Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers
Open accessAbstract
OBJECTIVES: To examine factors associated with caregiver burden from a multifactorial perspective by examining caregiver and care recipient characteristics and a full range of caregiving tasks. DESIGN: Nationally representative surveys of community‐dwelling older adults and their family caregivers residing in the United States. SETTING: 2011 National Health and Aging Trends Study and National Study of Caregiving. PARTICIPANTS: Community‐dwelling older adults and their family caregivers. MEASUREMENTS: Caregiver burden, comprising emotional, physical, and financial difficulties associated with caregiving. RESULTS: An estimated 14.9 million caregivers assisted 7.6 million care recipients. More than half of caregivers reported burden related to caregiving. In a multivariable regression model, caregivers who assisted with more activities of daily living and instrumental activities of daily living, health management tasks, and health system logistics were more likely to experience burden, as were female caregivers, adult child caregivers, caregivers in poor health, caregivers with anxiety symptoms, and those using respite care. Dementia was the only care recipient characteristic associated with burden. CONCLUSION: Caregiver characteristics and provision of caregiving tasks determine caregiver burden more than care recipient characteristics. Absence of an association between type of a care recipient's chronic conditions and burden, except for dementia, suggests that the tasks that caregivers who assist older adults with a variety of health conditions undertake shape the experience of caregiving. J Am Geriatr Soc 67:277–283, 2019.
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The spillover costs of MDD to adults living with individuals with MDD may be due to household members (e.g., adult children or spouse) tending to be primary caregivers for those with mental health conditions.
“The spillover costs of MDD to adults living with individuals with MDD may be due to a variety of reasons, including the fact that household members (e.g., adult children or spouse) tend to be primary caregivers for those with mental health conditions [35,36].”
From The Economic Burden of Adults with Major Depressive Disorder in the United States (2019) (2023) · cites this paper as [36]
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- Authors
- Riffin, C., Van Ness, P. H., Wolff, J. L., & Fried, T.
- Affiliations
- Weill Cornell Medicine (US)
- Department of Internal Medicine School of Medicine, Yale University New Haven Connecticut
- Johns Hopkins University (US)
- Yale University (US)
- Corresponding author
- Riffin, Catherine
- Venue
- Journal of the American Geriatrics Society
- Publisher
- Wiley
- Published
- 2018-11-19
- Volume
- 67
- Issue
- 2
- Pages
- 277-283
- ISSN
- 0002-8614 (ISSN-L)
- 1532-5415
- PMC
- PMC6367031
- OpenAlex
- W2900745305
- Cited by
- 238
- References
- 40
- Citations by year
- 2026: 26 · 2025: 56 · 2024: 34 · 2023: 43 · 2022: 26 · 2021: 26 · 2020: 23 · 2019: 4
- FWCI
- 26.27
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of the American Geriatrics Society (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (P30AG021342T32AG1934, U01 AG032947, T32AG1934)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Health Professions › General Health Professions › Aging, Elder Care, and Social Issues
- Keywords
- caregiver burden, family caregivers, informal caregivers, older adults, activities of daily living, instrumental activities of daily living, dementia, respite care, caregiver health, anxiety symptoms, adult child caregivers, gender differences in caregiving
- MeSH terms
- Activities of Daily Living, Aged, Aged, 80 and over, Chronic Disease, Dementia, Female, Humans, Male, Regression Analysis, United States, Caregivers, Cost of Illness, Adult Children, Compensation and Redress, Independent Living
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