‘If I don’t Do It, I’m Out of Rhythm and I Can’t Focus As Well’: Positive and Negative Adult Interpretations of Therapies Aimed at ‘Fixing’ Their Restricted and Repetitive Behaviours in Childhood
Open accessAbstract
Restricted and repetitive behaviours (RRBs) are observed in many children presenting with characteristics of autism and are frequently the targets of psychological interventions. This study used Interpretative Phenomenological Analysis (IPA) to identify positive and negative interpretations from four young adults who received behavioural interventions in their childhood designed to ‘fix’ RRBs. Two superordinate themes were identified: (1) Doubt, stigma and being fixed according to others, and (2) Embracing Authenticity. They highlighted juxtaposed positions from exclusion, rejection, criticism, and self-doubt in childhood, to rejecting societal censure and embracing authentic growth in adult life. As adults, though the participants recognised themselves as neurologically different from others, they redefined themselves through a lens of neurodiversity, and therefore as not needing to be fixed.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
McCormack et al. (2023) showed in a qualitative study that reduction of core autistic traits, such as restricted and repetitive behaviours, can lead to worse mental health outcomes, including increased depression, anxiety, and stress levels.
“For example,McCormack et al. (2023) showed in a qualitative study that the reduction of core autistic traits, such as restricted and repetitive behaviours, can lead to worse mental health outcomes, including increased depression, anxiety, and stress levels.”
From Rethinking psychological interventions in autism: Toward a neurodiversity‐affirming approach. (2025) · cites this paper as McCormack et al., 2023
The Discussion (page unavailable) reports that interventions restrained participants’ repetitive behaviours at the expense of their internal processing, and that one participant said restricting these behaviours caused agitation. The Conclusions (page unavailable) describe distress associated with criticism and interruption of those behaviours. The qualitative study does not show that reducing core autistic traits increased depression, anxiety, and stress levels as specific outcomes. (LLM, conf=0.88)
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Diagnostic and Statistical Manual of Mental Disorders
Williams, J. B. W., & First, M. B. (2013) · Oxford University Press eBooks · doi:10.1093/acrefore/9780199975839.013.104 · Cited by 109,841 · see citing works
Lord, C., Rutter, M., & Le Couteur, A. (1994) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02172145 · Cited by 9,065 · see citing works
Interpretative Phenomenological Analysis: Theory, Method and Research
(2010) · QMiP Bulletin · doi:10.53841/bpsqmip.2010.1.10.44 · Cited by 8,189 · cited 8× · see citing works
“As such, independent auditing delivered one account of the data that demonstrated the presentation of evidence and internal coherence (Smith et al., 2009).”
BackgroundMethodInfluentialThe posttraumatic growth inventory: measuring the positive legacy of trauma
Tedeschi, R. G., & Calhoun, L. G. (1996) · Journal of Traumatic Stress · doi:10.1002/jts.2490090305 · Cited by 7,061 · see citing works
Behavioral treatment and normal educational and intellectual functioning in young autistic children.
Lovaas, O. I. (1987) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.55.1.3 · Cited by 3,288 · see citing works
Smith, J. A. (1996) · Psychology & Health · doi:10.1080/08870449608400256 · Cited by 2,380 · cited 2× · see citing works
“Therefore, using Interpretative Phenomenological Analysis (Smith, 1996), this idiographic study explores positive and negative subjective interpretations of adults diagnosed with autism reflecting on their childhood.”
BackgroundMethodAutism Diagnostic Interview-Revised
Rutter, M., LeCouteur, A., & Lord, C. (2016) · PsycTESTS Dataset · doi:10.1037/t18128-000 · Cited by 1,627 · see citing works
Autism Diagnostic Interview—Revised
Riccio, C. (2008) · Encyclopedia of Special Education · doi:10.1002/9780470373699.speced0212 · Cited by 1,342 · cited 2× · see citing works
“Of these, two participants were diagnosed using the Autism Diagnosis Interview-Revised (Rutter et al., 2003; Lord et al., 1994), while two participants reported that they had received clinical assessment and diagnosis by a paediatrician or clinical Sandoval-Norton et al., (2019) criticised behavioural interventions th…”
Zoellner, T., & Maercker, A. (2006) · Clinical Psychology Review · doi:10.1016/j.cpr.2006.01.008 · Cited by 1,328 · see citing works
When the world becomes ‘too real’: a Bayesian explanation of autistic perception
Pellicano, E., & Burr, D. (2012) · Trends in Cognitive Sciences · doi:10.1016/j.tics.2012.08.009 · Cited by 1,156 · see citing works
Positive Adjustment to Threatening Events: An Organismic Valuing Theory of Growth through Adversity
Joseph, S., & Linley, P. A. (2005) · Review of General Psychology · doi:10.1037/1089-2680.9.3.262 · Cited by 909 · see citing works
An aberrant precision account of autism
Lawson, R. P., Rees, G., & Friston, K. J. (2014) · Frontiers in Human Neuroscience · doi:10.3389/fnhum.2014.00302 · Cited by 641 · see citing works
Dean, M., Harwood, R., & Kasari, C. (2017) · Autism · doi:10.1177/1362361316671845 · Cited by 566 · cited 1× · see citing works
“It has been proposed that people with autism skilfully developed strategies to disguise themselves as neurotypical in a stressful world (Dean et al., 2016; Tierney et al., 2016).”
Background‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
Kapp, S. K., Steward, R., Crane, L., Elliott, D., Elphick, C., Pellicano, E., & Russell, G. (2019) · Autism · doi:10.1177/1362361319829628 · Cited by 495 · see citing works
Neurodiversity: An insider’s perspective
den Houting, J. (2019) · Autism · doi:10.1177/1362361318820762 · Cited by 485 · see citing works
Behavioral treatments in autism spectrum disorder: what do we know?
Vismara, L. A., & Rogers, S. J. (2010) · Annual Review of Clinical Psychology · doi:10.1146/annurev.clinpsy.121208.131151 · Cited by 376 · see citing works
Wigham, S., Rodgers, J., South, M., McConachie, H., & Freeston, M. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2248-x · Cited by 373 · cited 1× · see citing works
“These factors may induce a high level of stress, anxiety, and worry, which may be associated with the engagement of insistence on sameness behaviours (Lidstone et al., 2014; Wigham et al., 2015).”
BackgroundKinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2637-9 · Cited by 365 · see citing works
Pierce, K., Gazestani, V. H., Bacon, E., Barnes, C. C., Cha, D., Nalabolu, S., Lopez, L., Moore, A., Pence-Stophaeros, S., & Courchesne, E. (2019) · JAMA Pediatrics · doi:10.1001/jamapediatrics.2019.0624 · Cited by 333 · cited 1× · see citing works
“Although the difficulties in screening for ASD and a controversy over universal screening remain a challenge (McCarty & Frye, 2020), early diagnostic evaluation for ASD has become increasingly common which may potentially attenuate the issue of a delayed diagnosis (Pierce et al., 2019; Sicherman et al., 2021).”
Background‘Masking is life’: experiences of masking in autistic and nonautistic adults
Miller, D., Rees, J., & Pearson, A. (2021) · Autism in Adulthood · doi:10.1089/aut.2020.0083 · Cited by 321 · see citing works
Looking behind the mask: Social coping strategies of girls on the autistic spectrum
Tierney, S., Burns, J., & Kilbey, E. (2016) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2015.11.013 · Cited by 316 · cited 1× · see citing works
“It has been proposed that people with autism skilfully developed strategies to disguise themselves as neurotypical in a stressful world (Dean et al., 2016; Tierney et al., 2016).”
BackgroundLidstone, J., Uljarević, M., Sullivan, J., Rodgers, J., McConachie, H., Freeston, M., Le Couteur, A., Prior, M., & Leekam, S. (2014) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2013.10.001 · Cited by 264 · see citing works
Stereotypy in young children with autism and typically developing children.
Macdonald, R. P. F., Green, G., Mansfield, R., Geckeler, A. S., Gardenier, N., Anderson, J., Holcomb, W., & Sanchez, J. (2007) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2006.01.004 · Cited by 235 · see citing works
How much compliance is too much compliance: Is long-term ABA therapy abuse?
Sandoval-Norton, A. H., Shkedy, G., & Shkedy, D. (2019) · Cogent Psychology · doi:10.1080/23311908.2019.1641258 · Cited by 233 · cited 1× · see citing works
“Interventions that involve various punishments and rewards without providing a meaning of the task that the individual is being asked to do, or not to do, can have negative impacts on individuals’ intrinsic motivation, self-esteem and self-efficacy to engage in the task (Sandoval-Norton et al., 2019).”
BackgroundKodak, T. M., & Bergmann, S. C. (2020) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2020.02.007 · Cited by 216 · see citing works
Overreactive brain responses to sensory stimuli in youth with autism spectrum disorders
Green, S. A., Rudie, J. D., Colich, N. L., Wood, J. J., Shirinyan, D., Hernandez, L., Tottenham, N., Dapretto, M., & Bookheimer, S. Y. (2013) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2013.08.004 · Cited by 207 · see citing works
Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis
Kupferstein, H. (2018) · Advances in Autism · doi:10.1108/aia-08-2017-0016 · Cited by 207 · see citing works
Exploring the Relationship Between Anxiety and Insistence on Sameness in Autism Spectrum Disorders
Gotham, K., Bishop, S. L., Hus, V., Huerta, M., Lund, S., Buja, A., Krieger, A., & Lord, C. (2013) · Autism Research · doi:10.1002/aur.1263 · Cited by 176 · see citing works
Joyce, C., Honey, E., Leekam, S. R., Barrett, S. L., & Rodgers, J. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3027-2 · Cited by 171 · see citing works
Rodgers, J., Riby, D. M., Janes, E., Connolly, B., & McConachie, H. (2012) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-011-1225-x · Cited by 146 · cited 1× · see citing works
“, restricted routines and interests (Gotham et al., 2013; Rodgers et al., 2012).”
Early Detection and Diagnosis of Autism Spectrum Disorder: Why Is It So Difficult?
McCarty, P. J., & Frye, R. E. (2020) · Seminars in Pediatric Neurology · doi:10.1016/j.spen.2020.100831 · Cited by 144 · see citing works
Understanding the Self in Individuals with Autism Spectrum Disorders (ASD): A Review of Literature
Huang, A. X., Hughes, T. L., Sutton, L. R., Lawrence, M., Chen, X., Ji, Z., & Zeleke, W. A. (2017) · Frontiers in Psychology · doi:10.3389/fpsyg.2017.01422 · Cited by 113 · see citing works
'It cuts both ways': a relational approach to access and accommodation for autism.
Davidson, J. (2010) · Social Science & Medicine (1967) · doi:10.1016/j.socscimed.2009.10.017 · Cited by 104 · cited 1× · see citing works
“, rubbing, smelling, or sucking), and may provide benefits for emotional and cognitive self-regulation (Davidson, 2010; Kapp et al., 2019; Leekam, Prior, & Uljarevic, 2011).”
BackgroundSocial movements, knowledge and public policy: the case of autism activism in Canada and the US
Orsini, M., & Smith, M. (2010) · Critical Policy Studies · doi:10.1080/19460171003714989 · Cited by 95 · see citing works
Schulz, S., & Stevenson, R. (2018) · Autism · doi:10.1177/1362361318774559 · Cited by 94 · see citing works
Charlton, R. A., Entecott, T., Belova, E., & Nwaordu, G. (2021) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2021.101864 · Cited by 94 · cited 1× · see citing works
“, an RRB) as a selfregulatory behaviour with many positive effects experiencing negative consequences when they are forced to repress them (Charlton et al., 2021).”
BackgroundLearning and Behavior Problems in Asperger Syndrome.
Ruperto, C. R., & Martin, A. (2006) · doi:10.1097/01.chi.0000186448.64826.ff · Cited by 87
Pas, E. T., Johnson, S. R., Larson, K., Brandenburg, L., Church, R., & Bradshaw, C. P. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2898-y · Cited by 64 · cited 1× · see citing works
“, 2010), as well as in classroom management (Pas et al., 2016).”
BackgroundPatterson, S. Y., Smith, V., & Jelen, M. (2010) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.2009.03597.x · Cited by 62 · cited 2× · see citing works
“Consistent with previous research, participants reported that these approaches effectively restrained and modified their repetitive behaviours deemed ‘problematic’, such as tapping objects, flapping hands, pacing in a circle and spinning (Patterson et al., 2010).”
BackgroundResultUnderstanding the Relationships Between Autistic Identity, Disclosure, and Camouflaging
Cage, E., & Troxell-Whitman, Z. (2020) · Autism in Adulthood · doi:10.1089/aut.2020.0016 · Cited by 60 · see citing works
Psychological factors in autism
Prior, M., & Ozonoff, S. (2007) · Cambridge University Press eBooks · doi:10.1017/cbo9780511544446.004 · Cited by 58 · see citing works
Developing a collaborative relationship with clients during the initial sessions of psychotherapy.
Spencer, J., Goode, J., Penix, E. A., Trusty, W. T., & Swift, J. K. (2019) · Psychotherapy · doi:10.1037/pst0000208 · Cited by 58 · see citing works
Children on the Borderlands of Autism
Barrett, S., Prior, M. R., & Manjiviona, J. (2004) · Autism · doi:10.1177/1362361304040640 · Cited by 53 · see citing works
Brief Report: Bullying and Anxiety in High-Functioning Adolescents with ASD
van Schalkwyk, G. I., Smith, I. C., Silverman, W., & Volkmar, F. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3378-8 · Cited by 53 · see citing works
Fetta, A., Carati, E., Moneti, L., Pignataro, V., Angotti, M., Bardasi, M. C., Cordelli, D. M., Franzonı, E., & Parmeggiani, A. (2021) · Brain Sciences · doi:10.3390/brainsci11040484 · Cited by 51 · see citing works
Moss, C. (1981) · doi:10.1055/s-0028-1095026 · Cited by 45
Clinical signs associated with earlier diagnosis of children with autism Spectrum disorder
Sicherman, N., Charité, J., Eyal, G., Janecka, M., Loewenstein, G. F., Law, K., Lipkin, P. H., Marvin, A. R., & Buxbaum, J. D. (2021) · BMC Pediatrics · doi:10.1186/s12887-021-02551-0 · Cited by 42 · cited 1× · see citing works
“Although the difficulties in screening for ASD and a controversy over universal screening remain a challenge (McCarty & Frye, 2020), early diagnostic evaluation for ASD has become increasingly common which may potentially attenuate the issue of a delayed diagnosis (Pierce et al., 2019; Sicherman et al., 2021).”
BackgroundA fractured journey of growth: making meaning of a ‘Broken’ childhood and parental mental ill-health
McCormack, L., White, S., & Cuenca, J. (2016) · Community Work & Family · doi:10.1080/13668803.2015.1117418 · Cited by 26 · cited 1× · see citing works
“(1) enhanced relationships, improved altruism, and compassion toward others; (2) changed selfperception with a greater acceptance of personal limitations and vulnerabilities; and (3) changed life philosophy with an appreciation of each new day and realisation that life is finite (Tedeschi & Calhoun, 1996; Joseph & Lin…”
BackgroundSelf-citationSocial Psychology and Affirmative Action: The Importance of Process in Policy Analysis
Nacoste, R. W. (1987) · doi:10.1111/j.1540-4560.1987.tb02339.x · Cited by 23
Swaab, L., McCormack, L., & Campbell, L. (2017) · Advances in Neurodevelopmental Disorders · doi:10.1007/s41252-017-0033-5 · Cited by 21 · cited 1× · see citing works
“This is due to unusual or ritualistic behaviours being viewed as problematic, and potentially stressful and embarrassing for parents and carers, especially if the stimming behaviours are noticed by others in public (Swaab et al., 2017).”
BackgroundSelf-citationMcCormack, L., & Joseph, S. (2018) · SAGE Publications Ltd eBooks · doi:10.4135/9781526429681 · Cited by 13 · see citing works
Self-citationGifford, C., & Knott, F. (2016) · doi:10.1111/bld.12171 · Cited by 8
Flagged first, then by citations
6 of the 58 references couldn’t be matched to a known paper.
Research works printed but not linked: 1
- Blaikie, N. (2000). Designing social research (1 ed.). Polity Press
Cited by
Sorted by citations
Rethinking psychological interventions in autism: Toward a neurodiversity‐affirming approach.
Graf‐Kurtulus, S., & Gelo, O. C. G. (2025) · Counselling and Psychotherapy Research · doi:10.1002/capr.12874 · Cited by 34 · see citing works
Lung, S. L. M., Picard, È., Soulières, I., & Bertone, A. (2024) · Research in Autism · doi:10.1016/j.rasd.2024.102458 · Cited by 24 · see citing works
Pearson, A., & Hodgetts, S. (2023) · Autism in Adulthood · doi:10.1089/aut.2022.0103 · Cited by 16 · see citing works
“23,24 BDSM practitioners often report that participating in physical bondage (e.g., using rope to restrict movement) can elicit a sense of safety and calmness in those who are bound.”
Systematic Review of Symptoms of Catatonia in Autism Spectrum Disorder
Hasan, S., Hussain, I., Chadwick, L., Moir, R., Iqbal, A., Morris, R., & Patil, D. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-06855-3 · Cited by 7 · see citing works
“Several of the symptoms found in this study are similar to known fundamental characteristics of autism spectrum disorder, for example, challenging behaviors or communication difficulties (McCormack et al., 2023).”
Understanding Internalizing and Externalizing Behaviors in Autistic Toddlers.
Levy, R. S., Fipp-Rosenfield, H. L., Lee, J., Grauzer, J. M., & Roberts, M. Y. (2023) · American Journal of Speech-Language Pathology · doi:10.1044/2023_ajslp-23-00088 · Cited by 4 · see citing works
McComas, J. J., Wilczynski, S., Cerda, M.-L., Beavis, H. S., Drossel, C., Sundberg, S., & Anderson, K. D. (2025) · Behavior Analysis in Practice · doi:10.1007/s40617-025-01128-y · Cited by 2 · see citing works
“…were identified by interested parties (e.g., parents, teachers, clinicians) who overlooked the fact that these responses may involve regulation (McCormack et al., 2023) and sensory needs (Cherewick & Matergia, 2024), aversive conditions such as hyperacusis (Danesh et al., 2021), or simply a…”
Managing self-regulatory behaviour in young autistic children in the Western Cape, South Africa
Veerasamy, S. (2024) · South African Journal of Childhood Education · doi:10.4102/sajce.v14i1.1352 · Cited by 3 · see citing works
Purposeless? Says Who? A Scoping Review of Potential Functions of Stimming in Autistic Adults
Camin, M., Hudry, K., Jellett, R., & Flower, R. L. (2026) · Autism in Adulthood · doi:10.1177/25739581261497840 · Cited by 1 · see citing works
Nosova, E., Sturrock, A., Humphrey, N., & Leadbitter, K. (2026) · Autism · doi:10.1177/13623613261460931 · Cited by 1 · see citing works
“…studies asked autistic adults about their experiences with childhood interventions: four of them on applied behavioural analysis (ABA) (Anderson, 2023; Cumming et al., 2020; Jonkman et al., 2025; McGill & Robinson, 2021) and fifth on the interventions that target stimming (McCormack et al., 2023).”
Beyond the Ethics: Identifying Avenues for Reforming the Psychiatric Care of Individuals with ASD
Swaminathan, S. J., Mavuri, S., & Appel, J. M. (2026) · American Journal of Bioethics · doi:10.1080/15265161.2026.2645583 · Cited by 1
Cobbaert, L. (2026) · Journal of Eating Disorders · doi:10.1186/s40337-026-01810-8
“This is consistent with broader research documenting the concealment of stimming to avoid judgement [10, 11] and adverse experiences of childhood interventions aimed at modifying repetitive behaviours [24].”
D'Souza, K., & Flanagan, T. (2026) · Research in Neurodiversity · doi:10.1016/j.rin.2026.100080
On Avoiding Inappropriate Assessment of Autistic Adolescents in Psychiatric Settings
Richman, K. A. (2026) · American Journal of Bioethics · doi:10.1080/15265161.2026.2645578
“What looks like good functioning to the rater could be atypically exhausting and uncom-fortable to an autistic person (cf McCormack et al. 2023).”
S, R. K. G. (2025) · International Journal of Interdisciplinary Approaches in Psychology · doi:10.61113/ijiap.v3i10.1170
Towards Safe Self-Stimulatory Behaviors in Autistic Children: HarmAlert4AutisticChildren (HA4AC)
Khan, A., & Foroosh, H. (2025) · VISIGRAPP : VISAPP · doi:10.5220/0013389700003912
- Authors
- McCormack, L., Wong, S. W., & Campbell, L. E.
- Affiliations
- University of Newcastle Australia (AU)
- Corresponding author
- McCormack, Lynne
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2022-07-04
- Volume
- 53
- Issue
- 9
- Pages
- 3435-3448
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC10465631
- OpenAlex
- W4283816207
- Cited by
- 15
- References
- 58
- Citations by year
- 2026: 5 · 2025: 4 · 2024: 3 · 2023: 2 · 2022: 1
- FWCI
- 1.29
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Figshare (submittedVersion, cc-by)
- NOVA (University of Newcastle Australia) (submittedVersion, cc-by)
- Funders
- The University of Newcastle
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
- Keywords
- restricted and repetitive behaviors, autism spectrum disorder, young adults, neurodiversity, stigma, self-doubt, authenticity, adult perspectives
- MeSH terms
- Autism Spectrum Disorder, Autistic Disorder, Behavior Therapy, Child, Emotions, Humans, Young Adult, Social Stigma
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review