A Profile of Care Coordination, Missed School Days, and Unmet Needs Among Oregon Children with Special Health Care Needs with Behavioral and Mental Health Conditions
Open accessAbstract
To inform Oregon's Title V needs assessment activities, we aimed to (1) characterize the state's subpopulation of children with special health care needs (CSHCN) with behavioral and mental health conditions (B/MHC) and (2) determine associations of care coordination with missed school days and unmet needs for this subpopulation. We analyzed 2009-2010 National Survey of Children with Special Health Care Needs data on 736 Oregon CSHCN < 18 years, including 418 CSHCN with B/MHC. Among Oregon CSHCN with B/MHC: 48.9% missed ≥ 4 school days, 25% had ≥ 1 unmet health services need, and 14.8% had ≥ 1 unmet family support services need. Care coordination was associated with lower adjusted odds of ≥ 1 unmet health services need but was not significantly associated with missed school days or unmet family support services need. The approach to identify Oregon CSHCN with B/MHC may be adopted by other states endeavoring to improve health for this vulnerable subpopulation.
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Assistance in care coordination across services can play a critical role in accessing adequate care for these children.
“can play a critical role in accessing adequate care for these children (Lindly et al., 2020).”
From Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children (2026) · cites this paper as Lindly et al., 2020
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Purposeful selection of variables in logistic regression
Bursac, Z., Gauss, C. H., Williams, D. K., & Hosmer, D. W. (2008) · Source Code for Biology and Medicine · doi:10.1186/1751-0473-3-17 · Cited by 4,035 · see citing works
Finn, J. D. (1989) · Review of Educational Research · doi:10.2307/1170412 · Cited by 2,702 · see citing works
Trends in the prevalence of developmental disabilities in US children, 1997-2008
Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumberg, S. J., Yeargin-Allsopp, M., Visser, S., & Kogan, M. D. (2011) · Pediatrics · doi:10.1542/peds.2010-2989 · Cited by 1,732 · see citing works
A New Definition of Children With Special Health Care Needs
McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998) · Pediatrics · doi:10.1542/peds.102.1.137 · Cited by 1,487 · see citing works
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008) · PEDIATRICS · doi:10.1542/peds.2008-1057 · Cited by 625 · see citing works
Boulet, S. L., Boyle, C. A., & Schieve, L. A. (2009) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpediatrics.2008.506 · Cited by 337 · see citing works
The Pediatric Alliance for Coordinated Care: Evaluation of a Medical Home Model
Palfrey, J. S., Sofis, L. A., Davidson, E. J., Liu, J., Freeman, L., & Ganz, M. L. (2004) · PEDIATRICS · doi:10.1542/peds.113.s4.1507 · Cited by 289 · see citing works
Schieve, L. A., Gonzalez, V., Boulet, S. L., Visser, S. N., Rice, C. E., Braun, K. V. N., & Boyle, C. A. (2012) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2011.10.008 · Cited by 273 · see citing works
Fiscella, K., & Kitzman, H. (2009) · Pediatrics · doi:10.1542/peds.2008-0533 · Cited by 224 · see citing works
Bramlett, M. D., Read, D., Bethell, C. D., & Blumberg, S. J. (2008) · Maternal and Child Health Journal · doi:10.1007/s10995-008-0339-z · Cited by 151 · see citing works
Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes
Turchi, R. M., Berhane, Z., Bethell, C. D., Pomponio, A. D., Antonelli, R. C., & Minkovitz, C. S. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255o · Cited by 147 · see citing works
Children's health and social mobility.
Case, A., & Paxson, C. H. (2006) · The Future of Children · doi:10.1353/foc.2006.0014 · Cited by 128 · see citing works
Health and School Outcomes During Children's Transition Into Adolescence
Forrest, C. B., Bevans, K. B., Riley, A. W., Crespo, R., & Louis, T. A. (2013) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2012.06.019 · Cited by 117 · see citing works
Validation of a Parent-Reported Experience Measure of Integrated Care
Ziniel, S. I., Rosenberg, H., Bach, A. M., Singer, S. J., & Antonelli, R. C. (2015) · PEDIATRICS · doi:10.1542/peds.2016-0676 · Cited by 74 · see citing works
Need and Unmet Need for Care Coordination Among Children With Mental Health Conditions
Brown, N. M., Green, J. C., Desai, M. M., Weitzman, C. C., & Rosenthal, M. S. (2014) · Pediatrics · doi:10.1542/peds.2013-2590 · Cited by 69 · see citing works
Use of Complementary and Alternative Medical Therapies Among Youth With Mental Health Concerns
Kemper, K. J., Gardiner, P. M., & Birdee, G. S. (2013) · Academic Pediatrics · doi:10.1016/j.acap.2013.05.001 · Cited by 60 · see citing works
Lindly, O. J., Chavez, A. E., & Zuckerman, K. E. (2016) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000363 · Cited by 60 · see citing works
Self-citationOregon’s Medicaid Coordinated Care Organizations
McConnell, K. J. (2016) · JAMA · doi:10.1001/jama.2016.0206 · Cited by 60 · see citing works
Litt, J. S., & McCormick, M. C. (2015) · Academic Pediatrics · doi:10.1016/j.acap.2014.08.006 · Cited by 59 · see citing works
Functional Difficulties and Health Conditions Among Children With Special Health Needs
Lollar, D. J., Hartzell, M. S., & Evans, M. A. (2012) · PEDIATRICS · doi:10.1542/peds.2011-0780 · Cited by 58 · see citing works
Bethell, C. D., Forrest, C. B., Stumbo, S. P., Gombojav, N., Carle, A. C., & Irwin, C. E. (2012) · Maternal and Child Health Journal · doi:10.1007/s10995-012-0993-z · Cited by 54 · see citing works
Family Impacts Among Children With Autism Spectrum Disorder: The Role of Health Care Quality
Zuckerman, K. E., Lindly, O. J., Bethell, C. D., & Kuhlthau, K. A. (2014) · Academic Pediatrics · doi:10.1016/j.acap.2014.03.011 · Cited by 50 · see citing works
Self-citationNageswaran, S., Parish, S. L., Rose, R. A., & Grady, M. D. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-010-0597-4 · Cited by 40 · see citing works
Perrin, J. M. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002
Flagged first, then by citations
1 of the 26 references couldn’t be matched to a known paper.
Research works printed but not linked: 1
- Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, & Newacheck PW (2002). Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambulatory Pediatrics, 2(1), 38– 48. 11888437
Cited by
Sorted by citations
Srinivasan, S. M., Ekbladh, A., Freedman, B. H., & Bhat, A. N. (2021) · Autism Research · doi:10.1002/aur.2514 · Cited by 49 · see citing works
Casacio, G. D. D. M., Ferrari, R. A. P., Zilly, A., & da Silva, R. M. M. (2022) · Revista gaúcha de enfermagem · doi:10.1590/1983-1447.2022.20210115.pt · Cited by 7 · see citing works
Nonoyama, T., Tamakoshi, K., & Niinomi, K. (2025) · Japan Journal of Nursing Science · doi:10.1111/jjns.70012 · Cited by 5 · see citing works
Therapeutic itinerary of children with special health care needs: analysis guided by care systems
Casacio, G. D. D. M., Ferrari, R. A. P., Zilly, A., & da Silva, R. M. M. (2022) · Revista gaúcha de enfermagem · doi:10.1590/1983-1447.2022.20210115.en · Cited by 4 · see citing works
Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children
Graaf, G., Gigli, K., Hughes, P., & Thomas, K. C. (2026) · Child and Adolescent Social Work Journal · doi:10.1007/s10560-026-01101-w
Family Engagement in Systems of Care
Graaf, G., & Sweeney, M. (2023) · Springer series on child and family studies · doi:10.1007/978-3-031-47917-5_8
Uzoaru, F., Preston, M. A., Loux, T. M., & Ross, L. (2026) · Healthcare · doi:10.3390/healthcare14050684
Amedari, M. I., Heaton, L. J., Dobbs, T., Ivey, K., Agbonlahor, O., & Walker, B. H. (2026) · Preventive Medicine Reports · doi:10.1016/j.pmedr.2026.103482
- Authors
- Lindly, O. J., Martin, A. J., & Lally, K.
- Affiliations
- Northern Arizona University (US)
- Portland State University (US)
- Yale University (US)
- Corresponding author
- Lindly, Olivia J.
- ORCID
- Lindly, Olivia J.
- Venue
- Community Mental Health Journal
- Published
- 2020-04-01
- Volume
- 56
- Issue
- 8
- Pages
- 1571-1580
- ISSN
- 0010-3853 (ISSN-L)
- 1573-2789
- PMC
- PMC7529671
- OpenAlex
- W3015064596
- Cited by
- 8
- References
- 26
- Citations by year
- 2026: 3 · 2025: 1 · 2023: 1 · 2022: 2 · 2021: 1
- FWCI
- 1.42
- Type
- journal article
- Language
- en
- Open access
- green
- europepmc.org
- Locations
- Community Mental Health Journal (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- PDXScholar (Portland State University) (submittedVersion)
- Funders
- Agency for Healthcare Research and Quality (T32HS000063)
- Health Resources and Services Administration (GS10F0261K)
- National Institute on Minority Health and Health Disparities (U54MD012388)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Health Sciences › Health Professions › Speech and Hearing › School Health and Nursing Education
- Keywords
- care coordination, children with special health care needs, missed school days, family support services, Oregon, National Survey of Children with Special Health Care Needs
- MeSH terms
- Child, Health Services Accessibility, Health Services Needs and Demand, Humans, Mental Health, Oregon, Schools, United States, Health Care Surveys, Disabled Children, Children with Disabilities, Needs Assessment
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