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Cited by 66Nursing care and researchParkinson's Disease Mechanisms and TreatmentsFamily Caregiving in Mental Illness

The mediating roles of caregiver social support and self-efficacy on caregiver burden in Parkinson’s disease

Yang, Zongfang, Tian, Yuling, Fan, Ying, Liu, Long, Luo, Yanhong, Zhou, Liye, Yu, Hongmei·2019·Journal of Affective Disorders
DOI 10.1016/j.jad.2019.05.064
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Abstract

Background Most studies in Parkinson's disease (PD) have focused on the direct effects of social support and self-efficacy on caregiver burden. This study aimed to test our prediction that caregiver self-efficacy and social support were two chaining mediator variables on the paths for patient factors affecting caregiver burden, caregiver anxiety, and depression.Method We enrolled patients with PD and their caregivers from the First Affiliated Hospital of Shanxi Medical University in China between July and December 2017. Patients completed scales evaluating their cognition, motor function, and depression. Caregivers completed scales evaluating social support, self-efficacy, anxiety, depression, and caregiver burden. We applied Partial Least Squares Structural Equation Modeling (PLS-SEM) to analyze the mediating effects.Results Caregiver self-efficacy was a partial mediator on the path of patient motor function effects on caregiver burden (Variance Accounted For, VAF = 0.741), caregiver anxiety (VAF = 0.498) and caregiver depression (VAF = 0.471). Social support for caregivers was a partial mediator on the path for patient motor function effects on caregiver self-efficacy (VAF = 0.247). Caregiver social support and self-efficacy were two chaining mediator variables on the pathway for patient motor function effects on caregiver burden (VAF = 0.768) and caregiver depression (VAF = 0.510).Limitations Our sample only met the minimum sample size requirement for the PLS-SEM and we only focused on a part of variables we collected.Conclusions Our prediction has been validated in this study. And this work supports the decision-making of health authorities and policymakers in managing caregiver social support and caregiver self-efficacy with the aim of reducing caregiver burden in PD.

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  • Social support is a key predictor of caregiver burden.

    “Social support, defined as the emotional and material assistance provided by society to individuals, is a key predictor of caregiver burden (47–49).”

    From Caring alone: older adult care burdens, practices, and structural imbalances among China's one-child generation (2025) · cites this paper as [47]

  • Role conflict generates stress, as resources become scarce or depleted while trying to balance multiple roles, and this can negatively affect caregivers' psychological well-being, physical health, and financial stability.

    “Role conflict generates stress, as resources become scarce or depleted while trying to balance multiple roles. This can negatively affect caregivers’ psychological well-being, physical health, and financial stability (26, 46, 47).”

    From Caring alone: older adult care burdens, practices, and structural imbalances among China's one-child generation (2025) · cites this paper as [47]

  • Caregivers of older adults with chronic severe illnesses, such as Alzheimer's or Parkinson's disease, often face insufficient social support during the caregiving process, which increases their risk of social isolation.

    “Empirical studies have shown that caregivers of older adults with chronic severe illnesses, such as Alzheimer’s or Parkinson’s disease, often face insufficient social support during the caregiving process, which increases their risk of social isolation (47, 48).”

    From Caring alone: older adult care burdens, practices, and structural imbalances among China's one-child generation (2025) · cites this paper as [47]

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Authors
Yang, Z., Tian, Y., Fan, Y., Liu, L., Luo, Y., Zhou, L., & Yu, H.
Affiliations
Shanxi Medical University (CN)
Corresponding author
Yu, Hongmei
ORCID
Venue
Journal of Affective Disorders
Publisher
Elsevier BV
Published
2019-09
Volume
256
Pages
302-308
ISSN
0165-0327 (ISSN-L)
DOI
10.1016/j.jad.2019.05.064
OpenAlex
W2946981798
Cited by
66
References
39
Citations by year
2026: 5 · 2025: 12 · 2024: 15 · 2023: 13 · 2022: 6 · 2021: 10 · 2020: 3 · 2019: 2
FWCI
9.69
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Journal of Affective Disorders (publishedVersion)
  • PubMed (publishedVersion)
Funders
National Natural Science Foundation of China
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Neurology › Parkinson's Disease Mechanisms and Treatments
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
Parkinson's disease, caregiver burden, caregiver support, caregiver self-efficacy, caregiver anxiety, caregiver depression, motor function, mediation, family caregivers
MeSH terms
Adaptation, Psychological, Aged, Anxiety, China, Depression, Female, Health Services, Humans, Male, Middle Aged, Parkinson Disease, Social Support, Caregivers, Self Efficacy

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