Parent Perspectives on Community Mental Health Services for Children with Autism Spectrum Disorders

Brookman-Frazee, Lauren; Baker-Ericzén, Mary; Stadnick, Nicole; Taylor, Robin

doi:10.1007/s10826-011-9506-8

Cited by 125Autism Spectrum Disorder ResearchFamily and Disability Support ResearchChild Nutrition and Feeding Issues

Parent Perspectives on Community Mental Health Services for Children with Autism Spectrum Disorders

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Brookman-Frazee, Lauren, Baker-Ericzén, Mary, Stadnick, Nicole, Taylor, Robin·2012·Journal of Child and Family Studies

DOI 10.1007/s10826-011-9506-8PMC PMC3826258

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Abstract

The community mental health (CMH) system provides treatment for behavioral and psychiatric problems in children with autism spectrum disorders (ASD). Although parent stakeholder perspectives are important to improving care, these perspectives have not been systematically examined for this population in the CMH sector. Twenty-one semi-structured qualitative interviews were conducted with parents of children with ASD who received services in CMH clinics. Themes related to child clinical histories, service access and experiences with the CMH system revealed a specific trajectory of service need identification, obtaining a diagnosis, and experience with services. Each trajectory stage was marked by high parent stress. Results provide information about the characteristics of children with ASD served in community mental health clinics and direction for targeted improvement efforts.

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Many individuals with ASD do not receive ASD-EBPs.
“Yet, evidence suggests that many individuals with ASD do not receive ASD-EBPs (Brookman-Frazee, et al., 2012; Pickard et al., 2018).”
From Implementation-as-Usual in Community-Based Organizations Providing Specialized Services to Individuals with Autism Spectrum Disorder: A Mixed Methods Study (2021) · cites this paper as Brookman-Frazee, et al., 2012
The Introduction (page unavailable) reports discrepancies between evidence-based practices and usual care for school-age children with ASD receiving outpatient therapy in community mental health clinics. That supports a gap in this setting, but the paper does not establish how many individuals with ASD do not receive ASD-EBPs across the broader population. (LLM, conf=0.84)
Experimental — accuracy not yet measured
Literature suggests that ASD-CBOs underutilize or inconsistently utilize EBPs designed specifically for individuals with ASD.
“Currently, literature suggests that ASD-CBOs underutilize or inconsistently utilize EBPs designed specifically for individuals with ASD (Ramanadhan et al., 2017; Brookman-Frazee et al., 2012; Pickard et al., 2018).”
From Implementation-as-Usual in Community-Based Organizations Providing Specialized Services to Individuals with Autism Spectrum Disorder: A Mixed Methods Study (2021) · cites this paper as Brookman-Frazee et al., 2012
The Introduction reports discrepancies between evidence-based practices and usual care in community mental health clinics, where therapists used similar strategies for children with and without ASD. It also specifies that the clinics studied did not specialize in ASD, so the paper does not establish the claim for ASD-focused community-based organizations generally. (LLM, conf=0.82)
Experimental — accuracy not yet measured
Healthcare providers (both primary and acute health care) may lack specialist training in this field.
“Healthcare providers (both primary and acute health care) may lack specialist training in this field.20–22”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [20]
The use of convenience samples and self-selection may also bias the results.
“The use of convenience samples23,56 and self-selection20 may also bias the results.”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [20]

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Family experiences and identified mental health issues as defined by parents of children with autism spectrum disorders
Davis, S. (2005)
Clinician and Parent Perspectives on Parent and Family Contextual Factors that Impact Community Mental Health Services for Children with Behavior Problems
(2010)

Authors: Brookman-Frazee, L., Baker-Ericzén, M., Stadnick, N., & Taylor, R.
Affiliations: University of California San Diego (US)
Rady Children's Hospital-San Diego (US)
San Diego State University (US)
Corresponding author: Brookman-Frazee, Lauren
ORCID: Brookman-Frazee, Lauren
Baker-Ericzén, Mary
Stadnick, Nicole
Venue: Journal of Child and Family Studies
Publisher: Springer Science and Business Media LLC
Published: 2011-05-15
Volume: 21
Issue: 4
Pages: 533-544
ISSN: 1062-1024 (ISSN-L)
1573-2843
DOI: 10.1007/s10826-011-9506-8
PMC: PMC3826258
OpenAlex: W1989641305
Cited by: 125
References: 48
Citations by year: 2026: 5 · 2025: 6 · 2024: 17 · 2023: 12 · 2022: 15 · 2021: 7 · 2020: 15 · 2019: 10 · 2018: 6 · 2017: 9 · 2016: 3 · 2015: 8 · 2014: 4 · 2013: 2 · 2012: 3
FWCI: 1.79
Type: journal article
Language: en
Open access: green
www.ncbi.nlm.nih.gov
Licence: www.springer.com/tdm (tdm)
Locations: Journal of Child and Family Studies (publishedVersion)
PubMed (publishedVersion)
Europe PMC (PubMed Central) (acceptedVersion)
PubMed Central (acceptedVersion)
Funders: National Institute of Mental Health (K01MH069665, K23MH077584, R25MH080916)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords: autism spectrum disorder, community mental health services, parental attitudes, parent stress, access to services, diagnosis, child mental health services, stakeholder perspectives

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