Standards of psychosocial care for parents of children with cancer

Kearney, Julia A.; Salley, Christina G.; Muriel, Anna C.

doi:10.1002/pbc.25761

Cited by 356Childhood Cancer Survivors' Quality of LifeFamily Support in IllnessCancer survivorship and care

Standards of psychosocial care for parents of children with cancer

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Kearney, Julia A., Salley, Christina G., Muriel, Anna C.·2015·Pediatric Blood & Cancer

DOI 10.1002/pbc.25761PMC PMC5066591

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Abstract

Parents and caregivers of children with cancer are both resilient and deeply affected by the child's cancer. A systematic review of published research since 1995 identified 138 studies of moderate quality indicating that parent distress increases around diagnosis, then returns to normal levels. Post-traumatic symptoms are common. Distress may be impairing for vulnerable parents and may impact a child's coping and adjustment. Moderate quality evidence and expert consensus informed a strong recommendation for parents and caregivers to receive early and ongoing assessment of their mental health needs with access to appropriate interventions facilitated to optimize parent, child, and family well being.

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International standards of care state that parents should have early and ongoing access to psychosocial support and evidence-based interventions throughout their child's cancer trajectory.
“Given parents’ risk of psychological difficulties, international standards of care state that parents should have early and ongoing access to psychosocial support and evidence-based interventions throughout their child’s cancer trajectory [21].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [21]
The Discussion (page unavailable) recommends early and ongoing assessment of parents’ mental health needs and facilitating access to appropriate interventions. It does not specify early and ongoing access to evidence-based interventions throughout the child’s cancer trajectory; it notes that evidence-based interventions are not yet routinely available. (LLM, conf=0.86)
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[8]Wiener L Special Considerations in Working with Families Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management Wiener L Pao M 2009 International Psychosocial Oncology Press
[12]Kremer L Leclercq E van Dalen E Cochrane About The Cochrane Collaboration (Cochrane Review Groups (CRGs)) 2014
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[93]Kupst MJ Patenaude AF Coping with Pediatric Cancer Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management Wiener LS 2009 International Psychosocial Oncology Press Charlottsville, VA

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Authors: Kearney, J. A., Salley, C. G., & Muriel, A. C.
Affiliations: Memorial Sloan Kettering Cancer Center (US)
Boston Children's Hospital (US)
Corresponding author: Kearney, Julia A.
ORCID: Kearney, Julia A.
Salley, Christina G.
Muriel, Anna C.
Venue: Pediatric Blood & Cancer
Publisher: Wiley
Published: 2015-12
Volume: 62
Issue: S5
Pages: S632-83
ISSN: 1545-5009 (ISSN-L)
1545-5017
DOI: 10.1002/pbc.25761
PMC: PMC5066591
OpenAlex: W2267098927
Cited by: 356
References: 132
Citations by year: 2026: 23 · 2025: 37 · 2024: 41 · 2023: 33 · 2022: 51 · 2021: 44 · 2020: 35 · 2019: 40 · 2018: 22 · 2017: 20 · 2016: 6 · 2015: 2
FWCI: 2.54
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor, 22 d)
Locations: Pediatric Blood & Cancer (publishedVersion)
PubMed (publishedVersion)
PubMed Central (acceptedVersion)
Funders: Memorial Sloan-Kettering Cancer Center
Royal Bank of Canada
National Cancer Institute (P30CA008748)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
Social Sciences › Sociology and Political Science › Family Support in Illness
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Keywords: psychosocial care, parents of children with cancer, caregiver distress, post-traumatic stress, mental health assessment, early intervention, family well-being, childhood cancer
MeSH terms: Child, Humans, Neoplasms, Parents, Psychology, Stress, Psychological, Standard of Care

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