Evaluation of an internet support group for women with primary breast cancer
Open accessAbstract
BACKGROUND: Women with breast carcinoma commonly experience psychologic distress following their diagnosis. Women who participate in breast cancer support groups have reported significant reduction in their psychologic distress and pain and improvement in the quality of their lives. Web‐based breast cancer social support groups are widely used, but little is known of their effectiveness. Preliminary evidence suggests that women benefit from their participation in web‐based support groups. METHODS: Seventy‐two women with primary breast carcinoma were assigned randomly to a 12‐week, web‐based, social support group (Bosom Buddies). The group was semistructured, moderated by a health care professional, and delivered in an asynchronous newsgroup format. RESULTS: The results indicate that a web‐based support group can be useful in reducing depression and cancer‐related trauma, as well as perceived stress, among women with primary breast carcinoma. The effect sizes ranged from 0.38 to 0.54. Participants perceived a variety of benefits and high satisfaction from their participation in the intervention CONCLUSIONS: This study demonstrated that the web‐based program, Bosom Buddies, was effective in reducing participants' scores on depression, perceived stress, and cancer‐related trauma measures. The effect size of the intervention was in the moderate range. Although web‐based social support groups offer many advantages, this delivery mechanism presents a number of ethical issues that need to be addressed. Cancer 2003;97:1164–73. © 2003 American Cancer Society. DOI 10.1002/cncr.11174
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Internet support groups moderated by a clinician tend to show benefits.
“In general, ISGs that are moderated by a clinician tend to show benefits (31).”
From Behavioral Intervention Technologies: Evidence review and recommendations for future research in mental health (2013) · cites this paper as [31]
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- Authors
- Winzelberg, A. J., Classen, C., Alpers, G. W., Roberts, H., Koopman, C., Adams, R. E., Ernst, H., Dev, P., & Taylor, C. B.
- Affiliations
- Stanford Medicine (US)
- Corresponding author
- Winzelberg, Andrew J.
- Venue
- Cancer
- Publisher
- Wiley
- Published
- 2003-02-20
- Volume
- 97
- Issue
- 5
- Pages
- 1164-1173
- ISSN
- 0008-543X (ISSN-L)
- 1097-0142
- OpenAlex
- W2035352836
- Cited by
- 485
- References
- 71
- Citations by year
- 2026: 7 · 2025: 7 · 2024: 11 · 2023: 17 · 2022: 14 · 2021: 16 · 2020: 18 · 2019: 19 · 2018: 22 · 2017: 24 · 2016: 16 · 2015: 24 · 2014: 40 · 2013: 44 · 2012: 28
- FWCI
- 8.68
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Cancer (publishedVersion)
- PubMed (publishedVersion)
- MADOC (University of Mannheim) (submittedVersion)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Women's cancer prevention and management
- Keywords
- breast cancer, online social support, psychological distress, depression, perceived stress, newsgroups, quality of life, patient satisfaction
- MeSH terms
- Adult, Aged, Breast Neoplasms, Depression, Female, Humans, Middle Aged, Psychiatric Status Rating Scales, Self-Help Groups, Stress Disorders, Post-Traumatic, Patient Satisfaction, Internet
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