Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use
Abstract
Research within the autism spectrum disorder field has emphasized the role of socioeconomic status in shaping parents' ability to access services for their child with autism spectrum disorder. However, research has yet to explore the possible mechanisms underlying this relationship. This study sought to address this research gap by examining the following questions: (1) Does parents' service knowledge mediate the relationship between parent socioeconomic status and parents' autism spectrum disorder service use? (2) What are parents' reported service needs and service barriers, and do these needs vary across higher and lower socioeconomic status groups? Quantitative results from 244 parents of a child with autism spectrum disorder indicate that parents' autism spectrum disorder service knowledge partially mediates the relationship between parent socioeconomic status and parents' autism spectrum disorder service use. Qualitative findings helped to clarify this relationship by suggesting that both high and low socioeconomic status parents are aware of their child's basic autism spectrum disorder needs. However, low socioeconomic status parents more often report needing more information about services and more in-home services and emphasize that a number of structural barriers impede their ability to meet their child's autism spectrum disorder needs. On the other hand, high socioeconomic status parents more often report a need for "higher quality services," possibly reflecting th…
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Recommended ASD services are often excluded from insurance plans held by families with lower socioeconomic status.
“Indeed, recommended ASD services are often excluded from insurance plans held by families with lower socioeconomic status (SES).”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [30]
Cites
Basics of Qualitative Research
Ozanne, J. L., Strauss, A., & Corbin, J. M. (1992) · Journal of Marketing Research · doi:10.2307/3172751 · Cited by 17,852 · see citing works
(1998) · Cited by 13,501 · see citing works
Grounded theory research: Procedures, canons, and evaluative criteria
Corbin, J. M., & Strauss, A. (1990) · Qualitative Sociology · doi:10.1007/bf00988593 · Cited by 11,133 · see citing works
(1990) · Cited by 11,110 · see citing works
Journal of the National Medical Association
(2010) · Journal of the National Medical Association · doi:10.1016/s0027-9684(15)30622-2 · Cited by 5,338 · see citing works
Measuring Social Class in US Public Health Research: Concepts, Methodologies, and Guidelines
Krieger, N., Williams, D. R., & Moss, N. (1997) · Annual Review of Public Health · doi:10.1146/annurev.publhealth.18.1.341 · Cited by 2,680 · see citing works
Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder
Dawson, G. (2008) · Development and Psychopathology · doi:10.1017/s0954579408000370 · Cited by 1,138 · see citing works
Measurement of socioeconomic status in health disparities research.
Shavers, V. L. (2007) · PubMed Central · doi:10.13016/avw3-9cvx · Cited by 1,027 · see citing works
Evidence-Based Comprehensive Treatments for Early Autism
Rogers, S. J., & Vismara, L. A. (2008) · Journal of Clinical Child & Adolescent Psychology · doi:10.1080/15374410701817808 · Cited by 984 · see citing works
Family experience of barriers to treatment and premature termination from child therapy.
Kazdin, A. E., Holland, L., & Crowley, M. J. P. (1997) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.65.3.453 · Cited by 721 · see citing works
Reichow, B., & Volkmar, F. R. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0842-0 · Cited by 657 · see citing works
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008) · PEDIATRICS · doi:10.1542/peds.2008-1057 · Cited by 625 · see citing works
Family experience of barriers to treatment and premature termination from child therapy.
Kazdin, A. E., Holland, L., & Crowley, M. J. P. (1997) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.65.3.453 · Cited by 548 · see citing works
Evidence-Based Practices in Interventions for Children and Youth with Autism Spectrum Disorders
Odom, S. L., Collet-Klingenberg, L. L., Rogers, S. J., & Hatton, D. D. (2010) · Preventing School Failure Alternative Education for Children and Youth · doi:10.1080/10459881003785506 · Cited by 537 · see citing works
Durkin, M. S., Maenner, M. J., Meaney, F. J., Levy, S. E., DiGuiseppi, C., Nicholas, J. S., Kirby, R. S., Pinto-Martin, J. A., & Schieve, L. A. (2010) · PLoS ONE · doi:10.1371/journal.pone.0011551 · Cited by 509 · see citing works
Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0b013e318165c7a0 · Cited by 504 · see citing works
Dingfelder, H. E., & Mandell, D. S. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1081-0 · Cited by 425 · see citing works
Access to Care for Autism-Related Services
Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0323-7 · Cited by 369 · see citing works
TONGE, B., BRERETON, A., KIOMALL, M., MACKINNON, A., KING, N., & RINEHART, N. (2006) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/01.chi.0000205701.48324.26 · Cited by 298 · see citing works
Examining Parents' Involvement in and Perceptions of Special Education Services
Spann, S. J., Köhler, F., & Soenksen, D. (2003) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/10883576030180040401 · Cited by 286 · see citing works
Chiri, G., & Warfield, M. E. (2012) · Maternal and Child Health Journal · doi:10.1007/s10995-011-0833-6 · Cited by 283 · see citing works
Ingersoll, B., & Wainer, A. (2013) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-013-1840-9 · Cited by 263 · see citing works
Self-citationThe association of autism diagnosis with socioeconomic status
Thomas, P. A., Zahorodny, W. M., Peng, B., Kim, S., Jani, N., Halperin, W., & Brimacombe, M. B. (2011) · Autism · doi:10.1177/1362361311413397 · Cited by 218 · see citing works
Evidence-Based Practices and Treatments for Children with Autism
Reichow, B., Volkmar, F. R., Cicchetti, D. V., & Doehring, P. (2010) · Springer eBooks · doi:10.1007/978-1-4419-6975-0 · Cited by 196 · see citing works
Family income gradients in the health and health care access of US children.
Larson, K., & Halfon, N. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-009-0477-y · Cited by 187 · see citing works
Socioeconomic Status and the Increased Prevalence of Autism in California
King, M. D., & Bearman, P. (2011) · American Sociological Review · doi:10.1177/0003122411399389 · Cited by 180 · see citing works
Childhood Autism and Social Class: A Question of Selection?
Wing, L. (1980) · The British Journal of Psychiatry · doi:10.1192/bjp.137.5.410 · Cited by 175 · see citing works
Bitterman, A., Daley, T. C., Misra, S., Carlson, E., & Markowitz, J. (2008) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-007-0531-9 · Cited by 168 · see citing works
Farmer, J. E., Marien, W. E., Clark, M. J., Sherman, A., & Selva, T. J. (2004) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsh039 · Cited by 135 · see citing works
Porterfield, S. L., & McBride, T. D. (2007) · American Journal of Public Health · doi:10.2105/ajph.2004.055921 · Cited by 131 · see citing works
Parent Perspectives on Community Mental Health Services for Children with Autism Spectrum Disorders
Brookman-Frazee, L., Baker-Ericzén, M., Stadnick, N., & Taylor, R. (2012) · Journal of Child and Family Studies · doi:10.1007/s10826-011-9506-8 · Cited by 125 · see citing works
Access to and Satisfaction With School and Community Health Services for US Children With ASD
Montes, G., Halterman, J. S., & Magyar, C. I. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255l · Cited by 124 · see citing works
Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.161.4.399 · Cited by 120 · see citing works
Use of Autism-Related Services by Families and Children
Thomas, K. C., MORRISSEY, J. P., & McLaurin, C. (2006) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0208-9 · Cited by 115 · see citing works
Services for Children With Autism Spectrum Disorders
Dymond, S. K., Gilson, C. L., & Myran, S. (2007) · Journal of Disability Policy Studies · doi:10.1177/10442073070180030201 · Cited by 100 · see citing works
The health and social care needs of family carers supporting adults with autistic spectrum disorders
Hare, D. J., Pratt, C., Burton, M. H., Bromley, J., & Emerson, E. (2004) · Autism · doi:10.1177/1362361304047225 · Cited by 95 · see citing works
Child and Family Characteristics Influencing Intervention Choices in Autism Spectrum Disorders
Patten, E., Baranek, G. T., Watson, L. R., & Schultz, B. (2012) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357612468028 · Cited by 57 · see citing works
Krug, D. A., Arick, J. R., & Almond, P. (1980) · PsycTESTS Dataset · doi:10.1037/t03991-000 · Cited by 39 · see citing works
Ghandour, R. M., Perry, D. F., Kogan, M. D., & Strickland, B. B. (2011) · Academic Pediatrics · doi:10.1016/j.acap.2010.12.015 · Cited by 38 · see citing works
Dietary, Complementary and Alternative Therapies
Hyman, S. L., & Levy, S. E. (2010) · Springer eBooks · doi:10.1007/978-1-4419-6975-0_10 · Cited by 15 · see citing works
Typing in Tongues: Interesting Observations on Facilitated Communication Do Not Establish Authorship
Sturmey, P. (2003) · Mental Retardation · doi:10.1352/0047-6765(2003)41 · Cited by 4 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309 · see citing works
Disparities in service use among children with autism: a systematic review.
Smith, K. A., Gehricke, J.-G., Iadarola, S., Wolfe, A., & Kuhlthau, K. A. (2020) · Pediatrics · doi:10.1542/peds.2019-1895g · Cited by 254 · see citing works
Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation
Dudley, K. M., Klinger, M. R., Meyer, A., Powell, P., & Klinger, L. G. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-3729-0 · Cited by 92 · see citing works
Drahota, A., Sadler, R., Hippensteel, C., Ingersoll, B., & Bishop, L. (2020) · Autism · doi:10.1177/1362361320931265 · Cited by 85 · see citing works
Self-citationPriority service needs and receipt across the lifespan for individuals with autism spectrum disorder
Lai, J. K. Y., & Weiss, J. A. (2017) · Autism Research · doi:10.1002/aur.1786 · Cited by 79 · see citing works
- Authors
- Pickard, K. E., & Ingersoll, B. R.
- Affiliations
- Michigan State University (US)
- Corresponding author
- Pickard, Katherine E
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2015-05-06
- Volume
- 20
- Issue
- 1
- Pages
- 106-115
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2208546705
- Cited by
- 170
- References
- 41
- Citations by year
- 2026: 16 · 2025: 9 · 2024: 25 · 2023: 24 · 2022: 19 · 2021: 8 · 2020: 18 · 2019: 15 · 2018: 12 · 2017: 12 · 2016: 10
- FWCI
- 6.82
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, socioeconomic status, service knowledge, service utilization, unmet service needs, access barriers, parental attitudes, mediation, in-home services, service quality
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Child, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Humans, Health Knowledge, Attitudes, Practice, Male, Parents, Social Class, Socioeconomic Factors
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review