The role of patient-reported outcome measures in the continuum of cancer clinical care: ESMO clinical practice guideline

Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance

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Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial

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Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine cancer treatment

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Effects of a Palliative Care Intervention on Clinical Outcomes in Patients With Advanced Cancer: The Project ENABLE II Randomized Controlled Trial

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What Is the Value of the Routine Use of Patient-Reported Outcome Measures Toward Improvement of Patient Outcomes, Processes of Care, and Health Service Outcomes in Cancer Care? A Systematic Review of Controlled Trials

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Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations

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ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research

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Patient versus clinician symptom reporting using the national cancer institute common terminology criteria for adverse events: results of a questionnaire-based study

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The Missing Voice of Patients in Drug-Safety Reporting

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Summary of the Guidelines for Preventing Opportunistic Infections among Hematopoietic Stem Cell Transplant Recipients

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Cancer-related fatigue: ESMO Clinical Practice Guidelines for diagnosis and treatment

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Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care

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Two-Year Survival Comparing Web-Based Symptom Monitoring vs Routine Surveillance Following Treatment for Lung Cancer

Denis, F., Basch, E., Septans, A.-L., Bennouna, J., Urban, T., Dueck, A. C., & Letellier, C. (2019) · JAMA · doi:10.1001/jama.2018.18085 · Cited by 549 · see citing works

Patient-reported outcomes in routine cancer clinical practice: a scoping review of use, impact on health outcomes, and implementation factors

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Risk adjustment for measuring health care outcomes

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Research in action: using positive deviance to improve quality of health care

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Symptomatic toxicities experienced during anticancer treatment: agreement between patient and physician reporting in three randomized trials

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Randomized Trial Comparing a Web-Mediated Follow-up With Routine Surveillance in Lung Cancer Patients

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Use of Existing Patient-Reported Outcome (PRO) Instruments and Their Modification: The ISPOR Good Research Practices for Evaluating and Documenting Content Validity for the Use of Existing Instruments and Their Modification PRO Task Force Report

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Implementation of Patient-Reported Outcomes in Routine Medical Care

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Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers

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The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: a systematic review of reviews

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Health care providers underestimate symptom intensities of cancer patients: A multicenter European study

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A review of the barriers to using patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs) in routine cancer care

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Recommended Patient-Reported Core Set of Symptoms to Measure in Adult Cancer Treatment Trials

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Maximising the impact of patient reported outcome assessment for patients and society

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Multinational Trials—Recommendations on the Translations Required, Approaches to Using the Same Language in Different Countries, and the Approaches to Support Pooling the Data: The ISPOR Patient-Reported Outcomes Translation and Linguistic Validation Good Research Practices Task Force Report

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Patient-Reported Outcomes In Performance Measurement

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Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings

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Phase III Randomized Controlled Trial of eRAPID: eHealth Intervention During Chemotherapy

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Patient-reported outcome use in oncology: a systematic review of the impact on patient-clinician communication

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Evaluation of a mobile phone-based, advanced symptom management system (ASyMS©) in the management of chemotherapy-related toxicity

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Equivalence of electronic and paper administration of patient-reported outcome measures: a systematic review and meta-analysis of studies conducted between 2007 and 2013

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Patient-reported outcomes in the evaluation of toxicity of anticancer treatments

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Real time remote symptom monitoring during chemotherapy for cancer: European multicentre randomised controlled trial (eSMART)

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Management of Cancer and Health After the Clinic Visit: A Call to Action for Self-Management in Cancer Care

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Functionality and feedback: a realist synthesis of the collation, interpretation and utilisation of patient-reported outcome measures data to improve patient care

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Development of EMPRO: A Tool for the Standardized Assessment of Patient-Reported Outcome Measures

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Purpose of Quality Standards for Infectious Diseases

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Care of the adult cancer patient at the end of life: ESMO Clinical Practice Guidelines

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Automated home monitoring and management of patient‐reported symptoms during chemotherapy: results of the symptom care at home RCT

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Electronic Self-Report Assessment for Cancer and Self-Care Support: Results of a Multicenter Randomized Trial

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Methods for interpreting change over time in patient-reported outcome measures

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Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review

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Clinical utility and user perceptions of a digital system for electronic patient-reported symptom monitoring during routine cancer care: findings from the PRO-TECT trial

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Patient reported outcome assessment must be inclusive and equitable

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Standards for Patient-Reported Outcome–Based Performance Measures

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Cost-Effectiveness of Web-Based Patient-Reported Outcome Surveillance in Patients With Lung Cancer

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Implementing patient-reported outcome measures in clinical practice: a companion guide to the ISOQOL user’s guide

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The effect of real-time electronic monitoring of patient-reported symptoms and clinical syndromes in outpatient workflow of medical oncologists: E-MO AIC, a multicenter cluster-randomized phase III study (SAKK 95/06)

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A scoping review of trials of interventions led or delivered by cancer nurses

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Methods for Developing Patient-Reported Outcome-Based Performance Measures (PRO-PMs)

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The impact of routine Edmonton Symptom Assessment System (ESAS) use on overall survival in cancer patients: results of a population-based retrospective matched cohort analysis

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Key methodological considerations for usability testing of electronic patient-reported outcome (ePRO) systems

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Perceptions of the use of a remote monitoring system in patients receiving palliative care at home

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Symptom recognition in advanced cancer. A comparison of nursing records against patient self‐rating

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Factors Associated With Increased Collection of Patient-Reported Outcomes Within a Large Health Care System

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Tolerability of hormone therapies for breast cancer: How informative are documented symptom profiles in medical notes for ‘well-tolerated’ treatments?

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Impact of Standardized Edmonton Symptom Assessment System Use on Emergency Department Visits and Hospitalization: Results of a Population-Based Retrospective Matched Cohort Analysis

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Patient-Reported Barriers and Facilitators to Seeking and Accessing Support in Gynecologic and Breast Cancer Survivors with Sexual Problems: A Systematic Review of Qualitative and Quantitative Studies

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Web-Based Patient-Reported Outcome Measures for Personalized Treatment and Care (PROMPT-Care): Multicenter Pragmatic Nonrandomized Trial

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Personalized symptom management: a quality improvement collaborative for implementation of patient reported outcomes (PROs) in ‘real-world’ oncology multisite practices

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Effectiveness of nursing interventions among patients with cancer: An overview of systematic reviews

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The use of patient-reported outcomes in routine cancer care: preliminary insights from a multinational scoping survey of oncology practitioners

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Patient free text reporting of symptomatic adverse events in cancer clinical research using the National Cancer Institute’s Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)

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Advancing the use of patient-reported outcomes in practice: understanding challenges, opportunities, and the potential of health information technology

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A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases

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Immediate versus delayed self-reporting of symptoms and side effects during chemotherapy: Does timing matter?

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Managing Chemotherapy Side Effects: Achieving Reliable and Equitable Outcomes

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Breast cancer nursing interventions and clinical effectiveness: a systematic review

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Integration of patient-reported outcomes (PROs) for personalized symptom management in “real-world” oncology practices: a population-based cohort comparison study of impact on healthcare utilization

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Impact of advanced nursing practice through nurse‐led clinics in the care of cancer patients: A scoping review

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Symptom Care at Home

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Patient-reported outcome measures in oncology: a qualitative study of the healthcare professional’s perspective

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Patient-reported outcomes in cancer survivorship

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Comparison of implementation strategies to influence adherence to the clinical pathway for screening, assessment and management of anxiety and depression in adult cancer patients (ADAPT CP): study protocol of a cluster randomised controlled trial

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Chimeric Antigen Receptor T-cell Therapy in Hematologic Malignancies and Patient-reported Outcomes: A Scoping Review

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The Feasibility, Acceptability, and Effectiveness of Electronic Patient-Reported Outcome Symptom Monitoring for Immune Checkpoint Inhibitor Toxicities: A Systematic Review

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Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis: One Decade Later

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Clinical Impact of Routine Assessment of Patient-Reported Health Status in Heart Failure Clinic: The PRO-HF Trial

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Patient-reported Outcome Measurement and Reporting for Patients with Advanced Renal Cell Carcinoma: A Systematic Literature Review

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FASTOCH: Feasibility of Electronic Patient-Reported Outcomes in Older Patients With Cancer—A Multicenter Prospective Study

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Health-related quality of life is underestimated and underreported in phase III clinical trials in NSCLC

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Effectiveness of symptom monitoring on electronic patient-reported outcomes (ePROs) among patients with lung cancer: a systematic review and meta-analysis

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European Society of Breast Cancer Specialists/Advanced Breast Cancer Global Alliance quality indicators for metastatic breast cancer care

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Perceived Barriers Toward Patient-Reported Outcome Implementation in Cancer Care: An International Scoping Survey

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Patient-Related Characteristics Associated with Treatment Modifications and Suboptimal Relative Dose Intensity of Neoadjuvant Chemotherapy in Patients with Breast Cancer—A Retrospective Study

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Under-reporting of subjective symptoms and its prognostic value: a pooled analysis of 12 cancer clinical trials

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Appetite Loss in Patients with Advanced Cancer Treated at an Acute Palliative Care Unit

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Assessing quality of life in solid organ transplant recipients: A systematic review of the development, content, and quality of available condition- and transplant-specific patient-reported outcome measures

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Sustainability and Time Trends in Electronic Patient-Reported Outcome Assessment in Routine Cancer Care: Systematic Scoping Review and Follow-Up Survey

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Patient-Reported Outcome Measure Use in Guidelines Published by the American Academy of Ophthalmology

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Patient‐reported outcome measures for dysphagia in head and neck cancer: A systematic review and appraisal of content validity and internal structure

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„Patient-reported outcomes“ in der onkologischen Versorgung – aktuelle Anwendungsfelder und Initiativen der Deutschen Krebsgesellschaft

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Designing and Validating a Comprehensive Patient-Reported Outcomes Measure for Ambulatory Cancer Settings: The Revised Edmonton Symptom Assessment System for Cancer

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Closing the value-based circle in shared decision-making: a digital framework for informing the shared decision-making process through patient reported outcome and experience measures

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Evaluating the Effectiveness of Mobile Health in Breast Cancer Care: A Systematic Review

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Electronic patient-reported outcomes as digital therapeutics for patients with cancer: a narrative review of current practices and future directions

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Patient-reported outcomes (PROs) in clinical trials and in clinical practice: report from the XXI national conference of the Italian Association of Medical Oncology (AIOM)

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Ten Considerations for Integrating Patient-Reported Outcomes into Clinical Care for Childhood Cancer Survivors

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Implementation of electronic prospective surveillance models in cancer care: a scoping review

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Examining patient-reported late toxicity and its association with quality of life and unmet need for symptom management among nasopharyngeal cancer survivors: a cross-sectional survey

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Defining patient-reported outcomes in diabetes, obesity, cardiovascular disease, and chronic kidney disease for clinical practice guidelines - perspectives of the taskforce of the Guideline Workshop

Barnard-Kelly, K. D., Battelino, T., Brosius, F. C., Ceriello, A., Cosentino, F., Gavin, J. R., Giorgino, F., Green, J., Ji, L., Kellerer, M., et al. (2025) · Cardiovascular Diabetology · doi:10.1186/s12933-024-02550-2 · Cited by 15 · see citing works

Evaluating Nurses' Time to Response by Severity and Cancer Stage in a Remote Symptom Monitoring Program for Patients With Breast Cancer

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Leveraging Large Language Models for Precision Monitoring of Chemotherapy-Induced Toxicities: A Pilot Study with Expert Comparisons and Future Directions

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Survivorship Care for People Affected by Advanced or Metastatic Cancer: Building on the Recent Multinational Association of Supportive Care in Cancer-ASCO Standards and Practice Recommendations

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Pancreatic Cancer Surgery: What Matters to Patients?

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Patient-reported outcome measure to implement routine assessment of cancer survivors’ unmet needs: An overview of reviews and COSMIN analysis

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Harninkontinenz nach radikaler Prostatektomie beim Prostatakarzinom – aktuelle Daten von 17.149 Patienten aus 125 zertifizierten Zentren

Kowalski, C., Sibert, N. T., Hammerer, P. G., Wesselmann, S., Feick, G., Carl, E., Klotz, T., Apel, H., Dieng, S., Nyarangi-Dix, J. N., et al. (2023) · Die Urologie · doi:10.1007/s00120-023-02197-z · Cited by 12 · see citing works

Feasibility and User Experience of Digital Patient Monitoring for Real-World Patients With Lung or Breast Cancer

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Pilot trial of an electronic patient-reported outcome monitoring system in patients with metastatic breast cancer undergoing chemotherapy

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A randomized trial of the impact of symptom monitoring using an electronic patient-reported outcome app on health-related quality of life in postmenopausal breast cancer patients receiving adjuvant endocrine therapy

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The development of an archive of patient-reported outcome measures (PROMs) in oncology: The Italian PRO4All project

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Can Digital Health Improve Therapeutic Compliance in Oncology?

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Feasibility of Using Wearables for Home Monitoring during Radiotherapy for Head and Neck Cancer—Results from the OncoWatch 1.0 Study

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Fixing the Leaky Pipe: How to Improve the Uptake of Patient-Reported Outcomes–Based Prognostic and Predictive Models in Cancer Clinical Practice

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End-of-Life Care Education as Blended Learning Approach for General Practitioners: a Scoping Review

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Interventions for Concerning Patient-Reported Outcomes in Routine Cancer Care: A Systematic Review

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Supportive Digital Health Service During Cancer Chemotherapy: Single-Arm Before-and-After Feasibility Study

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Measuring chronic myeloid leukaemia TKI-related toxic effects in the real world: a systematic review and critical assessment of content validity of patient-reported outcome measures

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The use of patient reported outcome measures in oncology clinical practice across Australia and New Zealand

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Patient-Perceived Benefits and Limitations of Standard of Care Remote Symptom Monitoring During Cancer Treatment

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MyPath: the roadmap to implementing patient-centred care

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The Sarcoma-Specific Instrument to Longitudinally Assess Health-Related Outcomes of the Routine Care Cycle

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A pre-implementation examination of barriers and facilitators of an electronic prospective surveillance model for cancer rehabilitation: a qualitative study

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Cost-Effectiveness of eRAPID eHealth Intervention for Symptom Management During Chemotherapy

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EORTC QLQ-C30 normative data for the United Kingdom: Results of a cross-sectional survey of the general population

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How to select and understand guidelines for patient-reported outcomes: a scoping review of existing guidance

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Patient-reported outcomes in the subpopulation of patients with mismatch repair-deficient/microsatellite instability-high primary advanced or recurrent endometrial cancer treated with dostarlimab plus chemotherapy compared with chemotherapy alone in the ENGOT-EN6-NSGO/GOG3031/RUBY trial

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Co-design of an electronic patient-reported outcome symptom monitoring system for immunotherapy toxicities

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Exploring the integration of patient-reported outcome measures in clinical practice: A cross-sectional survey of EORTC healthcare professionals

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Improvements in health-related quality of life are maintained long-term in patients prescribed medicinal cannabis in Australia: The QUEST Initiative 12-month follow-up observational study

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Interpretation of "The role of patient⁃reported outcome measures in the continuum of cancer clinical care": ESMO clinical practice guideline

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Importance of pain management in cancer patients and survivors

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Needs of patient-reported outcome: from the perspective of clinical practice

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Integration of system-level patient-reported outcome measurement into everyday clinical care: Lessons learned from the cancer care Ontario experience.

Molloy, S., Pereira, J. L., Green, E., Dudgeon, D. J., Howell, D., Krzyzanowska, M. K., Mahase, W., Tabing, R., Urowitz, S., & Macdougall, L. (2014) · Journal of Clinical Oncology · doi:10.1200/jco.2014.32.31_suppl.159