Identification of Psychological and Social Problems in Caregivers of Individuals Diagnosed with Hematologic Malignancy
Open accessAbstract
OBJECTIVE: Caring for patients with hematological malignancy could lead to many problems in different aspects regarding the lives of caregivers. However, there is limited data on the emotional and social problems of caregivers, who deal with patients of hematological malignancy. The aim of this study is to determine the emotional and social problems in caregivers of individuals diagnosed with hematological malignancy. METHODS: The study was carried out descriptively to identify the emotional and social problems in the relatives of the patients diagnosed with hematological malignancy as their caregivers, as well as the factors affecting these problems. The data of the study were collected with the Introductory Information Form and Identification of Emotional and Social Problems Form that were administered to the relatives of the patients. The data were evaluated by using Spearman's Rho correlation analysis and the Logit analysis in Statistical Package for the Social Sciences software. RESULTS: Among the caregivers, 59.8% were in the age group of 30-51 years, and 66.2% were female. Of the caregivers, 70.1% had difficulty in fulfilling their responsibilities. Spiritual distress had the highest score among the emotional problems, and experiencing caregiver strain had the highest score among the social problems. In the Logit model, the changes in the professional life was the variable that affects the emotional and social problems the most and significantly. In addition, emotional problems were affected by the financial problems at a statistically significant level. CONCLUSIONS: In this study, it is suggested that the caregivers should be provided with certain conveniences in their professional lives based on the fact that the problem, which affected emotional and social problems the most, is the change in the professional life; it is recommended that further studies should be carried out on the caregivers.
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Although these coping strategies demonstrated family caregivers' resilience and strong familial commitment, they often come at substantial personal costs that may erode family caregivers' health, autonomy, and long-term caregiving capacity.
“Although these coping strategies demonstrated family caregivers' resilience and strong familial commitment, they often come at substantial personal costs that may erode family caregivers' health, autonomy, and long-term caregiving capacity.”
From The burdens, coping strategies, and unmet needs of family caregivers of Chinese patients with lymphoma receiving commercial CAR-T-cell therapy: A qualitative study (2026) · cites this paper as [66]
The Introduction (page unavailable) says caregiving can lead people to neglect their own health and personal care, and that these problems can affect their caregiving ability. The Discussion (page unavailable) also reports caregiver strain and changes to professional life. The paper does not establish that particular coping strategies demonstrate resilience or familial commitment, or that those strategies cause the reported costs; it does not specifically address autonomy. (LLM, conf=0.84)
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- Authors
- Karacan, Y., Akkus, Y., Ozcelik, E. T., & Ali, R.
- Affiliations
- Bursa Uludağ Üni̇versi̇tesi̇ (TR)
- Corresponding author
- Karacan, Yasemin
- ORCID
- Karacan, Yasemin
- Venue
- Asia-Pacific Journal of Oncology Nursing
- Publisher
- Elsevier BV
- Published
- 2021-03
- Volume
- 8
- Issue
- 2
- Pages
- 204-210
- ISSN
- 2347-5625 (ISSN-L)
- PMC
- PMC7934589
- OpenAlex
- W3126303320
- Cited by
- 7
- References
- 42
- Citations by year
- 2026: 3 · 2025: 1 · 2024: 1 · 2023: 1 · 2022: 1
- FWCI
- 1.17
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Asia-Pacific Journal of Oncology Nursing (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-sa)
- PubMed (publishedVersion)
- Istanbul Science University (Istanbul Bilim University) (submittedVersion, other-oa)
- Istanbul Science University (Istanbul Bilim University) (submittedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- caregiver burden, hematologic malignancies, family caregivers, emotional problems, social problems, spiritual distress, financial problems, relatives of cancer patients
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