Maximising the impact of patient reported outcome assessment for patients and society

Corrigendum to: 2021 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure: Developed by the Task Force for the diagnosis and treatment of acute and chronic heart failure of the European Society of Cardiology (ESC) With the special contribution of the Heart Failure Association (HFA) of the ESC.

McDonagh, T. A., Metra, M., Adamo, M., Gardner, R. S., Baumbach, A., Böhm, M., Burri, H., Butler, J., Čelutkienė, J., Chioncel, O. D., et al. (2021) · PubMed · doi:10.1093/eurheartj/ehab670 · Cited by 19,618 · see citing works

2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure

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Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial

Basch, E., Deal, A. M., Kris, M. G., Scher, H. I., Hudis, C. A., Sabbatini, P., Rogak, L., Bennett, A. V., Dueck, A. C., Atkinson, T. M., et al. (2016) · Journal of Clinical Oncology · doi:10.1200/jco.2015.63.0830 · Cited by 2,593 · see citing works

Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine cancer treatment

Basch, E., Deal, A. M., Dueck, A. C., Scher, H. I., Kris, M. G., Hudis, C., & Schrag, D. (2017) · JAMA · doi:10.1001/jama.2017.7156 · Cited by 2,302 · see citing works

Patient reported outcome measures could help transform healthcare

Black, N. (2013) · BMJ · doi:10.1136/bmj.f167 · Cited by 1,960 · see citing works

How to select outcome measurement instruments for outcomes included in a “Core Outcome Set”–a practical guideline

Prinsen, C. A. C., Vohra, S., Rose, M. R., Boers, M., Tugwell, P., Clarke, M., Williamson, P. R., & Terwee, C. B. (2016) · Trials · doi:10.1186/s13063-016-1555-2 · Cited by 1,106 · see citing works

Health-Related Quality-of-Life Assessments and Patient-Physician Communication: A Randomized Controlled Trial

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Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols: The SPIRIT-PRO Extension

Calvert, M., Kyte, D., Mercieca-Bebber, R., Slade, A., Chan, A.-W., King, M. T., and the SPIRIT-PRO Group, Hunn, A., Bottomley, A., Regnault, A., et al. (2018) · JAMA · doi:10.1001/jama.2017.21903 · Cited by 814 · see citing works

Patient-Reported Outcomes — Harnessing Patients’ Voices to Improve Clinical Care

Basch, E. (2017) · New England Journal of Medicine · doi:10.1056/nejmp1611252 · Cited by 637 · see citing works

Long-term Patient-Reported Outcomes in Postmastectomy Breast Reconstruction

Santosa, K. B., Qi, J., Kim, H. M., Hamill, J. B., Wilkins, E. G., & Pusic, A. L. (2018) · JAMA Surgery · doi:10.1001/jamasurg.2018.1677 · Cited by 471 · see citing works

Getting the Most out of PROMs: Putting Health Outcomes at the Heart of NHS Decision-Making

Devlin, N. J., & Appleby, J. (2010) · Monographs · Cited by 343 · see citing works

Making Patients and Doctors Happier — The Potential of Patient-Reported Outcomes

Rotenstein, L. S., Huckman, R. S., & Wagle, N. W. (2017) · New England Journal of Medicine · doi:10.1056/nejmp1707537 · Cited by 260 · see citing works

Integrating the Use of Patient‐Reported Outcomes for Both Clinical Practice and Performance Measurement: Views of Experts from 3 Countries

van der Wees, P. J., der Sanden, M. W. G. N., Ayanian, J. Z., Black, N. A., Westert, G. P., & Schneider, E. C. (2014) · Milbank Quarterly · doi:10.1111/1468-0009.12091 · Cited by 242 · see citing works

Functionality and feedback: a realist synthesis of the collation, interpretation and utilisation of patient-reported outcome measures data to improve patient care

Greenhalgh, J., Dalkin, S. M., Gooding, K., Gibbons, E. J., Wright, J. M., Meads, D. M., Black, N. A., Valderas, J. M., & Pawson, R. (2017) · Health Services and Delivery Research · doi:10.3310/hsdr05020 · Cited by 238 · see citing works

Framework and guidance for implementing patient-reported outcomes in clinical practice: evidence, challenges and opportunities

Porter, I. H., Gonçalves, D. C., Ricci‐Cabello, I., Sidey-Gibbons, C. J., Gangannagaripalli, J., Fitzpatrick, R. M., Black, N. A., Greenhalgh, J., & Valderas, J. M. (2016) · Journal of Comparative Effectiveness Research · doi:10.2217/cer-2015-0014 · Cited by 236 · see citing works

Development of EMPRO: A Tool for the Standardized Assessment of Patient-Reported Outcome Measures

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Quality and Outcomes Framework: what have we learnt?:

Roland, M., & Guthrie, B. (2016) · BMJ · doi:10.1136/bmj.i4060 · Cited by 215 · see citing works

Analysing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: a start in setting international standards

Bottomley, A., Pe, M. L., Sloan, J. A., Basch, E., Bonnetain, F., Calvert, M., Campbell, A., Cleeland, C. S., Cocks, K., Collette, L., et al. (2016) · The Lancet Oncology · doi:10.1016/s1470-2045(16)30510-1 · Cited by 203 · see citing works

International Consortium for Health Outcomes Measurement (ICHOM)

Kelley, T. A. (2015) · Trials · doi:10.1186/1745-6215-16-s3-o4 · Cited by 200 · see citing works

Incorporating the patient experience into regulatory decision making in the USA, Europe, and Canada

Kluetz, P. G., O’Connor, D. J., & Soltys, K. M. (2018) · The Lancet Oncology · doi:10.1016/s1470-2045(18)30097-4 · Cited by 199 · see citing works

Measure once, cut twice—adding patient-reported outcome measures to the electronic health record for comparative effectiveness research

Wu, A. W., Kharrazi, H. H. K., Boulware, L. E., & Snyder, C. F. (2013) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2013.04.005 · Cited by 187 · see citing works

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative

Alonso, J., Bartlett, S. J., Rose, M., Aaronson, N. K., Chaplin, J. E., Efficace, F., Leplège, A., Lü, A., Tulsky, D. S., Raat, H., et al. (2013) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-11-210 · Cited by 169 · see citing works

U.S. Food and Drug Administration Approval: Ruxolitinib for the Treatment of Patients with Intermediate and High-Risk Myelofibrosis

Deisseroth, A., Kaminskas, E., Grillo, J. A., Chen, W., Saber, H., Lu, H., Rothmann, M. D., Brar, S. S., Wang, J., Garnett, C. E., et al. (2012) · Clinical Cancer Research · doi:10.1158/1078-0432.ccr-12-0653 · Cited by 149 · see citing works

Cemented, cementless, and hybrid prostheses for total hip replacement: cost effectiveness analysis

Pennington, M., Grieve, R., Sekhon, J. S., GREGG, P. J., Black, N. A., & van der Meulen, J. (2013) · BMJ · doi:10.1136/bmj.f1026 · Cited by 134 · see citing works

Development of an integrated electronic platform for patient self-report and management of adverse events during cancer treatment

Holch, P., Warrington, L., Bamforth, L., Keding, A., Ziegler, L. E., Absolom, K. L., Hector, C., Harley, C., Johnson, O. A., Hall, G. D., et al. (2017) · Annals of Oncology · doi:10.1093/annonc/mdx317 · Cited by 121 · see citing works

Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium Guidance

Banerjee, A. K., Okun, S., Edwards, I. R., Wicks, P. J., Smith, M. Y., Mayall, S. J., Flamion, B., Cleeland, C. S., & Basch, E. (2013) · Drug Safety · doi:10.1007/s40264-013-0113-z · Cited by 113 · see citing works

Effects of cardiac resynchronization therapy on long-term quality of life: An analysis from the CArdiac Resynchronisation-Heart Failure (CARE-HF) study

Cleland, J. G. F., Calvert, M., Verboven, Y., & Freemantle, N. (2009) · American Heart Journal · doi:10.1016/j.ahj.2008.11.006 · Cited by 113 · see citing works

Use of Patient-Reported Outcome (PRO) Measures at Group and Patient Levels: Experiences From the Generic Integrated PRO System, WestChronic

Hjøllund, N. H., Larsen, L. P., Biering, K., Johnsen, S. P., Riiskjær, E., & Schougaard, L. M. V. (2014) · Interactive Journal of Medical Research · doi:10.2196/ijmr.2885 · Cited by 99 · see citing works

Planning and reporting of quality-of-life outcomes in cancer trials

Schandelmaier, S., Conen, K. L., von Elm, E. B., You, J. J., Blümle, A., Tomonaga, Y., Amstutz, A., Briel, M., Kasenda, B., Schandelmaier, S., et al. (2015) · Annals of Oncology · doi:10.1093/annonc/mdv283 · Cited by 65 · see citing works

Putting patient-reported outcomes on the ‘Big Data Road Map’.

Calvert, M., Thwaites, R., Kyte, D., & Devlin, N. (2015) · Journal of the Royal Society of Medicine · doi:10.1177/0141076815579896 · Cited by 52 · see citing works

Patient-Reported Outcome Alerts

Kyte, D. G., Draper, H., & Calvert, M. (2013) · JAMA · doi:10.1001/jama.2013.277222 · Cited by 45 · see citing works

Reflections on the national patient-reported outcome measures (PROMs) programme: Where do we go from here?

Kyte, D. G., Cockwell, P., Lencioni, M., Skrybant, M., Hildebrand, M., Price, G. W., Squire, K., Webb, S., Brookes, O., Fanning, H., et al. (2016) · Journal of the Royal Society of Medicine · doi:10.1177/0141076816677856 · Cited by 39 · see citing works

Lessons From Large-Scale Collection of Patient-Reported Outcomes: Implications for Big Data Aggregation and Analytics

Sloan, J. A., Halyard, M. Y., Naqa, I. E., & Mayo, C. S. (2016) · International Journal of Radiation Oncology*Biology*Physics · doi:10.1016/j.ijrobp.2016.04.002 · Cited by 32 · see citing works

Presenting comparative study PRO results to clinicians and researchers: beyond the eye of the beholder

PRO Data Presentation Stakeholder Advisory Board (various names and locations), Brundage, M., Blackford, A. L., Tolbert, E. E., Smith, K. C., Bantug, E. T., & Snyder, C. F. (2017) · Quality of Life Research · doi:10.1007/s11136-017-1710-6 · Cited by 30 · see citing works

Integrating health-related quality of life findings from randomized clinical trials into practice: an international study of oncologists’ perspectives

Rouette, J., Blazeby, J. M., King, M. T., Calvert, M., Peng, Y., Meyer, R. M., Ringash, J. G., Walker, M., & Brundage, M. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0871-9 · Cited by 29 · see citing works

Patient-reported outcomes and survival in multiple sclerosis: A 10-year retrospective cohort study using the Multiple Sclerosis Impact Scale–29

Raffel, J., Wallace, A., Gveric, D. O., Reynolds, R., Friede, T., & Nicholas, R. S. (2017) · PLoS Medicine · doi:10.1371/journal.pmed.1002346 · Cited by 25 · see citing works

Use of an electronic patient-reported outcome measure in the management of patients with advanced chronic kidney disease: the RePROM pilot trial protocol

Kyte, D. G., Bishop, J. R. B., Brettell, E. A., Calvert, M., Cockwell, P., Dutton, M., Eddington, H., Hadley, G., Ives, N. J., Jackson, L. J., et al. (2018) · BMJ Open · doi:10.1136/bmjopen-2018-026080 · Cited by 24 · see citing works

Introduction to special section: quantitative methods

Revicki, D. A., & Schwartz, C. E. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0887-1 · Cited by 21 · see citing works

2020 ESC Guidelines for the diagnosis and management of atrial fibrillation developed in collaboration with the European Association of Cardio-Thoracic Surgery (EACTS).

Hindricks, G., Potpara, T., Dagres, N., Arbelo, E., Bax, J., Blomström-Lundqvist, C., Boriani, G., Castellá, M., Dan, G., Dilaveris, P. E., et al. (2020) · European Heart Journal · doi:10.1093/eurheartj/ehaa612 · Cited by 2,605 · see citing works

The role of patient-reported outcome measures in the continuum of cancer clinical care: ESMO clinical practice guideline

Di Maio, M., Basch, E., Denis, F., Fallowfield, L. J., Ganz, P. A., Howell, D., Kowalski, C., Perrone, F., Stover, A. M., Sundaresan, P., et al. (2022) · Annals of Oncology · doi:10.1016/j.annonc.2022.04.007 · Cited by 509 · see citing works

Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice

Sidey-Gibbons, C. J., Porter, I. H., Gonçalves, D. C., Stoilov, S., Ricci‐Cabello, I., Tsangaris, E., Gangannagaripalli, J., Davey, A. F., Gibbons, E. J., Kotzeva, A., et al. (2021) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd011589.pub2 · Cited by 209 · see citing works

The impact of patient-reported outcome (PRO) data from clinical trials: a systematic review and critical analysis

Rivera, S. C., Kyte, D. G., Aiyegbusi, O. L., Slade, A. L., McMullan, C., & Calvert, M. (2019) · Health and Quality of Life Outcomes · doi:10.1186/s12955-019-1220-z · Cited by 194 · see citing works

Clinimetric Criteria for Patient-Reported Outcome Measures

Carrozzino, D., Patierno, C., Guidi, J., Montiel, C. B., Cao, J., Charlson, M. E., Christensen, K. S., Concato, J., Cuevas, C. D. L., de León, J., et al. (2021) · Psychotherapy and Psychosomatics · doi:10.1159/000516599 · Cited by 178 · see citing works

PROMs data: can it be used to make decisions for individual patients? A narrative review

Field, J. R., Holmes, M. M., & Newell, D. (2019) · Patient Related Outcome Measures · doi:10.2147/prom.s156291 · Cited by 177 · see citing works

Harnessing the patient voice in real-world evidence: the essential role of patient-reported outcomes

Calvert, M., O’Connor, D. J., & Basch, E. (2019) · Nature Reviews Drug Discovery · doi:10.1038/d41573-019-00088-7 · Cited by 157 · see citing works

Patient reported outcome assessment must be inclusive and equitable

Calvert, M., Rivera, S. C., Retzer, A., Hughes, S., Campbell, L. A., Molony-Oates, B., Aiyegbusi, O. L., Stover, A. M., Wilson, R., McMullan, C., et al. (2022) · Nature Medicine · doi:10.1038/s41591-022-01781-8 · Cited by 153 · see citing works

Development and validation of the symptom burden questionnaire for long covid (SBQ-LC): Rasch analysis

Hughes, S., Haroon, S., Subramanian, A., McMullan, C., Aiyegbusi, O. L., Turner, G. M., Jackson, L., Davies, E. H., Frost, C., McNamara, G., et al. (2022) · BMJ · doi:10.1136/bmj-2022-070230 · Cited by 142 · see citing works

Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT)

Pariser, D. M., Simpson, E. L., Gadkari, A. S., Bieber, T. R. M., Margolis, D. J., Brown, T. M., Nelson, L. M., Mahajan, P. S., Reaney, M. D., Guillemin, I., et al. (2019) · Current Medical Research and Opinion · doi:10.1080/03007995.2019.1699516 · Cited by 140 · see citing works

SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials

Calvert, M., King, M. T., Mercieca‐Bebber, R., Aiyegbusi, O. L., Kyte, D. G., Slade, A. L., Chan, A., Basch, E., Bell, J. A., Bennett, A. V., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-045105 · Cited by 140 · see citing works

Recommendations to address respondent burden associated with patient-reported outcome assessment

Aiyegbusi, O. L., Rivera, S. C., Roydhouse, J. K., Kamudoni, P., Alder, Y., Anderson, N. E., Baldwin, R. M., Bhatnagar, V., Black, J., Bottomley, A., et al. (2024) · Nature Medicine · doi:10.1038/s41591-024-02827-9 · Cited by 137 · see citing works

Quality of care assessment for people with multimorbidity

Valderas, J. M., Gangannagaripalli, J., Nolte, E., Boyd, C. M., Roland, M. O., Sarría‐Santamera, A., Jones, E., & Rijken, M. (2019) · Journal of Internal Medicine · doi:10.1111/joim.12881 · Cited by 102 · see citing works

Routinely measuring symptom burden and health-related quality of life in dialysis patients: first results from the Dutch registry of patient-reported outcome measures

van der Willik, E. M., Hemmelder, M. H., Bart, H. A. J., van Ittersum, F. J., den Akker, J. M. H.-V., Bos, W. J. W., Dekker, F. W., & Meuleman, Y. (2019) · Clinical Kidney Journal · doi:10.1093/ckj/sfz192 · Cited by 99 · see citing works

Quality indicators for the care and outcomes of adults with atrial fibrillation

Arbelo, E., (Chair), Aktaa, S., Bollmann, A., d’Ávila, A., Drossart, I., Dwight, J., Hills, M. T., Hindricks, G., Kusumoto, F. M., et al. (2020) · EP Europace · doi:10.1093/europace/euaa253 · Cited by 98 · see citing works

An overview of the time trade-off method: concept, foundation, and the evaluation of distorting factors in putting a value on health

Lugnér, A. K., & Krabbe, P. F. M. (2020) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1080/14737167.2020.1779062 · Cited by 99 · see citing works

Embedding patient-reported outcomes at the heart of artificial intelligence health-care technologies

Rivera, S. C., Liu, X., Hughes, S., Dunster, H., Manna, E., Denniston, A. K., & Calvert, M. (2023) · The Lancet Digital Health · doi:10.1016/s2589-7500(22)00252-7 · Cited by 94 · see citing works

Ethical Considerations for the Inclusion of Patient-Reported Outcomes in Clinical Research

Rivera, S. C., Aiyegbusi, O. L., Ives, J., Draper, H., Mercieca‐Bebber, R., Ells, C., Hunn, A., Scott, J. A., Fernandez, C. V., Dickens, A., et al. (2022) · JAMA · doi:10.1001/jama.2022.6421 · Cited by 94 · see citing works

Patient-reported outcomes and medication adherence in patients with heart failure

Rasmussen, A. A., Wiggers, H., Jensen, M., Berg, S. K., Rasmussen, T. B., Borregaard, B., Thrysoee, L., Thorup, C. B., Mols, R. E., Larsen, S. H., et al. (2020) · European Heart Journal - Cardiovascular Pharmacotherapy · doi:10.1093/ehjcvp/pvaa097 · Cited by 69 · see citing works

Quality of life trajectories in survivors of acute myocardial infarction: a national longitudinal study

Munyombwe, T., Hall, M., Dondo, T. B., Alabas, O., Gerard, O., West, R. M., Pujades‐Rodríguez, M., Hall, A. S., & Gale, C. P. (2019) · Heart · doi:10.1136/heartjnl-2019-315510 · Cited by 66 · see citing works

Measure what we want: a taxonomy of short generic person-reported outcome and experience measures (PROMs and PREMs)

Benson, T. (2020) · BMJ Open Quality · doi:10.1136/bmjoq-2019-000789 · Cited by 63 · see citing works

The development of PROmunication: a training-tool for clinicians using patient-reported outcomes to promote patient-centred communication in clinical cancer settings

Skovlund, P. C., Ravn, S., Seibæk, L., Thaysen, H. V., Lomborg, K. E., & Nielsen, B. K. (2020) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-020-0174-6 · Cited by 62 · see citing works

First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda

Withers, K. L., Palmer, R. I., Lewis, S., & Carolan‐Rees, G. (2020) · Quality of Life Research · doi:10.1007/s11136-020-02711-2 · Cited by 61 · see citing works

The Use of Mobile Apps for Heart Failure Self-management: Systematic Review of Experimental and Qualitative Studies

Giordan, L. B., Tong, H. L., Atherton, J. J., Ronto, R., Chau, J. Y., Kaye, D. M., Shaw, T. J., Chow, C. K., & Laranjo, L. (2022) · JMIR Cardio · doi:10.2196/33839 · Cited by 55 · see citing works

Why it is hard to use PROMs and PREMs in routine health and care

Benson, T. (2023) · BMJ Open Quality · doi:10.1136/bmjoq-2023-002516 · Cited by 61 · see citing works

Fifteen Years’ Use of Patient-Reported Outcome Measures at the Group and Patient Levels: Trend Analysis

Hjøllund, N. H. (2019) · Journal of Medical Internet Research · doi:10.2196/15856 · Cited by 58 · see citing works

Distinct profiles of anhedonia and reward processing and their prospective associations with quality of life among individuals with mood disorders

Whitton, A. E., Kumar, P., Treadway, M. T., Rutherford, A. V., Ironside, M. L., Foti, D., Fitzmaurice, G. M., Du, F., & Pizzagalli, D. A. (2023) · Molecular Psychiatry · doi:10.1038/s41380-023-02165-1 · Cited by 55 · see citing works

Psychological, social and everyday visual impact of diabetic macular oedema and diabetic retinopathy: a systematic review

Cooper, O. A. E., Taylor, D. J., Crabb, D. P., Sim, D. A., & McBain, H. B. (2019) · Diabetic Medicine · doi:10.1111/dme.14125 · Cited by 54 · see citing works

The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders

Rivera, S. C., McMullan, C., Jones, L. L., Kyte, D. G., Slade, A. L., & Calvert, M. (2020) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-020-00219-4 · Cited by 53 · see citing works

Including the patient voice in the development and implementation of patient‐reported outcomes in cancer clinical trials

Addario, B. J., Geißler, J., Horn, M. K., Krebs, L. U., Maskens, D. A., Oliver, K. R., Plate, A., Schwartz, E. C., & Willmarth, N. E. (2019) · Health Expectations · doi:10.1111/hex.12997 · Cited by 52 · see citing works

Beyond intraocular pressure: Optimizing patient-reported outcomes in glaucoma

Fenwick, E., Man, R. E. K., Aung, T., Ramulu, P. Y., & Lamoureux, E. L. (2019) · Progress in Retinal and Eye Research · doi:10.1016/j.preteyeres.2019.100801 · Cited by 52 · see citing works

Pragmatic trials of pain therapies: a systematic review of methods

Hohenschurz‐Schmidt, D., Kleykamp, B. A., Draper‐Rodi, J., Vollert, J., Chan, J., Ferguson, M. C., McNicol, E. D., Phalip, J., Evans, S. R., Turk, D. C., et al. (2021) · Pain · doi:10.1097/j.pain.0000000000002317 · Cited by 49 · see citing works

Understanding factors impacting patient-reported outcome measures integration in routine clinical practice: an umbrella review

Anderson, M., van Kessel, R., Wood, E., Stokes, A., Fistein, J., Porter, I. H., Mossialos, E. A., & Valderas, J. M. (2024) · Quality of Life Research · doi:10.1007/s11136-024-03728-7 · Cited by 50 · see citing works

Predictors of health-related quality of life after cardiac surgery: a systematic review

Sanders, J., Bowden, T., Woolfe-Loftus, N., Sekhon, M., & Aitken, L. (2022) · Health and Quality of Life Outcomes · doi:10.1186/s12955-022-01980-4 · Cited by 44 · see citing works

Collection and use of EQ-5D for follow-up, decision-making, and quality improvement in health care - the case of the Swedish National Quality Registries

Ernstsson, O., Janssen, M. F., & Heintz, E. (2020) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-020-00231-8 · Cited by 44 · see citing works

Person centred care provision and care planning in chronic kidney disease: which outcomes matter? A systematic review and thematic synthesis of qualitative studies

de Jong, Y., van der Willik, E. M., Milders, J., Meuleman, Y., Morton, R. L., Dekker, F. W., & van Diepen, M. (2021) · BMC Nephrology · doi:10.1186/s12882-021-02489-6 · Cited by 44 · see citing works

Implementing learning health systems in the UK NHS: Policy actions to improve collaboration and transparency and support innovation and better use of analytics

Scobie, S., & Castle‐Clarke, S. (2019) · Learning Health Systems · doi:10.1002/lrh2.10209 · Cited by 42 · see citing works

Value Lies in the Eye of the Patients: The Why, What, and How of Patient-reported Outcomes Measures

Ciani, O., & Federici, C. (2020) · Clinical Therapeutics · doi:10.1016/j.clinthera.2019.11.016 · Cited by 42 · see citing works

Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study

Mazariego, C. G., Jefford, M., Chan, R. J., Roberts, N. A., Millar, L., Anazodo, A. C., Hayes, S. C., Brown, B., Saunders, C. M., Webber, K., et al. (2022) · Journal of Cancer Survivorship · doi:10.1007/s11764-021-01135-2 · Cited by 44 · see citing works

Systematic review of guidance for the collection and use of patient-reported outcomes in real-world evidence generation to support regulation, reimbursement and health policy

Maruszczyk, K., Aiyegbusi, O. L., Torlińska, B., Collis, P., Keeley, T., & Calvert, M. (2022) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-022-00466-7 · Cited by 40 · see citing works

Electronic reporting of patient-reported outcomes in a fragile and comorbid population during cancer therapy – a feasibility study

Taarnhøj, G. A., Lindberg, H., Dohn, L. H., Omland, L. H., Hjøllund, N. H., Johansen, C., & Pappot, H. (2020) · Health and Quality of Life Outcomes · doi:10.1186/s12955-020-01480-3 · Cited by 41 · see citing works

Patient-facing cancer mobile apps that enable patient reported outcome data to be collected: A systematic review of content, functionality, quality, and ability to integrate with electronic health records

Vercell, A., Gasteiger, N., Yorke, J., & Dowding, D. (2023) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2022.104931 · Cited by 36 · see citing works

Quality of recovery following childbirth: a prospective, multicentre cohort study

O’Carroll, J., Zucco, L., Warwick, E., Arbane, G., Moonesinghe, R., El‐Boghdadly, K., Guo, N., Carvalho, B., Sultan, P., & Collaborators, T. O. (2023) · Anaesthesia · doi:10.1111/anae.16039 · Cited by 38 · see citing works

Discrepancy in the perception of symptoms among patients and healthcare providers after lung cancer surgery

Wei, X., Yu, H., Dai, W., Xu, W., Yu, Q., Pu, Y., Wang, Y., Liao, J. X., Li, Q., & Shi, Q. (2021) · Supportive Care in Cancer · doi:10.1007/s00520-021-06506-0 · Cited by 37 · see citing works

Lost in translation: A qualitative analysis of facilitators and barriers to collecting patient reported outcome measures for surgical patients with limited English proficiency

Allar, B. G., Eruchalu, C. N., Rahman, S. B., Mou, D., Ortega, G., Reich, A. J., Pusic, A. L., Brook, C. D., Sisodia, R. C., & Bergmark, R. W. (2022) · The American Journal of Surgery · doi:10.1016/j.amjsurg.2022.03.005 · Cited by 35 · see citing works

The Use of Patient-Reported Outcomes in Patients Treated With Maintenance Hemodialysis: A Perspective

Anderson, N. E., Calvert, M., Cockwell, P., Dutton, M., & Kyte, D. G. (2019) · American Journal of Kidney Diseases · doi:10.1053/j.ajkd.2019.01.035 · Cited by 31 · see citing works

The Assessment of Patient-Reported Outcomes for the Authorisation of Medicines in Europe: A Review of European Public Assessment Reports from 2017 to 2022

Meregaglia, M., Malandrini, F. B., Angelini, S., & Ciani, O. (2023) · Applied Health Economics and Health Policy · doi:10.1007/s40258-023-00827-3 · Cited by 31 · see citing works

Reliability and Validity of the HIV Disability Questionnaire (HDQ) with Adults Living with HIV in the United States

O’Brien, K. K., Kietrys, D. M., Galantino, M. L., Parrott, J. S., Davis, T. E. K., Tran, Q., Aubry, R. L., & Solomon, P. E. (2019) · Journal of the International Association of Providers of AIDS Care (JIAPAC) · doi:10.1177/2325958219888461 · Cited by 29 · see citing works

Patient-reported outcome measurement: a bridge between health and social care?

Hughes, S., Aiyegbusi, O. L., Lasserson, D. S., Collis, P., Glasby, J., & Calvert, M. (2021) · Journal of the Royal Society of Medicine · doi:10.1177/01410768211014048 · Cited by 31 · see citing works

Implementing PROMs in routine clinical care: a qualitative exploration of GP perspectives

Litchfield, I. J., Greenfield, S., Turner, G., Finnikin, S., & Calvert, M. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101135 · Cited by 30 · see citing works

Towards standardization of measuring anxiety and depression: Differential item functioning for language and Dutch reference values of PROMIS item banks

Elsman, E. B. M., Flens, G., de Beurs, E., Roorda, L. D., & Terwee, C. B. (2022) · PLoS ONE · doi:10.1371/journal.pone.0273287 · Cited by 30 · see citing works

Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years’ experience with PRO-algorithm-based patient-clinician interaction (telePRO) in AmbuFlex

Hjøllund, N. H., Larsen, L. P., de Thurah, A. L., Grove, B. E., Skúladóttir, H., Linnet, H., Friis, R. B., Johnsen, S. P., May, O., Jensen, A. L., et al. (2023) · Quality of Life Research · doi:10.1007/s11136-022-03322-9 · Cited by 30 · see citing works

Importance and Assessment of Quality of Life in Symptomatic Permanent Atrial Fibrillation: Patient Focus Groups from the RATE-AF Trial

Jones, J., Stanbury, M., Haynes, S., Bunting, K. V., Lobban, T., Camm, A. J., Calvert, M., Kotecha, D., & on behalf of the RAte control Therapy Evaluation in permanent Atrial Fibrillation (RATE-AF) trial group (2020) · Cardiology · doi:10.1159/000511048 · Cited by 29 · see citing works

Toward System-Wide Implementation of Patient-Reported Outcome Measures: A Framework for Countries, States, and Regions

Ernst, S.-C. K., Steinbeck, V., Busse, R., & Pross, C. M. (2022) · Value in Health · doi:10.1016/j.jval.2022.04.1724 · Cited by 28 · see citing works

Patient-reported outcomes for ambulatory surgery

Warnakulasuriya, S. R., Patel, R., Singleton, G. F., & Moonesinghe, R. (2020) · Current Opinion in Anaesthesiology · doi:10.1097/aco.0000000000000921 · Cited by 27 · see citing works

Guía ESC 2020 sobre el diagnóstico y tratamiento de la fibrilación auricular, desarrollada en colaboración de la European Association of Cardio-Thoracic Surgery (EACTS)

Hindricks, G., Potpara, T. S., Dagres, N., Arbelo, E., Bax, J. J., Blomström-Lundqvist, C., Boriani, G., Castellá, M., Dan, G., Dilaveris, P. E., et al. (2021) · Revista Española de Cardiología · doi:10.1016/j.recesp.2020.10.022 · Cited by 24 · see citing works

Ethnography and user-centered design to inform context-driven implementation

Haines, E. R., Kirk, M. A., Lux, L., Smitherman, A. B., Powell, B. J., Dopp, A. R., Stover, A. M., & Birken, S. A. (2021) · Translational Behavioral Medicine · doi:10.1093/tbm/ibab077 · Cited by 27 · see citing works

Patients’ experiences regarding self-monitoring of the disease course: an observational pilot study in patients with inflammatory rheumatic diseases at a rheumatology outpatient clinic in The Netherlands

Renskers, L., Dartel, S. A. A. R.-V., Huis, A. M. P., & van Riel, P. L. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-033321 · Cited by 28 · see citing works

Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease

Kyte, D. G., Anderson, N. E., Auti, R., Aiyegbusi, O. L., Bishop, J. R. B., Bissell, A., Brettell, E. A., Calvert, M., Chadburn, M., Cockwell, P., et al. (2020) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-020-00223-8 · Cited by 28 · see citing works

Towards standardization of fatigue measurement: Psychometric properties and reference values of the PROMIS Fatigue item bank in the Dutch general population

Terwee, C. B., Elsman, E. B. M., & Roorda, L. D. (2022) · Research Methods in Medicine & Health Sciences · doi:10.1177/26320843221089628 · Cited by 26 · see citing works

Patient-reported outcomes and target effect sizes in pragmatic randomized trials in ClinicalTrials.gov: A cross-sectional analysis

Vanderhout, S. M., Fergusson, D. A., Cook, J. A., & Taljaard, M. (2022) · PLoS Medicine · doi:10.1371/journal.pmed.1003896 · Cited by 26 · see citing works

Patient- and 3D morphometry-based nose outcomes after skeletofacial reconstruction

Denadai, R., Chou, P., Seo, H. J., Lonic, D., Lin, H., Pai, B. C.-J., & Lo, L. (2020) · Scientific Reports · doi:10.1038/s41598-020-61233-6 · Cited by 25 · see citing works

User experiences on implementation of patient reported outcome measures (PROMs) in a Haematological outpatient clinic

Hansen, S. T., Kjerholt, M., Christensen, S. F., Brodersen, J., & Hølge‐Hazelton, B. (2020) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-020-00256-z · Cited by 25 · see citing works

International perspectives on suboptimal patient‐reported outcome trial design and reporting in cancer clinical trials: A qualitative study

Retzer, A., Calvert, M., Ahmed, K., Keeley, T., Armes, J., Brown, J. M., Calman, L. A., Gavin, A., Glaser, A., Greenfield, D., et al. (2021) · Cancer Medicine · doi:10.1002/cam4.4111 · Cited by 24 · see citing works

Immediate and delayed autologous abdominal microvascular flap breast reconstruction in patients receiving adjuvant, neoadjuvant or no radiotherapy: a meta-analysis of clinical and quality-of-life outcomes

Khajuria, A., Charles, W. N., Prokopenko, M. I., Beswick, A. D., Pusic, A. L., Mosahebi, A., Dodwell, D. J., & Winters, Z. (2019) · BJS Open · doi:10.1002/bjs5.50245 · Cited by 24 · see citing works

Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis

O’Brien, K. K., Dzingina, M. D., Harding, R., Gao, W., Namisango, E., Avery, L. M., & Davis, A. M. (2021) · Health and Quality of Life Outcomes · doi:10.1186/s12955-020-01643-2 · Cited by 23 · see citing works

An actionable needs assessment for adolescents and young adults with cancer: the AYA Needs Assessment & Service Bridge (NA-SB)

Haines, E. R., Lux, L., Smitherman, A. B., Kessler, M. L., Schonberg, J., Dopp, A. R., Stover, A. M., Powell, B. J., & Birken, S. A. (2021) · Supportive Care in Cancer · doi:10.1007/s00520-021-06024-z · Cited by 24 · see citing works

Reducing the pressures of outpatient care: the potential role of patient-reported outcomes

Aiyegbusi, O. L., Hughes, S., Peipert, J. D., Schougaard, L. M. V., Wilson, R., & Calvert, M. (2023) · Journal of the Royal Society of Medicine · doi:10.1177/01410768231152222 · Cited by 24 · see citing works

Patient-reported outcome and experience measures for quality improvement in pregnancy and childbirth care: a retrospective cohort study

Klootwijk, A., Bakx, P., Franx, A., Bijma, H. H., Ernst‐Smelt, H. E., Ruiter, M. L.-D., Posthumus, A. G., & van Rijn, B. B. (2023) · BMJ Open Quality · doi:10.1136/bmjoq-2022-001922 · Cited by 24 · see citing works

Performance measurement and user‐centeredness in the healthcare sector: Opening the black box adapting the framework of Donabedian

Rosis, S. D. (2023) · The International Journal of Health Planning and Management · doi:10.1002/hpm.3732 · Cited by 23 · see citing works

Using Uniocular Visual Acuity Substantially Underestimates the Impact of Visual Impairment on Quality of Life Compared with Binocular Visual Acuity

Man, R. E. K., Gan, A. T. L., Fenwick, E., Thakur, S., Gupta, P., Teo, Z. L., Cheng, C., Wong, T. Y., & Lamoureux, E. L. (2020) · Ophthalmology · doi:10.1016/j.ophtha.2020.01.056 · Cited by 23 · see citing works

Identifying Patient-Reported Outcome Measures (PROMs) for Routine Surveillance of Physical and Emotional Symptoms in Head and Neck Cancer Populations: A Systematic Review

Faria, S. D. O., Hurwitz, G., Kim, J., Liberty, J., Orchard, K., Liu, G., Barbera, L. C., & Howell, D. (2021) · Journal of Clinical Medicine · doi:10.3390/jcm10184162 · Cited by 23 · see citing works

Health Data Processes: A Framework for Analyzing and Discussing Efficient Use and Reuse of Health Data With a Focus on Patient-Reported Outcome Measures

Hjøllund, N. H., Valderas, J. M., Kyte, D. G., & Calvert, M. (2019) · Journal of Medical Internet Research · doi:10.2196/12412 · Cited by 23 · see citing works

Use of Electronic Patient Reported Outcomes in Clinical Nephrology Practice: A Qualitative Pilot Study

Schick‐Makaroff, K., Tate, K., & Molzahn, A. E. (2019) · Canadian Journal of Kidney Health and Disease · doi:10.1177/2054358119879451 · Cited by 22 · see citing works

What is the future of patient-reported outcomes in sickle-cell disease?

Singh, S. A., Bakshi, N., Mahajan, P., & Morris, C. R. (2020) · Expert Review of Hematology · doi:10.1080/17474086.2020.1830370 · Cited by 22 · see citing works

Delivering Person-Centered Peritoneal Dialysis

Corbett, R., Beckwith, H., Lucisano, G., & Brown, E. A. (2023) · Clinical Journal of the American Society of Nephrology · doi:10.2215/cjn.0000000000000281 · Cited by 22 · see citing works

Core patient-reported outcome domains for routine clinical care in chronic pain management: patients’ and healthcare professionals’ perspective

Zidarov, D., Zidarova-Carrié, A., Visca, R., Miller, J., Brecht, K., Viens, N., & Ahmed, S. (2020) · Quality of Life Research · doi:10.1007/s11136-020-02459-9 · Cited by 21 · see citing works

Power of big data to improve patient care in gastroenterology

Catlow, J., Bray, B. D., Morris, E., & Rutter, M. (2021) · Frontline Gastroenterology · doi:10.1136/flgastro-2019-101239 · Cited by 18 · see citing works

Patient-reported outcome measures in ophthalmology: too difficult to read?

Taylor, D. J., Jones, L., Edwards, L. A., & Crabb, D. P. (2021) · BMJ Open Ophthalmology · doi:10.1136/bmjophth-2020-000693 · Cited by 20 · see citing works

Dexamethasone and clinically significant postoperative nausea and vomiting: a prespecified substudy of the randomised perioperative administration of dexamethasone and infection (PADDI) trial

Corcoran, T. B., Martin, C., O’Loughlin, E., Ho, K. M., Coutts, P., Chan, M. T. V., Forbes, A. B., Leslie, K., & Myles, P. S. (2022) · British Journal of Anaesthesia · doi:10.1016/j.bja.2022.05.018 · Cited by 20 · see citing works

Patient-reported outcomes in metastatic renal cell carcinoma trials using combinations versus sunitinib as first-line treatment

Nolla, K. M., Benjamin, D. J., & Cella, D. F. (2023) · Nature Reviews Urology · doi:10.1038/s41585-023-00747-w · Cited by 19 · see citing works

Digital Patient Reported Outcome Measures Platform for Post–COVID-19 Condition and Other Long-Term Conditions: User-Centered Development and Technical Description

Sivan, M., Lawrence, R. R., & O'Brien, P. (2023) · JMIR Human Factors · doi:10.2196/48632 · Cited by 20 · see citing works

International mixed methods study protocol to develop a patient-reported outcome measure for all types of chronic wounds (the WOUND-Q)

Klassen, A. F., van Haren, E. L. W. G., Cross, K., Fan, K. L., Sidey-Gibbons, C. J., Hoogbergen, M. M., Longmire, N. M., Poulsen, L., Sørensen, J. A., Squitieri, L. S., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-032332 · Cited by 20 · see citing works

“I Want It to Look Natural”: Development and Validation of the FACE-Q Aesthetics Natural Module

Klassen, A. F., Cano, S., Mansouri, J., Poulsen, L., Rae, C. S., Kaur, M. N., Dayan, S. H., Tsangaris, E., Armstrong, K., Klok, J. A., et al. (2024) · Aesthetic Surgery Journal · doi:10.1093/asj/sjad374 · Cited by 19 · see citing works

Redefining Success in Hernia Surgery: The Case for Patient-Reported Outcomes

Rosenberg, J., Gram‐Hanssen, A., Reistrup, H., & Baker, J. J. (2025) · Journal of Clinical Medicine · doi:10.3390/jcm14176131 · Cited by 19 · see citing works

VHI-10 Scores in a Treatment-Seeking Population With Dysphonia

Sund, L. T., Collum, J. A., Bhatt, N. K., & Hapner, E. R. (2021) · Journal of Voice · doi:10.1016/j.jvoice.2020.12.017 · Cited by 19 · see citing works

Putting patients first: ambulatory surgery facilitates patient-centered care

Joshi, G. P. (2021) · Current Opinion in Anaesthesiology · doi:10.1097/aco.0000000000001070 · Cited by 19 · see citing works

Obesity in Pregnancy – Patient-Reported Outcomes in Qualitative Research: A Systematic Review

Dadouch, R., Hall, C., Mont, J. D., & D'Souza, R. D. (2020) · Journal of Obstetrics and Gynaecology Canada · doi:10.1016/j.jogc.2019.09.011 · Cited by 19 · see citing works

Reconsidering Diagnosis, Treatment, and Postoperative Care in Children with Cloacal Malformations

Versteegh, H. P., Gardner, D. S., Scriven, L., Martens, L., Kluivers, K. B., Hewitt, G. D., de Blaauw, I., Wood, R. J., Williams, A., & Sutcliffe, J. R. (2021) · Journal of Pediatric and Adolescent Gynecology · doi:10.1016/j.jpag.2021.08.009 · Cited by 18 · see citing works

Selecting patient-reported outcome measures: “what” and “for whom”

Liu, J. B., Rothrock, N. E., & Edelen, M. O. (2024) · Health Affairs Scholar · doi:10.1093/haschl/qxae038 · Cited by 18 · see citing works

Sociodemographic, personal, and disease-related determinants of referral to patient-reported outcome-based follow-up of remote outpatients: a prospective cohort study

Schougaard, L. M. V., de Thurah, A. L., Christensen, J., Lomborg, K. E., Maindal, H. T., Mejdahl, C. T., Vestergaard, J. M., Winding, T. N., Biering, K., & Hjøllund, N. H. (2020) · Quality of Life Research · doi:10.1007/s11136-019-02407-2 · Cited by 18 · see citing works

Outcome measures in forensic mental health services: A systematic review of instruments and qualitative evidence synthesis

Ryland, H., Cook, J. A., Yukhnenko, D., Fitzpatrick, R. M., & Fazel, S. (2021) · European Psychiatry · doi:10.1192/j.eurpsy.2021.32 · Cited by 18 · see citing works

Using condition specific patient reported outcome measures for long covid

Sivan, M., Wright, S., Hughes, S., & Calvert, M. (2022) · BMJ · doi:10.1136/bmj.o257 · Cited by 18 · see citing works

Results of a pilot feasibility randomised controlled trial exploring the use of an electronic patient-reported outcome measure in the management of UK patients with advanced chronic kidney disease

Kyte, D. G., Anderson, N. E., Bishop, J. R. B., Bissell, A., Brettell, E. A., Calvert, M., Chadburn, M., Cockwell, P., Dutton, M., Eddington, H., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-050610 · Cited by 17 · see citing works

Serious reporting deficiencies exist in minimal important difference studies: current state and suggestions for improvement

Carrasco‐Labra, A., Devji, T., Qasim, A., Phillips, M., Johnston, B. C., Devasenapathy, N., Zeraatkar, D., Bhatt, M., Jin, X., Brignardello‐Petersen, R., et al. (2022) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2022.06.010 · Cited by 17 · see citing works

Health‐related quality of life for pediatric patients with end‐stage kidney disease: A systematic review and meta‐analysis of the Pediatric Quality of Life Inventory (PedsQL)

Doshi, K., Raina, R., Ng, K. H., Koch, V. H. K., Bhatt, G. C., Nada, A., Foresi, B. D., Kamalakkannan, S. S., McCulloch, M., Sethi, S. K., et al. (2024) · Hemodialysis International · doi:10.1111/hdi.13138 · Cited by 18 · see citing works

Patient-Reported Outcome Measures Within a National Multispecialty Surgical Quality Improvement Program

Temple, L. K. F., Pusic, A. L., Liu, J. B., Melucci, A. D., Collins, C., Kazaure, H. S., Brajcich, B. C., Fordham, M. J., Lapsley, J. C., & Ko, C. Y. (2024) · JAMA Surgery · doi:10.1001/jamasurg.2024.1757 · Cited by 17 · see citing works

Preparing for an Era of Episode-Based Care in Total Joint Arthroplasty

Sambare, T. D., & Bozic, K. J. (2020) · The Journal of Arthroplasty · doi:10.1016/j.arth.2020.09.028 · Cited by 17 · see citing works

Participatory co-design of patient-reported outcome indicators and N-of-1 evaluation of a dressing glove for Epidermolysis bullosa

Graham, T., Sooriah, S., Box, R., Gage, H., Williams, P., Clemett, V. J., & Grocott, P. (2020) · Journal of Wound Care · doi:10.12968/jowc.2020.29.12.751 · Cited by 17 · see citing works

National Implementation of an Electronic Patient-Reported Outcome Measures Program for Joint Replacement Surgery: Pilot Study

Heath, E. L., Ackerman, I. N., Lorimer, M. F., Rainbird, S., O’Donohue, G., Brock, A., Graves, S. E., & Harris, I. A. (2022) · JMIR Formative Research · doi:10.2196/30245 · Cited by 17 · see citing works

Additional file 2 of The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

Bonsel, J. M., Itiola, A. J., Huberts, A. S., Bonsel, G. J., & Penton, H. (2024) · Figshare · doi:10.6084/m9.figshare.27915583

Additional file 1 of The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

Bonsel, J. M., Itiola, A. J., Huberts, A. S., Bonsel, G. J., & Penton, H. (2024) · Figshare · doi:10.6084/m9.figshare.27915580

Additional file 3 of The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

Bonsel, J. M., Itiola, A. J., Huberts, A. S., Bonsel, G. J., & Penton, H. (2024) · Figshare · doi:10.6084/m9.figshare.27915586

Can Patient-Reported Outcome Measures Improve Clinical Management and Patient Care?

Hoffman, A. L., Thompson, Z. P., & Rogers, T. (2022) · PubMed

Improving quality of care through the OECD Patient Reported Indicator Surveys (PaRIS)

OECD (2026) · doi:10.1787/2a9d5b13-en