Support service use and interest in support services among distressed family caregivers of lung cancer patients
Open accessAbstract
Objective: This study examined support service use and interest in support services among distressed family caregivers of patients recently entering comprehensive cancer care facilities. Methods: Primary family caregivers of lung cancer patients (N = 83) were recruited from three medical centers within 12 weeks of the patient's new visit to the oncology clinic. All family caregivers were screened for psychological distress, and those reporting significant anxiety or depressive symptoms were eligible for this study. Caregivers completed a baseline assessment of support service use (i.e., use of mental health services and complementary and alternative medicine [CAM]) and interest in support services. Support service use was also assessed 3 months later. Results: Although all caregivers reported clinically meaningful distress, only 26% used mental health and 39% used CAM services during the 3‐month study period. Patients' receipt of chemotherapy was positively associated with caregivers' mental health service use, whereas greater education and receiving assistance with caregiving tasks were associated with CAM use. Forty percent of caregivers who did not use CAM at baseline were interested in CAM. In addition, 29% of caregivers who did not receive mental health services at baseline were interested in professional psychosocial support, and 29% of caregivers who did not receive staff assistance with practical needs at baseline were interested in this service. Conclusions: Findings suggest that distressed family caregivers of lung cancer patients underuse mental health services and that a sizable minority are interested in professional help with psychosocial and practical needs. Copyright © 2012 John Wiley & Sons, Ltd.
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Partners' baseline distress was relatively low compared to previous studies, leaving less room for improvement in the primary outcome.
“Second, partners’ baseline distress was relatively low when compared to the results of previous studies (e.g., [39]), leaving less room for improvement in the primary outcome [40].”
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“A prior study conducted among lung cancer patients’ family caregivers in the US found that caregivers with clinically meaningful psychological distress did not utilize support services [28].”
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“Greater levels of education (mean of 15 years) were also associated with the use of mental health services and complementary and alternative medicine methods to reduce caregiver burden (48).”
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“Mosher and colleagues stressed that nearly three quarters of the caregivers of lung cancer patients reported one or more adverse economic or social changes since the patient’s illness (Mosher et al., 2013a).”
BackgroundSupport for family members in routine outpatient colorectal cancer care
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Assessing Family Caregiver Communication in Chronic Illness: Validation of the FCCT-CI
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Caregivers and Clinical Health Psychology
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“Yet, despite broad availability of supportive care resources at cancer centers and at the community and national level, uptake of these supportive care services among lung cancer caregivers is low [24–26].”
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- Authors
- Mosher, C. E., Champion, V. L., Hanna, N., Jalal, S. I., Fakiris, A. J., Birdas, T. J., Okereke, I. C., Kesler, K. A., Einhorn, L. H., Given, B. A., Monahan, P. O., & Ostroff, J. S.
- Affiliations
- Indiana University Indianapolis (US)
- University of North Carolina at Chapel Hill (US)
- Michigan State University (US)
- Memorial Sloan Kettering Cancer Center (US)
- Corresponding author
- Mosher, Catherine E.
- ORCID
- Venue
- Psycho-Oncology
- Publisher
- Wiley
- Published
- 2012-09-03
- Volume
- 22
- Issue
- 7
- Pages
- 1549-1556
- ISSN
- 1057-9249 (ISSN-L)
- 1099-1611
- PMC
- PMC3535684
- OpenAlex
- W2145525450
- Cited by
- 65
- References
- 35
- Citations by year
- 2026: 4 · 2025: 3 · 2024: 5 · 2023: 4 · 2022: 7 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 7 · 2017: 7 · 2016: 5 · 2015: 3 · 2014: 6
- FWCI
- 6.73
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Psycho-Oncology (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- IUScholarWorks (Indiana University) (submittedVersion)
- Purdue University Indianapolis (Indiana University) (submittedVersion)
- Funders
- NCI (R03CA139862, F32CA130600)
- NCRR (KL2 RR025760)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- family caregivers, lung cancer, caregiver distress, mental health services, complementary and alternative medicine, psychosocial support, caregiver education, chemotherapy, help-seeking
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Aged, 80 and over, Complementary Therapies, Follow-Up Studies, Health Surveys, Humans, Lung Neoplasms, Mental Health, Mental Health Services, Psychiatric Status Rating Scales, Social Support, Socioeconomic Factors, Stress, Psychological, Multivariate Analysis, Logistic Models, Caregivers
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