The DOI matches its Crossref record; 2 of the 2 references it cites were found in a registry or an index.
Controlling Death: The False Promise of Advance Directives
Abstract
Advance directives promise patients a say in their future care but actually have had little effect. Many experts blame problems with completion and implementation, but the advance directive concept itself may be fundamentally flawed. Advance directives simply presuppose more control over future care than is realistic. Medical crises cannot be predicted in detail, making most prior instructions difficult to adapt, irrelevant, or even misleading. Furthermore, many proxies either do not know patients' wishes or do not pursue those wishes effectively. Thus, unexpected problems arise often to defeat advance directives, as the case in this paper illustrates. Because advance directives offer only limited benefit, advance care planning should emphasize not the completion of directives but the emotional preparation of patients and families for future crises. The existentialist Albert Camus might suggest that physicians should warn patients and families that momentous, unforeseeable decisions lie ahead. Then, when the crisis hits, physicians should provide guidance; should help make decisions despite the inevitable uncertainties; should share responsibility for those decisions; and, above all, should courageously see patients and families through the fearsome experience of dying.
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Cites
Quality End-of-Life Care: Patients' Perspectives
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“Of course, some highly motivated people do make end-of-life care plans (1).”
Background“Culture of Life” Politics at the Bedside — The Case of Terri Schiavo
Annas, G. J. (2005) · New England Journal of Medicine · doi:10.1056/nejmlim050643 · Cited by 151
Cited by
Detering, K. M., Hancock, A. D., Reade, M. C., & Silvester, W. (2010) · BMJ · doi:10.1136/bmj.c1345 · Cited by 2,332
The effects of advance care planning on end-of-life care: A systematic review
Brinkman-Stoppelenburg, A., Rietjens, J. A., & van der Heide, A. (2014) · Palliative Medicine · doi:10.1177/0269216314526272 · Cited by 1,480
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Quality of Life and Cost of Care at the End of Life: The Role of Advance Directives
Garrido, M. M., Balboni, T. A., Maciejewski, P. K., Bao, Y., & Prigerson, H. G. (2015) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2014.09.015 · Cited by 126
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Factors influencing the engagement of cancer patients with advance care planning: A scoping review
Spelten, E. R., Geerse, O., Vuuren, J., Timmis, J., Blanch, B., Duijts, S., & MacDermott, S. (2019) · European Journal of Cancer Care · doi:10.1111/ecc.13091 · Cited by 53
Involvement of the Dutch general population in advance care planning: a cross-sectional survey
Raijmakers, N. J. H., Rietjens, J. A. C., Kouwenhoven, P. S. C., Vezzoni, C., van Thiel, G. J. M. W., van Delden, J. J. M., & van der Heide, A. (2013) · Journal of Palliative Medicine · doi:10.1089/jpm.2012.0555 · Cited by 40
Frequency and clinical relevance of inconsistent code status documentation
Weinerman, A. S., Dhalla, I. A., Kiss, A., Etchells, E. E., Wu, R. C., & Wong, B. M. (2015) · Journal of Hospital Medicine · doi:10.1002/jhm.2348 · Cited by 27
Metadata
- Authors
- Perkins, H. S.
- Venue
- Annals of Internal Medicine
- Publisher
- American College of Physicians
- Published
- 2007-07-03
- Volume
- 147
- Issue
- 1
- Pages
- 51-57
- ISSN
- 0003-4819 (ISSN-L)
- 1539-3704
- OpenAlex
- W2029801535
- Cited by
- 326
- References
- 2
- FWCI
- 21.77
- Type
- journal article
- Language
- en
- Open access
- closed
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.