Cited by 58Dementia and Cognitive Impairment ResearchNursing care and researchIntergenerational Family Dynamics and Caregiving

A day in the life of caregivers to older adults with and without dementia: Comparisons of care time and emotional health

Open access
Freedman, Vicki A., Patterson, Sarah E., Cornman, Jennifer C., Wolff, Jennifer L.·2022·Alzheimer's & Dementia

Abstract

Introduction: How care‐related time and emotional health over the day differ for those assisting older adults with and without dementia is unclear. Methods: Using 2134 time diaries from the National Study of Caregiving, we compared emotional health and care time for caregivers of older adults with and without dementia. Results: Caregivers to older adults with dementia experienced worse (higher scores) on a composite measure of negative emotional health (4.2 vs 3.3; P < .05) and provided more physical/medical care (33.7 vs 16.2 minutes; P < .05) and less transportation assistance (12.6 vs 24.8 minutes; P < .05) than other caregivers. In models, providing physical/medical care was associated with worse emotional health (β = 0.15; P < .01) and socializing with the care recipient was associated with worse emotional health when the recipient had dementia (β = 0.28; P < .01). Discussion: Findings highlight the opportunity for targeted interventions to address the emotional consequences of different types of care time in the context of dementia.

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Crossref · 10.1002/alz.12550

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  • Dementia caregivers tend to provide more extensive assistance than caregivers of people with other conditions.

    “Although the care provided by family members of people with Alzheimer's or other dementias is somewhat similar to that provided by caregivers of people with other conditions, dementia caregivers tend to provide more extensive assistance.450”

    From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [450]

    The Results report that dementia caregivers spent about twice as much time on physical and medical care (34 vs. 16 minutes). But they spent less time on transportation, and the Discussion says the groups provided similar total amounts of care (2.8 vs. 2.6 hours). Thus, the paper supports more extensive assistance in specific tasks, not more assistance overall. (LLM, conf=0.85)

    Experimental — accuracy not yet measured
  • Providing physical and medical care is associated with worse mental health among dementia caregivers than among non-dementia caregivers.

    “Providing physical and medical care is associated with worse mental health among dementia caregivers than non-dementia caregivers.450”

    From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [450]

    The Results and Discussion (pages not provided) report worse emotional health and more time spent on physical and medical care among dementia caregivers. They also associate that care with worse emotional health in both groups, but do not show that the association is stronger for dementia caregivers, as the claim’s comparison suggests. (LLM, conf=0.84)

    Experimental — accuracy not yet measured
  • Compared with caregivers of people without dementia, caregivers of people with dementia report more substantial emotional, financial and physical difficulties.

    “Compared with caregivers of people without dementia, caregivers of those with dementia indicate more substantial emotional, financial and physical difficulties.406,450”

    From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [450]

    The Results report worse emotional health among caregivers of older adults with dementia than among other caregivers. The Discussion mentions greater emotional, physical, and financial difficulty for caregivers providing substantial health-care assistance, but that comparison is based on level of assistance, not whether the recipient has dementia. This paper does not establish the claimed dementia-group difference in physical or financial difficulties. (LLM, conf=0.88)

    Experimental — accuracy not yet measured
  • Compared with caregivers of people without dementia, caregivers of those with dementia indicate more substantial emotional, financial and physical difficulties.

    “Compared with caregivers of people without dementia, caregivers of those with dementia indicate more substantial emotional, financial and physical difficulties. 439 , 490”

    From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [490]

    The Results report worse emotional health among caregivers of older adults with dementia than among other caregivers. The Discussion says they provided more physical and medical care, but does not establish that they experienced greater physical or financial difficulty; its mention of those difficulties concerns caregivers providing substantial health-care assistance, not the dementia comparison. (LLM, conf=0.89)

    Experimental — accuracy not yet measured

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Authors
Freedman, V. A., Patterson, S. E., Cornman, J. C., & Wolff, J. L.
Affiliations
  • University of Michigan (US)
  • Jennifer C. Cornman Consulting Granville Ohio USA
  • Johns Hopkins University (US)
Corresponding author
Freedman, Vicki A.
Venue
Alzheimer's & Dementia
Publisher
Wiley
Published
2022-02
Volume
18
Issue
9
Pages
1650-1661
ISSN
  • 1552-5260 (ISSN-L)
  • 1552-5279
OpenAlex
W4210338359
Cited by
58
References
30
Citations by year
2026: 15 · 2025: 24 · 2024: 12 · 2023: 5 · 2022: 2
FWCI
7.01
Type
journal article
Language
en
Open access
Locations
  • Alzheimer s & Dementia (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
  • Deep Blue (University of Michigan) (submittedVersion)
Funders
  • Mayo Clinic
  • Commonwealth Fund
  • John A. Hartford Foundation
  • Hartford Foundation for Public Giving
  • Yale University
  • University of Michigan
  • Johns Hopkins University
  • Georgetown University
  • National Institute on Aging (R01AG054004, T32AG000221, P30AG066507)
  • Eunice Kennedy Shriver National Institute of Child Health and Human Development (P2CHD041028)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Keywords
dementia caregiving
MeSH terms
Aged, Dementia, Humans, Caregivers

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