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Cited by 268Childhood Cancer Survivors' Quality of LifeFamily Support in IllnessCancer survivorship and care

Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients

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Zebrack, Brad J., Block, Rebecca, Hayes‐Lattin, Brandon, Embry, Leanne, Aguilar, Christine, Meeske, Kathleen A., Li, Yun, Butler, Melissa +1 more·2013·Cancer
DOI 10.1002/cncr.27713
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Abstract

BACKGROUND: Adolescents and young adults (AYAs) with cancer demonstrate biomedical risks and psychosocial issues distinct from those of children or older adults. In this study, the authors examined and compared the extent to which AYAs treated in pediatric or adult oncology settings reported use of, and unmet need for, psychosocial support services. METHODS: Within 4 months of initial cancer diagnosis, 215 AYAs ages 14 to 39 years (99 from pediatric care settings and 116 from adult care settings; 75% response rate) were assessed for reporting use of information resources, emotional support services, and practical support services. Statistical analyses derived odds ratios and 95% confidence intervals for service use and unmet needs after controlling for race, employment/school status, sex, relationship status, severity of cancer, treatment, and treatment‐related side effects. RESULTS: AYAs ages 20 to 29 years were significantly less likely than teens and older patients ages 30 to 39 years to report using professional mental health services and were significantly more likely to report an unmet need with regard to cancer information, infertility information, and diet/nutrition information. Compared with teens who were treated in pediatric facilities, AYAs who were treated in adult facilities were more likely to report an unmet need for age‐appropriate Internet sites, professional mental health services, camp/retreats programs, transportation assistance, and complementary and alternative health services. CONCLUSIONS: Substantial proportions of AYAs are not getting their psychosocial care needs met. Bolstering psychosocial support staff and patient referral to community‐based social service agencies and reputable Internet resources may enhance care and improve quality of life for AYAs. Cancer 2013. © 2012 American Cancer Society.

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  • Because it is accessible everywhere at any time, the Make It Training enables patients with cancer to participate in psycho-oncological interventions regardless of barriers in the current healthcare system.

    “Because it is accessible everywhere at any time, the Make It Training enables patients with cancer to participate in psycho-oncological interventions regardless of barriers in the current healthcare system.60”

    From Web-based mindfulness and skills-based distress reduction for patients with cancer: study protocol of the multicentre, randomised, controlled confirmatory intervention trial Reduct (2022) · cites this paper as [60]

    The Discussion (page unavailable) identifies limited access to psychosocial services and suggests that age-appropriate Internet-based support programs may enhance care for adolescent and young adult patients. It does not discuss Make It Training, establish that it is accessible everywhere at any time, or show that patients can participate regardless of healthcare-system barriers. (LLM, conf=0.85)

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1 of the 34 references couldn’t be matched to a known paper.

Research works printed but not linked: 1

  1. National Cancer Institute. Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults With Cancer. A Report of the Adolescent and Young Adult Oncology Program Review Group. Bethesda, MD: National Institutes of Health; 2006.

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Authors
Zebrack, B. J., Block, R., Hayes‐Lattin, B., Embry, L., Aguilar, C., Meeske, K. A., Li, Y., Butler, M., & Cole, S.
Affiliations
  • University of Michigan (US)
  • Oregon Health & Science University (US)
  • The University of Texas at San Antonio Health Science Center (US)
  • University of Southern California (US)
  • University of Michigan–Dearborn (US)
  • HopeLab (US)
Corresponding author
Zebrack, Brad J.
ORCID
Venue
Cancer
Publisher
Wiley
Published
2012-06-28
Volume
119
Issue
1
Pages
201-214
ISSN
  • 0008-543X (ISSN-L)
  • 1097-0142
DOI
10.1002/cncr.27713
OpenAlex
W1595352978
Cited by
268
References
34
Citations by year
2026: 16 · 2025: 9 · 2024: 26 · 2023: 15 · 2022: 20 · 2021: 25 · 2020: 21 · 2019: 23 · 2018: 27 · 2017: 17 · 2016: 25 · 2015: 18 · 2014: 14 · 2013: 9 · 2012: 3
FWCI
12.34
Type
journal article
Language
en
Open access
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • Cancer (publishedVersion)
  • PubMed (publishedVersion)
  • Deep Blue (University of Michigan) (submittedVersion)
Funders
Hopelab Foundation
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Social Sciences › Sociology and Political Science › Family Support in Illness
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
Keywords
adolescent and young adult cancer, psychosocial support, unmet needs, mental health service utilization, cancer information needs, nutrition information, emotional support services
MeSH terms
Adolescent, Adult, Female, Humans, Male, Mental Health Services, Neoplasms, Patient Education as Topic, Prospective Studies, Social Support, Adolescent Health Services, Needs Assessment, Young Adult

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