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A Scoping Review of Health Disparities in Autism Spectrum Disorder
Open accessAbstract
Individuals with autism spectrum disorder (ASD) experience increased morbidity and decreased life expectancy compared to the general population, and these disparities are likely exacerbated for those individuals who are otherwise disadvantaged. We conducted a review to ascertain what is known about health and health system quality (e.g., high quality care delivery, adequate care access) disparities in ASD. Nine studies met final inclusion criteria. Seven studies identified racial disparities in access to general medical services for children with ASD. No studies examined disparities in health outcomes or included older adults. We present a model of health disparities (Fundamental Causes Model) that guides future research. Additional work should examine health disparities, and their causal pathways, in ASD, particularly for older adults.
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“Language barriers are not the only issue that contributes to health inequities, and much has been written about these factors that are collectively known as social determinants of health [59-62]”
From Technology enabled clinical care (TECC): Protocol for a prospective longitudinal cohort study of smartphone-augmented mental health treatment (2021) · cites this paper as [59]
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Cites
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000097 · Cited by 64,042
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement.
(2009) · PubMed Central · Cited by 44,859
Scoping studies: towards a methodological framework
Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742
Wang, G., Ma, R., Qiao, G., Wada, K., Aizawa, Y., & Satoh, T. (2015) · Integrative Medicine International · doi:10.1159/000368408 · Cited by 18,762
Scoping studies: advancing the methodology
Levac, D., Colquhoun, H., & O'Brien, K. K. (2010) · Implementation Science · doi:10.1186/1748-5908-5-69 · Cited by 15,268
Shrestha, S., & Offer, S. M. (2016) · Medical Epigenetics · doi:10.1159/000444713 · Cited by 8,951
(1943) · The Nervous child · Cited by 8,870
Social conditions as fundamental causes of disease.
Link, B. G., & Phelan, J. (1995) · Journal of Health and Social Behavior · doi:10.2307/2626958 · Cited by 5,722
Social Conditions as Fundamental Causes of Disease
Link, B. G., & Phelan, J. C. (1995) · PubMed · doi:10.13016/rpln-eiwa · Cited by 2,684
Autistic disturbances of affective contact.
Kanner, L. (1968) · PubMed · Cited by 2,282
Christensen, D. L., Baio, J., Braun, K. V. N., Bilder, D., Charles, J., Constantino, J. N., Daniels, J., Durkin, M. S., Fitzgerald, R. T., Kurzius-Spencer, M., et al. (2016) · MMWR. Surveillance Summaries · doi:10.15585/mmwr.ss6503a1 · Cited by 1,964
The health status of adults on the autism spectrum
Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., & Kripke, C. (2015) · Autism · doi:10.1177/1362361315577517 · Cited by 1,110 · cited 5×
“…outcomes in ASD may be partially explained by known health risk factors, including poor eating habits (Ho et al. 1997), obesity (Ho et al. 1997; Croen et al. 2015), limited physical activity (Ho et al. 1997), long-term psychotropic medication use (Esbensen et al. 2009) and…”
InfluentialPremature mortality in autism spectrum disorder
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016) · British Journal of Psychiatry · doi:10.1192/bjp.bp.114.160192 · Cited by 1,011
Jeon, H., Lee, H., Kang, K. H., & Lim, G. (2014) · Scientific Reports · doi:10.1038/srep06668 · Cited by 844
A cascade of disparities: Health and health care access for people with intellectual disabilities
Krahn, G. L., Hammond, L., & Turner, A. (2006) · Mental Retardation and Developmental Disabilities Research Reviews · doi:10.1002/mrdd.20098 · Cited by 775
Vollmar, H. C., Mayer, H., Ostermann, T., Butzlaff, M. E., Sandars, J. E., Wilm, S., & Rieger, M. A. (2010) · Implementation Science · doi:10.1186/1748-5908-5-1 · Cited by 693
Chauhan, A., & Chauhan, V. (2006) · Pathophysiology · doi:10.1016/j.pathophys.2006.05.007 · Cited by 656
Landa, R. J., Holman, K. C., & Garrett-Mayer, E. (2007) · Archives of General Psychiatry · doi:10.1001/archpsyc.64.7.853 · Cited by 590
Disparities in Diagnoses Received Prior to a Diagnosis of Autism Spectrum Disorder
Mandell, D. S., Ittenbach, R. F., Levy, S. E., & Pinto-Martin, J. A. (2007) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0314-8 · Cited by 533
Durkin, M. S., Maenner, M. J., Meaney, F. J., Levy, S. E., DiGuiseppi, C., Nicholas, J. S., Kirby, R. S., Pinto-Martin, J. A., & Schieve, L. A. (2010) · PLoS ONE · doi:10.1371/journal.pone.0011551 · Cited by 509
Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0b013e318165c7a0 · Cited by 504
Racial/Ethnic Disparities in the Use of Mental Health Services in Poverty Areas
Chow, J. C., Jaffee, K. D., & Snowden, L. R. (2003) · American Journal of Public Health · doi:10.2105/ajph.93.5.792 · Cited by 445
The role of epilepsy and epileptiform EEGs in autism spectrum disorders
Spence, S. J., & Schneider, M. T. (2009) · Pediatric Research · doi:10.1203/pdr.0b013e31819e7168 · Cited by 418
The National Institute on Aging Health Disparities Research Framework
Hill, C. V., Pérez‐Stable, E. J., Norman A. Anderson, P., & Bernard, M. (2015) · Ethnicity & Disease · doi:10.18865/ed.25.3.245 · Cited by 402
Access to Diagnosis and Treatment Services Among Latino Children With Autism Spectrum Disorders
Magaña, S., Lopez, K., Aguinaga, A., & Morton, H. (2013) · Intellectual and Developmental Disabilities · doi:10.1352/1934-9556-51.3.141 · Cited by 375
Sleep in children with autistic spectrum disorder
Cortesi, F., Giannotti, F., Ivanenko, A., & Johnson, K. (2010) · Sleep Medicine · doi:10.1016/j.sleep.2010.01.010 · Cited by 355
Alterations of GABAergic Signaling in Autism Spectrum Disorders
Pizzarelli, R., & Cherubini, E. (2011) · Neural Plasticity · doi:10.1155/2011/297153 · Cited by 338
Ogden, T., & Fixsen, D. L. (2014) · Zeitschrift für Psychologie · doi:10.1027/2151-2604/a000160 · Cited by 304
Understanding Health Disparities and Inequities Faced by Individuals with Intellectual Disabilities
Ouellette-Kuntz, H. M. J. (2005) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/j.1468-3148.2005.00240.x · Cited by 297
Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon
Gerhardt, P. F., & Lainer, I. (2010) · Journal of Contemporary Psychotherapy · doi:10.1007/s10879-010-9160-2 · Cited by 275
Magaña, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012) · Intellectual and Developmental Disabilities · doi:10.1352/1934-9556-50.4.287 · Cited by 255
Gastrointestinal symptoms in a sample of children with pervasive developmental disorders
Nikolov, R. N., Bearss, K. E., Lettinga, J., Erickson, C., Rodowski, M., Aman, M. G., McCracken, J. T., McDougle, C. J., Tierney, E., Vitiello, B., et al. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-008-0637-8 · Cited by 240
Esbensen, A. J., Greenberg, J. S., Seltzer, M. M., & Aman, M. G. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0750-3 · Cited by 238
Susser, M. W., & Watson, W. H. (1970) · Cited by 181
A review of rhythm and responsiveness of cortisol in individuals with autism spectrum disorders
Taylor, J. L., & Corbett, B. A. (2014) · Psychoneuroendocrinology · doi:10.1016/j.psyneuen.2014.07.015 · Cited by 165
A scoping review of what is known of the physical health of adults with autism spectrum disorder
Cashin, A. J., Buckley, T. A., Trollor, J. N., & Lennox, N. G. (2016) · Journal of Intellectual Disabilities · doi:10.1177/1744629516665242 · Cited by 152
Injury Mortality in Individuals With Autism
Guan, J., & Li, G. (2017) · American Journal of Public Health · doi:10.2105/ajph.2017.303696 · Cited by 139
The Impact of Culture on Autism Diagnosis and Treatment
Ennis-Cole, D. L., Durodoye, B. A., & Harris, H. L. (2013) · The Family Journal · doi:10.1177/1066480713476834 · Cited by 124
High rates of parkinsonism in adults with autism
STARKSTEIN, S. E., Gellar, S., Parlier, M., Payne, L., & Piven, J. (2015) · Journal of Neurodevelopmental Disorders · doi:10.1186/s11689-015-9125-6 · Cited by 123
Parish, S. L., Magaña, S., Rose, R. A., Timberlake, M. T., & Swaine, J. G. (2012) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-117.4.304 · Cited by 119
(1995) · PubMed · Cited by 117
Romero, M., Aguilar, J. M., Del-Rey-Mejías, Á., Mayoral, F., Rapado, M., Peciña, M., Barbancho, M. Á., Ruiz-Veguilla, M., & Lara, J. P. (2016) · International Journal of Clinical and Health Psychology · doi:10.1016/j.ijchp.2016.03.001 · Cited by 115 · cited 2×
“2010), and feeding issues (Romero et al. 2016) are common.”
Racial and Ethnic Differences in Subspecialty Service Use by Children With Autism
Broder‐Fingert, S., Shui, A. M., Pulcini, C. D., Kurowski, D., & Perrin, J. M. (2013) · PEDIATRICS · doi:10.1542/peds.2012-3886 · Cited by 114
Magaña, S., Parish, S. L., & Son, E. (2015) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-120.6.504 · Cited by 99
Azuma, R., Deeley, Q., Campbell, L., Daly, E., Giampietro, V., Brammer, M. J., Murphy, K. C., & Murphy, D. (2015) · Journal of Neurodevelopmental Disorders · doi:10.1186/1866-1955-7-1 · Cited by 99
Tregnago, M., & Cheak‐Zamora, N. (2012) · Research in Autism · doi:10.1016/j.rasd.2012.01.005 · Cited by 91
Perturbed proteostasis in autism spectrum disorders
Louros, S. R., & Osterweil, E. K. (2016) · Journal of Neurochemistry · doi:10.1111/jnc.13723 · Cited by 89
Nutrient Intake and Obesity in Children with Autism
Ho, H. H., Eaves, L. C., & Peabody, D. (1997) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/108835769701200308 · Cited by 83
Nguyen, C. T., Krakowiak, P., Hansen, R. L., Hertz‐Picciotto, I., & Angkustsiri, K. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2913-3 · Cited by 78
Spatial clusters of autism births and diagnoses point to contextual drivers of increased prevalence
Mazumdar, S., Winter, A. S., Liu, K., & Bearman, P. (2012) · Social Science & Medicine · doi:10.1016/j.socscimed.2012.11.032 · Cited by 59
Shorter telomere length in peripheral blood leukocytes is associated with childhood autism
Li, Z., Tang, J., Li, H., Chen, S., Hé, Y., Liao, Y., Wei, Z., Wan, G., Xiang, X., Xia, K., et al. (2014) · Scientific Reports · doi:10.1038/srep07073 · Cited by 54
Tint, A., Weiss, J. A., & Lunsky, Y. (2017) · Autism Research · doi:10.1002/aur.1806 · Cited by 54
Medical conditions in autism spectrum disorders
Bolton, P. (2009) · Journal of Neurodevelopmental Disorders · doi:10.1007/s11689-009-9021-z · Cited by 28
Zhang, W., Mason, A. E., Boyd, B. A., Sikich, L., & Baranek, G. T. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2982-3 · Cited by 25
Lin, S. C. (2014) · International Journal of Maternal and Child Health and AIDS · doi:10.21106/ijma.48 · Cited by 21
Do Insurance Mandates Affect Racial Disparities in Outcomes for Children with Autism?
Doshi, P. A., Tilford, J. M., Ounpraseuth, S., Kuo, D. Z., & Payakachat, N. (2016) · Maternal and Child Health Journal · doi:10.1007/s10995-016-2120-z · Cited by 18
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Bazargan, M., Cobb, S., & Assari, S. (2021) · The Annals of Family Medicine · doi:10.1370/afm.2632 · Cited by 408
de Leeuw, A., Happé, F., & Hoekstra, R. A. (2020) · Autism Research · doi:10.1002/aur.2276 · Cited by 295
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Steinbrenner, J. R., McIntyre, N., Rentschler, L. F., Pearson, J. N., Luelmo, P., Jaramillo, M., Boyd, B., Wong, C. S., Nowell, S. W., Odom, S., et al. (2022) · Autism · doi:10.1177/13623613211072593 · Cited by 178
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Metadata
- Authors
- Bishop-Fitzpatrick, L., & Kind, A. J. H.
- Affiliations
- University of Wisconsin–Madison (US)
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2017-07-29
- Volume
- 47
- Issue
- 11
- Pages
- 3380-3391
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC5693721
- OpenAlex
- W2740425314
- Cited by
- 351
- References
- 58
- Citations by year
- 2026: 45 · 2025: 54 · 2024: 56 · 2023: 51 · 2022: 48 · 2021: 50 · 2020: 25 · 2019: 10 · 2018: 11
- FWCI
- 7.22
- Type
- journal article
- Language
- en
- Open access
- green
- europepmc.org
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Minority Health and Health Disparities (R01MD010243)
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (U54 HD090256, T32HD007489)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Health › Health disparities and outcomes
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Keywords
- autism spectrum disorder, health disparities, racial disparities, health care access, health system quality, health care delivery, children with autism, older adults, morbidity, life expectancy
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Adult, Female, Humans, Male, Healthcare Disparities
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