The impact of childhood cancer on parents’ socio-economic situation—A systematic review
Open accessAbstract
OBJECTIVE: Taking care of children diagnosed with cancer may have considerable consequences on parents' socio-economic situation. Our systematic review aimed to evaluate and synthesise the evidence on the impact of childhood cancer on parents' socio-economic situation. METHODS: Systematic literature searches for articles published between January 2000 and January 2019 were performed in PubMed, Scopus, and PsycINFO. Findings of eligible articles were narratively synthesised and quality appraised. RESULTS: Our systematic review included 35 eligible articles. Childhood cancer had a substantial impact on parents' socio-economic situation across all studies. This impact varied largely by geographical region. We observed a high prevalence of disruptions in parental employment such as job quitting or job loss, particularly among mothers. The associated income losses further contributed to families' perceived financial burden in addition to increased cancer-related expenses. Adverse socio-economic consequences were most pronounced shortly after diagnosis, however, persisted into early survivorship for certain groups of parents. We identified families of children diagnosed with haematological cancers, younger age at diagnosis, and lower parental socio-economic position to be at particular risk for adverse socio-economic consequences. CONCLUSIONS: Following the child's cancer diagnosis, parents experience a broad range of adverse socio-economic consequences. Further effort is needed to systematically implement an assessment of financial hardship in paediatric oncology together with appropriate support services along the cancer trajectory.
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Families in rural or remote settings experience more cancer-related financial impacts than metropolitan families.
“Families in rural or remote settings have less access to psychosocial support [9,10] and experience more cancer-related financial impacts [11] than metropolitan families”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [11]
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- Authors
- Roser, K., Erdmann, F., Michel, G., Winther, J. F., & Mader, L.
- Affiliations
- University of Lucerne (CH)
- Danish Cancer Society (DK)
- Aarhus University (DK)
- Corresponding author
- Mader, Luzius
- Venue
- Psycho-Oncology
- Publisher
- Wiley
- Published
- 2019-05-08
- Volume
- 28
- Issue
- 6
- Pages
- 1207-1226
- ISSN
- 1057-9249 (ISSN-L)
- 1099-1611
- OpenAlex
- W2940341374
- Cited by
- 110
- References
- 74
- Citations by year
- 2026: 12 · 2025: 16 · 2024: 18 · 2023: 19 · 2022: 15 · 2021: 20 · 2020: 10
- FWCI
- 3.12
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Psycho-Oncology (publishedVersion)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- Funders
- Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung (P2LUP3_175288 to LM)
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Economic and Financial Impacts of Cancer
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- childhood cancer, job loss, income loss, financial burden, hematologic cancer, childhood cancer survivorship, mothers
- MeSH terms
- Adverse Childhood Experiences, Adult, Child, Humans, Neoplasms, Parents, Social Class
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