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Caregiver burden—A critical discussion
Abstract
Currently, 15%, 12.8% and 17.1% of the Canadian, American and European populations, respectively, are 65 years or older. Due to aging-related disabilities, elderly individuals will require support from family members while in the community. Annually, family caregivers save the Canadian and American healthcare systems $25 billion and $350 billion, respectively. However, to maintain the important role they play, caregivers' experiences must be investigated in order to provide appropriate support. Despite the fact that 'caregiver burden' is preponderantly used as an indicator of the caregiving experience, much disagreement remains on what the term entails and how it should be utilized. This paper endeavors to critically discuss the concept of 'caregiver burden', its use in the literature and the implications this has for future research and clinical practice. The vagueness derived from the various 'caregiver burden' definitions limits the term's relevance to policy-making and clinical practice. Additionally, much of the literature on 'caregiver burden' is not theoretically framed, which reduces the conceptual clarity of the term. Quantitative measures are largely used to investigate 'caregiver burden', which can sometimes fail to capture contextual features that are relevant to caregiving outcomes (e.g., culture). Stress theory and role theory are recommended as guiding frameworks for future research that investigates 'caregiver burden'. Future research on 'caregiver burden' would also benefit from integrating qualitative and quantitative approaches into mixed method designs in order to gain a holistic understanding of the concept.
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“This situation mainly occurs during the period when older parents partially or completely lose mobility, and their dependence on their children’s care gradually increases (43).”
From Caring alone: older adult care burdens, practices, and structural imbalances among China's one-child generation (2025) · cites this paper as [43]
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Metadata
- Authors
- Bastawrous, M.
- Venue
- International Journal of Nursing Studies
- Publisher
- Elsevier BV
- Published
- 2013-03
- Volume
- 50
- Issue
- 3
- Pages
- 431-441
- ISSN
- 0020-7489 (ISSN-L)
- OpenAlex
- W2146405208
- Cited by
- 440
- References
- 82
- Citations by year
- 2026: 25 · 2025: 34 · 2024: 38 · 2023: 59 · 2022: 35 · 2021: 55 · 2020: 47 · 2019: 32 · 2018: 29 · 2017: 26 · 2016: 25 · 2015: 18 · 2014: 15 · 2013: 2
- FWCI
- 26.15
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Nursing Studies (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
- Keywords
- caregiver burden, family caregivers, elderly care, population aging, caregiver experiences, conceptual clarity, stress theory, role theory, caregiver support, mixed methods
- MeSH terms
- Aged, Canada, Europe, Humans, Stress, Psychological, United States, Caregivers, Cost Savings
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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