wills, C. E., Simón, D., & Härter, M. C. (2006) · Patient Education and Counseling · doi:10.1016/j.pec.2006.05.007 · Cited by 245 · see citing works
Salyers, M. P., & Tsemberis, S. J. (2007) · Community Mental Health Journal · doi:10.1007/s10597-007-9088-5 · Cited by 219 · see citing works
Self-citationShared Decision Making and the Experience of Partnership in Primary Care
Saba, G. W. (2006) · The Annals of Family Medicine · doi:10.1370/afm.393 · Cited by 210 · see citing works
Shared Decision-Making Preferences of People With Severe Mental Illness
Adams, J. R., Drake, R. E., & Wolford, G. (2007) · Psychiatric Services · doi:10.1176/ps.2007.58.9.1219 · Cited by 198 · see citing works
The promise of shared decision making in mental health.
Drake, R. E., Deegan, P. E., & Rapp, C. A. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/34.1.2010.7.13 · Cited by 197 · see citing works
Shared Decision-Making Preferences of People With Severe Mental Illness
Adams, J. R., Drake, R. E., & Wolford, G. L. (2007) · Psychiatric Services · doi:10.1176/appi.ps.58.9.1219 · Cited by 180 · see citing works
Deegan, P. E., Rapp, C. A., Holter, M. C., & Riefer, M. (2008) · Psychiatric Services · doi:10.1176/appi.ps.59.6.603 · Cited by 173 · see citing works
Bieber, C., Müller, K., Blumenstiel, K., Schneider, A., Richter, A., Wilke, S., Hartmann, M., & Eich, W. (2006) · Patient Education and Counseling · doi:10.1016/j.pec.2006.05.003 · Cited by 149 · see citing works
Involving patients in decisions during psychiatric consultations
Goss, C., Moretti, F., Mazzi, M. A., Piccolo, L. D., Rimondini, M., & Zimmermann, C. (2008) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.107.048728 · Cited by 121 · see citing works
A Web application to support recovery and shared decision making in psychiatric medication clinics.
Deegan, P. E. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/34.1.2010.23.28 · Cited by 114 · see citing works
Outcomes of patient-provider interaction.
Brown, J. B., Stewart, M., & Ryan, B. L. (2003) · doi:10.4324/9781410607683-13 · Cited by 111 · see citing works
Physicians' Shared Decision-Making Behaviors in Depression Care
Young, H. N. (2008) · Archives of Internal Medicine · doi:10.1001/archinte.168.13.1404 · Cited by 105 · see citing works
Woltmann, E. M., & Whitley, R. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/34.1.2010.29.36 · Cited by 101 · see citing works
Brief report: Training internists in shared decision making about chronic opioid
Sullivan, M. D., Leigh, J., & Gaster, B. (2006) · Journal of General Internal Medicine · doi:10.1111/j.1525-1497.2006.00352.x · Cited by 80 · see citing works
On the road to collaborative treatment planning: Consumer and provider perspectives
Chinman, M., Allende, M., Weingarten, R., et al. (1999) · The Journal of Behavioral Health Services & Research · doi:10.1007/bf02287492 · Cited by 62 · see citing works
Pushing the envelope: Shared decision making in mental health.
Curtis, L. C., Wells, S. M., Penney, D. J., Ghose, S. S., Mistler, L. A., Mahone, I. H., Delphin-Rittmon, M. E., del Vecchio, P., & Lesko, S. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/34.1.2010.14.22 · Cited by 60 · see citing works
Facilitating Participatory Decision-Making
Gotler, R. S., Flocke, S. A., Goodwin, M. A., Zyzanski, S. J., Murray, T. H., & Stange, K. C. (2000) · Medical Care · doi:10.1097/00005650-200012000-00007 · Cited by 48 · see citing works
Professional-patient communication in the treatment of mental illness: A review
Hassan, I., McCabe, R., & Priebe, S. (2007) · Communication & Medicine · doi:10.1515/cam.2007.018 · Cited by 39 · see citing works
Developing Web-based online support tools: The Dartmouth decision support software.
Andrews, S. B., Drake, T., Haslett, W. R., & Munusamy, R. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/34.1.2010.37.41 · Cited by 20 · see citing works
Informed Decision Making in Outpatient Practice: Time to Get Back to Basics
Braddock III, C. H., Edwards, K. A., Hasenberg, N. M., Laidley, T. L., & Levinson, W. (1999) · JAMA · doi:10.1001/jama.282.24.2313 · Cited by 19 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Fiorillo, A., Barlati, S., Bellomo, A., Corrivetti, G., Nicolò, G., Sampogna, G., Stanga, V., Veltro, F., Maina, G., & Vita, A. (2020) · Annals of General Psychiatry · doi:10.1186/s12991-020-00293-4 · Cited by 110 · see citing works
Korsbek, L., & Tønder, E. S. (2016) · Psychiatric Rehabilitation Journal · doi:10.1037/prj0000173 · Cited by 34 · see citing works
Effectiveness of Shared Decision-Making Training Program in People With Schizophrenia in South Korea
An, S. Y., Kim, G. H., & Kim, J. Y. (2017) · Perspectives in Psychiatric Care · doi:10.1111/ppc.12144 · Cited by 22 · see citing works
del Barrio, L. R., Cyr, C., Benisty, L., & Richard, P. (2013) · Ciência & Saúde Coletiva · doi:10.1590/s1413-81232013001000012 · Cited by 21 · see citing works
For the CEDAR Study Group, Luciano, M., Sampogna, G., Del Vecchio, V., Loos, S., Slade, M., Clarke, E., Nagy, M., Kovacs, A., Munk-Jørgensen, P., et al. (2020) · European Archives of Psychiatry and Clinical Neuroscience · doi:10.1007/s00406-019-01031-y · Cited by 17 · see citing works
- Authors
- Matthias, M. S., Salyers, M. P., Rollins, A. L., & Frankel, R. M.
- Affiliations
- Richard L. Roudebush VA Medical Center (US)
- Regenstrief Institute (US)
- Health Services Research & Development (US)
- Venue
- Psychiatric Rehabilitation Journal
- Published
- 2012
- Volume
- 35
- Issue
- 4
- Pages
- 305-314
- ISSN
- 1095-158X (ISSN-L)
- 1559-3126
- PMC
- PMC3980461
- OpenAlex
- W2035267805
- Cited by
- 105
- References
- 45
- Citations by year
- 2026: 4 · 2025: 5 · 2024: 11 · 2023: 8 · 2022: 5 · 2021: 14 · 2020: 4 · 2019: 11 · 2018: 5 · 2017: 8 · 2016: 6 · 2015: 6 · 2014: 12 · 2013: 5 · 2012: 1
- FWCI
- 13.65
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Psychiatric Rehabilitation Journal (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- IUScholarWorks (Indiana University) (submittedVersion)
- Funders
- U.S. Department of Veterans Affairs
- National Institute of Mental Health (R24MH074670)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Keywords
- shared decision-making, severe mental illness, medication management, patient-centered care, person-centeredness, pharmaceutical consultation
- MeSH terms
- Adult, Mental Disorders, Community Mental Health Services, Decision Making, Female, Humans, Male, Middle Aged, Patient Participation, Pilot Projects, Professional-Patient Relations, Patient-Centered Care, Qualitative Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review