The diabetes online community: Older adults supporting self-care through peer health
Abstract
Objective The use of the diabetes online community (DOC) is growing across all age groups. The aim of this exploratory study was to describe why older adults participated in the DOC, and how DOC users interacted with their healthcare providers.Methods Telephone interviews (N=20) were conducted with older adult DOC users (born between 1946 and 1964) living in the United States. Interviews were analyzed using qualitative content analysis adhering to rigor and reproducibility standards.Results Themes that emerged from the data related to DOC participation included: information to improve self-care, emotional support, belonging to a community, validation of information, cause for concern and interaction with healthcare providers. Participants used the DOC for day to day diabetes management advice and healthcare providers for medical information and care.Conclusion Participants highly valued the DOC and regarded their participation as a way to increase knowledge to improve self-care and reciprocate emotional support with others for diabetes management. The DOC filled gaps in knowledge and support participants were not able to get elsewhere.Practice implications The DOC serves as an important source of information and support for individuals with diabetes and may be a cost-effective strategy to augment standard diabetes care.
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By empowering patients in OHCs, it is possible to activate a value cocreation path between them and health care organizations.
“By empowering patients in OHCs, it is possible to activate value cocreation path between them and health care organizations [50].”
From Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review (2020) · cites this paper as [50]
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- Authors
- Litchman, M. L., Rothwell, E., & Edelman, L. S.
- Affiliations
- University of Utah (US)
- Corresponding author
- Litchman, Michelle L.
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2018-03
- Volume
- 101
- Issue
- 3
- Pages
- 518-523
- ISSN
- 0738-3991 (ISSN-L)
- OpenAlex
- W2751395894
- Cited by
- 101
- References
- 56
- Citations by year
- 2026: 6 · 2025: 8 · 2024: 13 · 2023: 9 · 2022: 15 · 2021: 11 · 2020: 17 · 2019: 17 · 2018: 5
- FWCI
- 17.22
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Patient Education and Counseling (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Social Sciences › Demography › Technology Use by Older Adults
- Keywords
- older adults, peer support, diabetes self-care, emotional support, online health communities, patient-provider interaction, diabetes management, data validation, sense of belonging
- MeSH terms
- Diabetes Mellitus, Type 1, Diabetes Mellitus, Type 2, Female, Humans, Interviews as Topic, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Patient Participation, Peer Group, Self Care, Social Support, Telephone, Telemedicine, Internet, Qualitative Research, Social Media
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