The Role of Care Navigators Working with People with Dementia and Their Caregivers
Open accessAbstract
Background: Care navigation is an approach to personalized care management and care coordination that can help overcome barriers to care. Care navigation has not been extensively studied in dementia, where health care workforce innovations are needed as a result of increasing disease prevalence and resulting costs to the health care system. Objective: To identify facilitators and barriers to care navigation in dementia and to assess dementia caregiver satisfaction with care navigation. Methods: Methods include qualitative research (interviews, focus groups, observations) with “Care Team Navigators” (CTNs) who were part of a dementia care navigation program, the Care Ecosystem, and a quantitative survey with caregivers about their experiences with CTNs. Transcripts were analyzed to identify themes within the data. Results: CTNs identified the following facilitators to care navigation in dementia: working closely with caregivers; providing emotional support; tailoring education and resources; and coordinating with a clinical team around issues ranging from clinical questions to financial and legal decision-making. The barriers CTNS identified included burn-out, the progressive nature of the disease; coordinating with primary care providers; and identifying resources for dyads who are low-income, do not speak English, or live in rural areas. Caregivers across both sites highly rated CTNs, though satisfaction was higher among those in Nebraska and Iowa. Conclusions: Innovative approaches to care delivery in dementia are crucial. Care navigation offers a feasible model to train unlicensed people to deliver care as a way to deliver larger-scale support for the growing population of adults living with dementia and their caregivers.
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Evidence suggests that the primary recipients of navigation services are caregivers.
“evidence suggests that the primary recipients of navigation services are caregivers. 983”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [983]
The Discussion says that, in dementia care, navigators work primarily with caregivers to address both patient and caregiver needs. The claim omits that dementia-specific qualification; the paper describes navigation in other diseases as more patient-focused. (LLM, conf=0.86)
Experimental — accuracy not yet measuredCare navigators, including dementia care navigators, frequently share the racial, ethnic or cultural background of those they assist, enhancing the delivery of culturally competent care and building stronger patient-navigator relationships.
“Care navigators, including dementia care navigators, frequently share the racial, ethnic or cultural background of those they assist, enhancing the delivery of culturally competent care and building stronger patient‐navigator relationships. 983 , 987”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [983]
The Background (page unavailable) says care navigation can help overcome cultural and language barriers, and the Results, Theme 3 (page unavailable), links sustained contact with stronger caregiver–navigator relationships. But the paper does not say navigators frequently share patients’ racial, ethnic, or cultural backgrounds, or that shared background improves care or relationships. (LLM, conf=0.82)
Experimental — accuracy not yet measuredThe non-clinical Care Team Navigator (CTN) role has been utilized in a range of health care settings and more recently tested in dementia care.
“A related example is the non-clinical Care Team Navigator (CTN) role that has been utilized in a range of health care settings and more recently tested in dementia care.702”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [702]
Dementia caregivers frequently look to care navigators for emotional support.
“dementia caregivers frequently look to care navigators for emotional support. 983”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [983]
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- Authors
- Bernstein, A., Harrison, K. L., Dulaney, S., Merrilees, J., Bowhay, A., Heunis, J., Choi, J., Feuer, J. E., Clark, A. M., Chiong, W., Lee, K., Braley, T. L., Bonasera, S. J., Ritchie, C. S., Dohan, D., Miller, B. L., & Possin, K. L.
- Affiliations
- University of California
- University of California, San Francisco (US)
- Home Instead Center for Successful Aging
- ORCID
- Venue
- Journal of Alzheimer’s Disease
- Publisher
- SAGE Publications
- Published
- 2019-07-16
- Volume
- 71
- Issue
- 1
- Pages
- 45-55
- ISSN
- 1387-2877 (ISSN-L)
- 1875-8908
- PMC
- PMC7004209
- OpenAlex
- W2960198420
- Cited by
- 67
- References
- 37
- Citations by year
- 2026: 4 · 2025: 10 · 2024: 13 · 2023: 12 · 2022: 17 · 2021: 9 · 2020: 1 · 2019: 1
- FWCI
- 5.57
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Alzheimer s Disease (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- National Institutes of Health (KL2TR001870)
- University of California, San Francisco
- National Institute on Aging (L30 AG060590, R01AG056715)
- National Center for Advancing Translational Sciences
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- care navigation, dementia
- MeSH terms
- Adult, Aged, Consumer Behavior, Dementia, Female, Health Services Accessibility, Humans, Interviews as Topic, Male, Surveys and Questionnaires, Caregivers, Focus Groups, Patient Navigation
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