Cited by 268Childhood Cancer Survivors' Quality of LifeFamily Support in IllnessCancer survivorship and care

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Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients

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Zebrack, Brad J., Block, Rebecca, Hayes‐Lattin, Brandon, Embry, Leanne, Aguilar, Christine, Meeske, Kathleen A., Li, Yun, Butler, Melissa, Cole, Steven·2013·Cancer

DOI 10.1002/cncr.27713

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Abstract

BACKGROUND: Adolescents and young adults (AYAs) with cancer demonstrate biomedical risks and psychosocial issues distinct from those of children or older adults. In this study, the authors examined and compared the extent to which AYAs treated in pediatric or adult oncology settings reported use of, and unmet need for, psychosocial support services. METHODS: Within 4 months of initial cancer diagnosis, 215 AYAs ages 14 to 39 years (99 from pediatric care settings and 116 from adult care settings; 75% response rate) were assessed for reporting use of information resources, emotional support services, and practical support services. Statistical analyses derived odds ratios and 95% confidence intervals for service use and unmet needs after controlling for race, employment/school status, sex, relationship status, severity of cancer, treatment, and treatment‐related side effects. RESULTS: AYAs ages 20 to 29 years were significantly less likely than teens and older patients ages 30 to 39 years to report using professional mental health services and were significantly more likely to report an unmet need with regard to cancer information, infertility information, and diet/nutrition information. Compared with teens who were treated in pediatric facilities, AYAs who were treated in adult facilities were more likely to report an unmet need for age‐appropriate Internet sites, professional mental health services, camp/retreats programs, transportation assistance, and complementary and alternative health services. CONCLUSIONS: Substantial proportions of AYAs are not getting their psychosocial care needs met. Bolstering psychosocial support staff and patient referral to community‐based social service agencies and reputable Internet resources may enhance care and improve quality of life for AYAs. Cancer 2013. © 2012 American Cancer Society.

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Emerging adulthood: A theory of development from the late teens through the twenties.
Arnett, J. J. (2000) · American Psychologist · doi:10.1037/0003-066x.55.5.469 · Cited by 16,843
SEER Cancer Statistics Review, 1975-2003
Ries, L. A. G., Harkins, D., Krapcho, M. F., Mariotto, A. B., Miller, B., Feuer, E. J., Clegg, L. X., Eisner, M. P., Horner, M., Howlader, N., et al. (2006) · Digital Archive @ GSU · Cited by 11,404
American Society of Clinical Oncology Recommendations on Fertility Preservation in Cancer Patients
Lee, S. J., Schover, L. R., Partridge, A. H., Patrizio, P., Wallace, W. H., Hagerty, K. L., Beck, L. N., Brennan, L. V., & Oktay, K. (2006) · Journal of Clinical Oncology · doi:10.1200/jco.2006.06.5888 · Cited by 2,046
Effects of exercise on breast cancer patients and survivors: a systematic review and meta-analysis
McNeely, M. L. (2006) · Canadian Medical Association Journal · doi:10.1503/cmaj.051073 · Cited by 1,080
Cancer Care for the Whole Patient
Institute of Medicine (2008) · National Academies Press eBooks · doi:10.17226/11993 · Cited by 715
Should Adolescents With Acute Lymphoblastic Leukemia Be Treated as Old Children or Young Adults? Comparison of the French FRALLE-93 and LALA-94 Trials
Boissel, N., Auclerc, M.-F., Lhéritier, V., Pérel, Y., Thomas, X., Leblanc, T. M., Rousselot, P. H., Cayuela, J., Gabert, J. A., Fegueux, N., et al. (2003) · Journal of Clinical Oncology · doi:10.1200/jco.2003.02.053 · Cited by 606
Cancer care for the whole patient: meeting psychosocial health needs
(2009) · Choice Reviews Online · doi:10.5860/choice.46-3276 · Cited by 576
What determines the outcomes for adolescents and young adults with acute lymphoblastic leukemia treated on cooperative group protocols? A comparison of Children's Cancer Group and Cancer and Leukemia Group B studies
Stock, W., La, M., Sanford, B. L., Bloomfield, C. D., Vardiman, J. W., Gaynon, P. S., Larson, R. A., & Nachman, J. B. (2008) · Blood · doi:10.1182/blood-2008-01-130237 · Cited by 533
Fatigue and Quality of Life Outcomes of Exercise During Cancer Treatment
Mock, V., Pickett, M., Ropka, M. E., Lin, E. M., Stewart, K. J., Rhodes, V. A., McDaniel, R. W., Grimm, P. M., Krumm, S. K., & McCorkle, R. C. (2001) · Cancer Practice · doi:10.1046/j.1523-5394.2001.009003119.x · Cited by 481
Psychosocial care of adolescent and young adult patients with cancer and survivors
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10.1002/1097-0142(19930515)71:10 <3463::AID-CNCR2820711753>3.0.CO;2-B · DOI
Palmer S, 2008, A Practice Framework for Working With 15‐25 Year‐Old Cancer Patients Treated Within the Adult Health Sector
National Cancer Institute, 2006, Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults With Cancer. A Report of the Adolescent and Young Adult Oncology Program Review Group
Chesler M, 1987, Childhood Cancer and the Family

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Authors: Zebrack, B. J., Block, R., Hayes‐Lattin, B., Embry, L., Aguilar, C., Meeske, K. A., Li, Y., Butler, M., & Cole, S.
Affiliations: University of Michigan (US)
Oregon Health & Science University (US)
The University of Texas at San Antonio Health Science Center (US)
University of Southern California (US)
University of Michigan–Dearborn (US)
HopeLab (US)
Corresponding author: Zebrack, Brad J.
ORCID: Zebrack, Brad J.
Block, Rebecca
Hayes‐Lattin, Brandon
Embry, Leanne
Aguilar, Christine
Li, Yun
Venue: Cancer
Publisher: Wiley
Published: 2012-06-28
Volume: 119
Issue: 1
Pages: 201-214
ISSN: 0008-543X (ISSN-L)
1097-0142
DOI: 10.1002/cncr.27713
OpenAlex: W1595352978
Cited by: 268
References: 34
Citations by year: 2026: 16 · 2025: 9 · 2024: 26 · 2023: 15 · 2022: 20 · 2021: 25 · 2020: 21 · 2019: 23 · 2018: 27 · 2017: 17 · 2016: 25 · 2015: 18 · 2014: 14 · 2013: 9 · 2012: 3
FWCI: 12.34
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: Cancer (publishedVersion)
PubMed (publishedVersion)
Deep Blue (University of Michigan) (submittedVersion)
Funders: Hopelab Foundation
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Keywords: adolescent and young adult cancer, psychosocial support, unmet needs, mental health service utilization, cancer information needs, nutrition information, emotional support services
MeSH terms: Adolescent, Adult, Female, Humans, Male, Mental Health Services, Neoplasms, Patient Education as Topic, Prospective Studies, Social Support, Adolescent Health Services, Needs Assessment, Young Adult

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Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients

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