Dementia care navigation: Building toward a common definition, key principles, and outcomes
Open accessAbstract
INTRODUCTION: As the complexity of medical treatments and patient care systems have increased, the concept of patient navigation is growing in both popularity and breadth of application. Patient navigators are trained personnel whose role is not to provide clinical care, but to partner with patients to help them identify their needs and goals and then overcome modifiable patient‐, provider‐, and systems‐level barriers. Due to its high incidence, duration, and medical–social complexity, dementia is an ideal candidate for a patient‐centric health care delivery model such as care navigation. METHODS: The Alzheimer's Association formed an expert workgroup of researchers in the field of dementia care navigation to identify evidence‐based guidelines. RESULTS: Recognizing the unique and challenging needs of persons living with dementia and their care partners, several U.S. dementia care navigation programs have been developed and assessed in recent years. Collectively these programs demonstrate that persons living with dementia and their care partners benefit from dementia care navigation. Improved care system outcomes for the person living with dementia include reduced emergency department visits, lower hospital readmissions, fewer days hospitalized, and shorter delays in long‐term care placement. Well‐being is also increased, as there is decreased depression, illness, strain, embarrassment, and behavioral symptoms and increased self‐reported quality of life. For care partners, dementia navigation resulted in decreased depression, burden, and unmet needs. DISCUSSION: This article presents principles of dementia care navigation to inform existing and emerging dementia care navigation programs. Highlights: Several U.S. dementia care navigation programs have demonstrated outcomes for persons living with dementia, care partners, and health systems. The Alzheimer's Association formed an expert workgroup of researchers in the field of dementia care navigation to create a shared definition and identify evidence‐based guidelines or principles. These outlined principles of dementia care navigation can inform existing and emerging dementia care navigation programs.
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Depending on the setting, what is defined as dementia care navigation in this Special Report may also be called memory care navigation, care navigation, a navigator program, dementia navigation or not have terminology at all, but simply be services provided to patients.
“Depending on the setting, what is defined as dementia care navigation in this Special Report may also be called memory care navigation, care navigation, a navigator program, dementia navigation or not have terminology at all, but simply be services provided to patients. 986 , 988”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [986]
The Introduction’s “Dementia care navigation programs” section groups programs with different names under dementia care navigation and notes variation across settings. It does not establish the claimed list of alternative terms or say that such services may have no terminology at all. (LLM, conf=0.78)
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- [33]Freeman HP. The origin, evolution, and principles of patient navigation. Cancer Epidemiol Biomarkers Prev. 2012; 21(10): 1614‐ 1617. doi: 10.1158/1055-9965.epi-12-0982 23045534 · DOI
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2024 Alzheimer's disease facts and figures
(2024) · Alzheimer's & Dementia · doi:10.1002/alz.13809 · Cited by 2,536 · see citing works
- Authors
- Kallmyer, B. A., Bass, D., Baumgart, M., Callahan, C. M., Dulaney, S., Evertson, L. C., Fazio, S., Judge, K. S., & Samus, Q.
- Affiliations
- Alzheimer's Association (US)
- Benjamin Rose Institute on Aging (US)
- Indiana University School of Medicine (US)
- University of California, San Francisco (US)
- University of California, Los Angeles (US)
- Cleveland State University (US)
- Johns Hopkins University (US)
- Corresponding author
- Fazio, Sam
- Venue
- Alzheimer's & Dementia: Translational Research & Clinical Interventions
- Publisher
- Wiley
- Published
- 2023-07
- Volume
- 9
- Issue
- 3
- Pages
- e12408-e12408
- ISSN
- 2352-8737 (ISSN-L)
- PMC
- PMC10392594
- OpenAlex
- W4385445185
- Cited by
- 40
- References
- 38
- Citations by year
- 2026: 9 · 2025: 18 · 2024: 9 · 2023: 4
- FWCI
- 1.83
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Alzheimer s & Dementia Translational Research & Clinical Interventions (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- IUScholarWorks (Indiana University) (submittedVersion, cc-by-nc)
- eScholarship (California Digital Library) (submittedVersion, cc-by-nc)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- National Institute on Aging (P30AG066507)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- patient navigation, care partners, caregiver burden, emergency department visits, hospital readmission, long-term care placement, quality of life, behavioral symptoms, depression, health care delivery, evidence-based recommendations
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