Living successfully with aphasia: A qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists
Abstract
The concept of living successfully with aphasia has recently emerged as an alternative to more traditional "deficit" models in aphasiology, encouraging a focus on positive rather than negative outcomes. This research aimed to integrate findings from studies exploring the perspectives of three participant groups (individuals with aphasia, speech-language pathologists, and family members) about living successfully with aphasia. Qualitative meta-analysis of three studies conducted by the authors was used to integrate perspectives across the participant groups. Steps in the qualitative meta-analysis were based on those described in the process of "meta-ethnography" by Noblit and Hare (1988) . Analysis was an inductive process, in which data from each study were re-analysed and translated into each other in order to identify higher-level overarching themes that accounted for similarities and discrepancies across the original studies. A total of seven overarching themes related to living successfully with aphasia were identified. These were: participation, meaningful relationships, support, communication, positivity, independence and autonomy, and living successfully with aphasia as a journey over time. Findings indicate the need for a holistic, client-centred approach that considers communication in the broader context of an individual's daily life. The overarching themes may act as guides for areas of importance to be addressed in clinical practice, as well as in future research. By working in partnership with individuals with aphasia and their families, speech-language pathologists are challenged to continue to improve services and assist clients on their journey of living successfully with aphasia.
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Fama, M. E., Lemonds, E., & Levinson, G. (2021) · American Journal of Speech-Language Pathology · doi:10.1044/2021_ajslp-20-00265 · Cited by 22 · see citing works
Guerra, N. B., Provencio, M., Tarifa‐Rodríguez, A., Navarro, A. M., Sempere‐Iborra, C., Jordi, P., de Celis, E., de Leciñana, M. A., Alonso, M. M., Rigual, R., et al. (2023) · European Journal of Neurology · doi:10.1111/ene.16184 · Cited by 22 · see citing works
Book Club Experiences, Engagement, and Reading Support Use by People With Aphasia
Knollman-Porter, K., & Julian, S. K. (2019) · American Journal of Speech-Language Pathology · doi:10.1044/2019_ajslp-18-0237 · Cited by 22 · see citing works
Nichol, L., Pitt, R., Wallace, S. J., Rodriguez, A. D., & Hill, A. J. (2022) · Disability and Rehabilitation Assistive Technology · doi:10.1080/17483107.2022.2037758 · Cited by 21 · see citing works
Found Opportunities for Social Participation
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Self-citationIntensive Auditory Comprehension Treatment for Severe Aphasia: A Feasibility Study
Knollman-Porter, K., Dietz, A. R., & Dahlem, K. (2018) · American Journal of Speech-Language Pathology · doi:10.1044/2018_ajslp-17-0117 · Cited by 21 · see citing works
Archer, B., Azios, J. H., Douglas, N., Strong, K. A., Worrall, L. E., & Simmons‐Mackie, N. N. (2023) · American Journal of Speech-Language Pathology · doi:10.1044/2023_ajslp-23-00205 · Cited by 20 · see citing works
Self-citationElston, A., Barnden, R., Hersh, D., Godecke, E., Cadilhac, D. A.-M., Lannin, N. A., Kneebone, I., & Andrew, N. E. (2021) · Aphasiology · doi:10.1080/02687038.2021.1907294 · Cited by 20 · see citing works
Validation of the Stroke and Aphasia Quality of Life Scale in a multicultural population
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Gavel Club for people with aphasia: communication confidence and quality of communication life
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Attard, M. C., Loupis, Y., Togher, L., & Rose, M. L. (2019) · Disability and Rehabilitation · doi:10.1080/09638288.2018.1526336 · Cited by 19 · see citing works
Cheng, B. B. Y., Ryan, B., Copland, D. A., & Wallace, S. J. (2022) · Neuropsychological Rehabilitation · doi:10.1080/09602011.2022.2051565 · Cited by 18 · see citing works
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Anglade, C., Dorze, G. L., & Croteau, C. (2018) · Aphasiology · doi:10.1080/02687038.2018.1532068 · Cited by 18 · see citing works
Beales, A., Bates, K. A., Cartwright, J., & Whitworth, A. (2019) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2019.1625439 · Cited by 17 · see citing works
“Giving yourself some breathing room…”: an exploration of group meditation for people with aphasia
Panda, S., Whitworth, A., Hersh, D., & Biedermann, B. (2021) · Aphasiology · doi:10.1080/02687038.2020.1819956 · Cited by 16 · see citing works
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Visual analog rating of mood by people with aphasia
Haley, K. L., Womack, J. L., Harmon, T. G., & Williams, S. W. (2015) · Topics in Stroke Rehabilitation · doi:10.1179/1074935714z.0000000009 · Cited by 16 · see citing works
Life activity choices by people with aphasia: repeated interviews and proxy agreement
Haley, K. L., Womack, J. L., Harmon, T. G., McCulloch, K. L., & Faldowski, R. A. (2018) · Aphasiology · doi:10.1080/02687038.2018.1506087 · Cited by 16 · see citing works
Laliberté, M.-P., Gauvreau, C. A., & Dorze, G. L. (2015) · Aphasiology · doi:10.1080/02687038.2015.1100708 · Cited by 16 · see citing works
Brandenburg, C., Worrall, L. E., Copland, D. A., & Rodriguez, A. D. (2016) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2016.1209558 · Cited by 16 · see citing works
Self-citationQuique, Y. M., Ashaie, S. A., Babbitt, E. M., Hurwitz, R., & Cherney, L. R. (2023) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2023.02.013 · Cited by 15 · see citing works
Aphasia and Friendship: The Role and Perspectives of Speech-Language Pathologists
Therrien, M. C. S., Madden, E. B., Bislick, L., & Wallace, S. E. (2021) · American Journal of Speech-Language Pathology · doi:10.1044/2021_ajslp-20-00370 · Cited by 15 · see citing works
Moya‐Galé, G., Kim, Y., & Fabiano, L. (2023) · Journal of Speech Language and Hearing Research · doi:10.1044/2023_jslhr-23-00365 · Cited by 14 · see citing works
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Cheng, B. B. Y., Ryan, B., Copland, D. A., & Wallace, S. J. (2021) · Disability and Rehabilitation · doi:10.1080/09638288.2021.1922514 · Cited by 13 · see citing works
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Dunne, M., Hoover, E., & DeDe, G. (2023) · American Journal of Speech-Language Pathology · doi:10.1044/2023_ajslp-22-00306 · Cited by 12 · see citing works
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Ryan, B., Kneebone, I., Rose, M. L., Togher, L., Power, E., Hoffmann, T., Khan, A., Simmons‐Mackie, N. N., Carragher, M., & Worrall, L. E. (2023) · International Journal of Stroke · doi:10.1177/17474930231176718 · Cited by 12 · see citing works
Self-citationSpeech-language pathologists’ preferences for patient-centeredness
Bellon-Harn, M. L., Azios, J. H., Dockens, A. L., & Manchaiah, V. K. C. (2017) · Journal of Communication Disorders · doi:10.1016/j.jcomdis.2017.06.012 · Cited by 12 · see citing works
Aphasia and Spirituality: the feasibility of assessment and intervention using WELLHEAD and SHALOM
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Strong, K. A., & Sather, T. (2023) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2023.2251724 · Cited by 11 · see citing works
Posttraumatic growth following aphasia: a prospective cohort study of the first year post-stroke
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Self-citationPsychosocial well-being after stroke in Aotearoa New Zealand: a qualitative metasynthesis
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Self-citationCoping with chronic fatigue syndrome: a review and synthesis of qualitative studies
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Basic Counseling Skills: Working With People With Aphasia and Their Families
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Optimizing the Experience of Flow for Adults With Aphasia
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Self-citationStudent speech pathologists’ experiences of an aphasia therapy group
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Peer-to-peer support: digital networking in aphasia to improve quality of life (PeerPAL)
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Leaman, M. C., & Azios, J. H. (2021) · American Journal of Speech-Language Pathology · doi:10.1044/2020_ajslp-20-00176 · Cited by 8 · see citing works
Nichol, L., Rodriguez, A. D., Pitt, R., Wallace, S. J., & Hill, A. J. (2022) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2022.2055144 · Cited by 8 · see citing works
- Authors
- Brown, K., Worrall, L. E., Davidson, B., & Howe, T.
- Affiliations
- The University of Queensland (AU)
- The University of Melbourne (AU)
- University of Canterbury (NZ)
- Corresponding author
- Brown, Kyla
- Venue
- International Journal of Speech-Language Pathology
- Publisher
- Informa UK Limited
- Published
- 2011-12-12
- Volume
- 14
- Issue
- 2
- Pages
- 141-155
- ISSN
- 1441-7049 (ISSN-L)
- 1754-9507
- 1754-9515
- OpenAlex
- W2062506015
- Cited by
- 178
- References
- 73
- Citations by year
- 2026: 15 · 2025: 16 · 2024: 14 · 2023: 15 · 2022: 13 · 2021: 13 · 2020: 11 · 2019: 17 · 2018: 12 · 2017: 9 · 2016: 12 · 2015: 15 · 2014: 8 · 2013: 6 · 2012: 2
- FWCI
- 1.28
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Speech-Language Pathology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Occupational Therapy › Assistive Technology in Communication and Mobility
- Life Sciences › Neuroscience › Cognitive Neuroscience › Neurobiology of Language and Bilingualism
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- aphasia, deficit model, person-centered approach, participation, meaningful relationships, social support, communication, autonomy and independence, family perspectives, speech-language pathologists, positive outcomes, holistic care
- MeSH terms
- Aphasia, Communication, Family, Humans, Patient Participation, Professional-Family Relations, Quality of Life, Social Support, Specialization, Speech-Language Pathology
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