Cited by 93Nursing care and researchCancer survivorship and careFamily Caregiving in Mental Illness

Family Caregivers’ Involvement in Caring with Cancer and their Quality of Life

Open access
Kilic, Sevcan Toptas, Oz, Fatma·2019·Asian Pacific Journal of Cancer Prevention

Abstract

Background: Cancer is a chronic disease and a major health problem. It affects both patients and their family caregivers multidimensionally. The family caregivers may be affected by not only the disease process but also hospital policies, economic difficulties, accessibility and communication of health care service and can be in need of help. This process may affect their quality of life. However, there have not been enough studies on quality of life of family caregivers of patients with cancer in Turkish culture. Therefore, this study aimed to evaluate the quality of life of family caregivers of patients with cancer in Turkey. Objectives: The purpose of study was to evaluate the quality of life of family caregivers with cancer patients in Turkey. Methods: Participants consist of the family caregivers who volunteered to take part in this descriptive study from 11 hospitals (n =378) which has a daily chemotherapy units and located within the boundaries of Ankara, Turkey. ‘Sociodemographic Characteristic Form’ and ‘Quality of Life Scale-Family Version were used as data collection tool. The Kruskal-Wallis and Mann-Whitney U, tests were used for data analysis. Resultes:It is found that there are statistically significant difference among the factors of gender, employment status, income level, and whether caregivers reside with their patients. Family caregivers’ quality of life is negatively affected during the caregiving process (p < 0.05). Conclusion: The results indicate that family caregivers’ quality of life are negatively affected to care process. The results of this research are important as they highlight the need to also consider family caregivers’ quality of life when caring for patients, and study highlight possible areas in which support can be provided for family caregivers of cancer patients in Turkey.

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Crossref · 10.31557/apjcp.2019.20.6.1735

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  • 13 studies indicated the need of developing coping strategies to improve management and control of both the situation and emotional strain, and to help increase training in caregivers, thus improving self-efficacy while reducing emotional impact.

    “Thirteen studies [23,24,27,30,32,35,37,38,45,46,47,49,54] indicated the need of developing coping strategies to improve the management and control of both the situation and the emotional strain, and also to help increase training in caregivers, thus improving their self-efficacy while reducing the emotional impact.”

    From Quality of Life in Caregivers of Cancer Patients: A Literature Review (2023) · cites this paper as [24]

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  • Four studies highlighted the need of training health professionals on existential and spiritual distress management, as well as the need to identify groups at risk and reassigning tasks among all family members.

    “Four studies [22,24,44,48] highlighted the need of training properly health professionals on existential and spiritual distress management, as well as the need to identify groups at risk and reassigning tasks among all family members.”

    From Quality of Life in Caregivers of Cancer Patients: A Literature Review (2023) · cites this paper as [24]

    The Discussion (page unavailable) identifies female caregivers as having lower quality-of-life scores and recommends interventions for the entire family, which partly supports identifying caregivers at risk and involving family members. It does not recommend reassigning tasks among family members or training health professionals specifically to manage existential and spiritual distress; its recommendation is to provide information and tools to patients and caregivers. (LLM, conf=0.84)

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  • Ten studies did not describe average age.

    “However, it must be highlighted that 10 studies did not describe average age [22,23,24,25,26,27,28,29,30,31].”
  • 10 studies described how the patients' disease process has affected the social interaction of caregivers, who manifest great difficulty in reconciling their role as caregivers and the development of other daily activities, highlighting deterioration of working conditions.

    “With regard to social aspects, 10 studies [24,25,27,31,32,41,49,53,54,55] described how the patients’ disease process has affected the social interaction of caregivers, who manifest a great difficulty in reconciling their role as caregivers and the development of other daily activities, highlighting the deterioration of working conditions.”
  • Care provision by caregivers of adults with cancer causes social problems, including difficulty reconciling caregiving with other activities, deterioration of working conditions, and less social event engagement.

    “Regarding social problems, review studies [24,25,27,31,32,41,49,53,54,55] described how social interactions of caregivers were affected to the point of finding it very difficult to reconcile their role of caregivers with the rest of activities, where deterioration of working conditions and lesser social event engagement were highlighted.”

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Cited by

Sorted by citations

Authors
Kilic, S. T., & Oz, F.
Venue
Asian Pacific Journal of Cancer Prevention
Published
2019-06-01
Volume
20
Issue
6
Pages
1735-1741
ISSN
  • 1513-7368 (ISSN-L)
  • 2476-762X
OpenAlex
W2953751218
Cited by
93
References
4
Citations by year
2026: 7 · 2025: 13 · 2024: 19 · 2023: 22 · 2022: 22 · 2021: 7 · 2020: 1 · 2019: 2
FWCI
15.32
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • Asian Pacific Journal of Cancer Prevention (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
family caregivers, cancer, caregiver quality of life, caregiver burden, sociodemographic factors, gender differences, employment status, income level, living arrangements, Turkey, chemotherapy patients
MeSH terms
Adaptation, Psychological, Adult, Family, Female, Follow-Up Studies, Health Services Needs and Demand, Home Nursing, Humans, Male, Middle Aged, Neoplasms, Prognosis, Quality of Life, Surveys and Questionnaires, Socioeconomic Factors, Turkey, Caregivers, Young Adult

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