Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD
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In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB.
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It now seems likely that stimming behaviours often serve a regulatory, soothing function for autistic people.
“In fact, it now seems likely that they often serve a regulatory, soothing function for autistic people (e.g. Joyce, Honey, Leekam, Barrett, & Rodgers, 2017; Kapp et al., 2019).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Joyce, Honey, Leekam, Barrett, & Rodgers, 2017
The Discussion (p. 24) reports examples of repetitive behaviours used to cope with anxiety and describes young people using them to feel calm. This supports a soothing or regulatory function, but the study’s examples from young people do not establish that stimming often serves this function across autistic people generally. (LLM, conf=0.84)
Experimental — accuracy not yet measuredIntolerance of uncertainty has been associated with some core characteristics of ASD.
“Recently, IU has been associated with some of the core characteristics of ASD [26–28].”
The concept of IU resonates clinically with some of the core characteristics of ASD.
“The concept resonates clinically with some of the core characteristics of ASD (Joyce et al. 2017; Rodgers et al. 2012; South and Rodgers 2017).”
From Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study. (2018) · cites this paper as Joyce et al. 2017
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- Authors
- Joyce, C., Honey, E., Leekam, S. R., Barrett, S. L., & Rodgers, J.
- Affiliations
- Newcastle University (GB)
- Cardiff University (GB)
- Corresponding author
- Joyce, Caroline
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2017-02-25
- Volume
- 47
- Issue
- 12
- Pages
- 3789-3802
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2589756919
- Cited by
- 171
- References
- 44
- Citations by year
- 2026: 14 · 2025: 22 · 2024: 18 · 2023: 26 · 2022: 15 · 2021: 34 · 2020: 13 · 2019: 17 · 2018: 8 · 2017: 4
- FWCI
- 6.60
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Licence
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (acceptedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (submittedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by-nc)
- Funders
- Economic and Social Research Council (ES/F037821/1)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Social Sciences › Psychology › Clinical Psychology › Obsessive-Compulsive Spectrum Disorders
- Keywords
- autism spectrum disorder, restricted and repetitive behaviors, anxiety, intolerance of uncertainty, youth, self-report, parent report
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Anxiety, Female, Humans, Male, Surveys and Questionnaires, Stereotyped Behavior, Uncertainty, Young Adult, Self Report
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