Individual-patient monitoring in clinical practice: are available health status surveys adequate?
Abstract
Interest has increased in recent years in incorporating health status measures into clinical practice for use at the individual-patient level. We propose six measurement standards for individual-patient applications: (1) practical features, (2) breadth of health measured, (3) depth of health measured, (4) precision for cross-sectional assessment, (5) precision for longitudinal monitoring and (6) validity. We evaluate five health status surveys (Functional Status Questionnaire, Dartmouth COOP Poster Charts, Nottingham Health Profile, Duke Health Profile, and SF-36 Health Survey) that have been proposed for use in clinical practice. We conducted an analytical literature review to evaluate the six measurement standards for individual-patient applications across the five surveys. The most problematic feature of the five surveys was their lack of precision for individual-patient applications. Across all scales, reliability standards for individual assessment and monitoring were not satisfied, and the 95% CIs were very wide. There was little evidence of the validity of the five surveys for screening, diagnosing, or monitoring individual patients. The health status surveys examined in this paper may not be suitable for monitoring the health and treatment status of individual patients. Clinical usefulness of existing measures might be demonstrated as clinical experience is broadened. At this time, however, it seems that new instruments, or adaptation of existing measures and scaling methods, are needed for individual-patient assessment and monitoring.
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Floor and ceiling effects are considered present if more than 15% of respondents achieved the lowest or highest possible score, respectively.
“I considered floor and ceiling effects to be present if more than 15% of respondents achieved the lowest or highest possible score, respectively72.”
From A systematic review of AI literacy scales (2024) · cites this paper as [72]
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- Authors
- McHorney, C. A., & Tarlov, A. R.
- Affiliations
- University of Wisconsin–Madison (US)
- Tufts University (US)
- ORCID
- McHorney, C. A.
- Venue
- Quality of Life Research
- Published
- 1995-08
- Volume
- 4
- Issue
- 4
- Pages
- 293-307
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2069398327
- Cited by
- 2,206
- References
- 146
- Citations by year
- 2026: 89 · 2025: 121 · 2024: 154 · 2023: 132 · 2022: 138 · 2021: 159 · 2020: 156 · 2019: 127 · 2018: 93 · 2017: 85 · 2016: 95 · 2015: 75 · 2014: 92 · 2013: 75 · 2012: 64
- FWCI
- 48.20
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Social Sciences › Education › Health Education and Validation
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
- Keywords
- health status survey, health-related quality of life measurement, measurement standards, reliability statistics, validity, Nottingham Health Profile, Duke Health Profile, SF-36 Health Survey, long-term monitoring, screening and diagnosis
- MeSH terms
- Health Status Indicators, Health Surveys, Humans, Sensitivity and Specificity, Reproducibility of Results, Outcome Assessment, Health Care
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