The DOI matches its Crossref record; 27 of the 27 references it cites were found in a registry or an index.
Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group
Open accessAbstract
OBJECTIVE Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxiety. With an expansion in Internet access, individuals affected by HD have new opportunities for information retrieval and social support. The aim of this study is to examine the provision of social support in messages posted to a HD online support group bulletin board. METHODS In total, 1313 messages were content analyzed using a modified version of the social support behavior code developed by [Cutrona CE, Suhr J. Controllability of stressful events and satisfaction with spouse support behaviors. Commun Res 1992;19:154-74]. RESULTS The analysis indicates that group members most frequently offered informational (56.2%) and emotional support (51.9%) followed by network support (48.4%) with esteem support (21.7%), and tangible assistance (9.8%) least frequently offered. CONCLUSION This study suggests that exchanging informational and emotional support represents a key function of this online group. PRACTICE IMPLICATIONS Online support groups provide a unique opportunity for health professionals to learn about the experiences and views of individuals affected by HD and explore where and why gaps may exist between evidence-based medicine and consumer behavior and expectations.
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ZIEBLAND, S., & WYKE, S. (2012) · The Milbank Quarterly · doi:10.1111/j.1468-0009.2012.00662.x · Cited by 554
Zhang, X., Liu, S., Deng, Z., & Chen, X. (2017) · Computers in Human Behavior · doi:10.1016/j.chb.2017.06.028 · Cited by 355
Social support in an Internet weight loss community
Hwang, K. O., Ottenbacher, A. J., Green, A. P., Cannon-Diehl, M. R., Richardson, O., Bernstam, E. V., & Thomas, E. J. (2010) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2009.10.003 · Cited by 338
Social support and online postpartum depression discussion groups: A content analysis
Evans, M., Donelle, L., & Hume-Loveland, L. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2011.09.011 · Cited by 259
Allam, A., Kostova, Z., Nakamoto, K., & Schulz, P. J. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.3510 · Cited by 274
Metadata
- Authors
- Coulson, N. S., Buchanan, H., & Aubeeluck, A.
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2007-10
- Volume
- 68
- Issue
- 2
- Pages
- 173-178
- ISSN
- 0738-3991 (ISSN-L)
- OpenAlex
- W2039087324
- Cited by
- 400
- References
- 27
- FWCI
- 16.50
- Type
- journal article
- Language
- en
- Open access
- green
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
