Factors associated with non-treatment or delayed treatment seeking in OCD sufferers: A review of the literature

García-Soriano, Gemma; Rufer, Michael; Delsignore, Aba; Weidt, Steffi

doi:10.1016/j.psychres.2014.07.009

Cited by 151Obsessive-Compulsive Spectrum DisordersMental Health Treatment and AccessAnxiety, Depression, Psychometrics, Treatment, Cognitive Processes

Factors associated with non-treatment or delayed treatment seeking in OCD sufferers: A review of the literature

García-Soriano, Gemma, Rufer, Michael, Delsignore, Aba, Weidt, Steffi·2014·Psychiatry Research

DOI 10.1016/j.psychres.2014.07.009

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Abstract

Obsessive-compulsive disorder (OCD) is a disabling disorder that can be successfully treated. However, a high percentage of sufferers neither ask for nor receive treatment for their symptoms, or they delay seeking treatment. The factors underlying the treatment-seeking behaviour of OCD patients are still not clear. This review includes 12 studies published before April 2014 that analyse the possible variables related to the delayed help-seeking behaviour of OCD patients. Studies showed that individuals who asked for help were more impaired and reported poorer quality of life. Help-seeking behaviour was associated with greater insight, severity, specific obsessive-compulsive symptoms, such as aggressive and other unpleasant obsessions, and comorbidity. Common barriers to seeking treatment were shame about the symptoms or about asking for treatment, not knowing where to find help, or inconveniences associated with treatment. Inconsistencies among the reviewed studies highlight the need to further evaluate the variables that keep OCD patients from seeking help. The review highlights the need for educational campaigns designed to detect underdiagnosed OCD individuals and improve access to mental health services, which could shorten delays in seeking treatment and, therefore, reduce the personal and financial costs of OCD. Guidelines for educational programs and future lines of research are discussed.

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Community studies showed that 57% of people with OCD received no treatment.
“Sin embargo, estudios comunitarios (Kohn et al., 2004) mostraron que el 57 % de las personas que sufrían TOC no recibieron ningún tratamiento, entre otros motivos por los costes económicos que suponen, la escasez de terapeutas especializados y la vergüenza y miedo al estigma (Belloch et al., 2009; García-Soriano et al., 2014; Marques et al., 2010).”
From Terapia cognitivo-conductual grupal por videoconferencia para el trastorno obsesivo-compulsivo: Estudio piloto. (2023) · cites this paper as García-Soriano et al., 2014
There is a substantial average gap of up to 17 years between symptom onset and receipt of treatment, together with high rates of disengagement from efficacious treatments such as psychological therapy.
“There is a substantial average gap of up to 17 years between symptom onset and receipt of treatment [10, 11], together with high rates of disengagement from efficacious treatments such as psychological therapy [12].”
From Testing the psychometric properties of the illness perceptions questionnaire for OCD (IPQ-O) (2019) · cites this paper as [10]

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Authors: García-Soriano, G., Rufer, M., Delsignore, A., & Weidt, S.
Affiliations: University Hospital Zurich (CH)
ORCID: Rufer, Michael
Weidt, Steffi
Venue: Psychiatry Research
Publisher: Elsevier BV
Published: 2014-12
Volume: 220
Issue: 1-2
Pages: 1-10
ISSN: 0165-1781 (ISSN-L)
DOI: 10.1016/j.psychres.2014.07.009
OpenAlex: W2028275306
Cited by: 151
References: 41
Citations by year: 2026: 12 · 2025: 19 · 2024: 18 · 2023: 10 · 2022: 16 · 2021: 17 · 2020: 10 · 2019: 11 · 2018: 9 · 2017: 11 · 2016: 7 · 2015: 10 · 2014: 1
FWCI: 1.47
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Psychiatry Research (publishedVersion)
PubMed (publishedVersion)
Zurich Open Repository and Archive (University of Zurich) (acceptedVersion)
Zurich Open Repository and Archive (University of Zurich) (submittedVersion)
Funders: Universitat de València (UV-INV-EPDI12-66454)
Generalitat Valenciana (PROMETEO/2013/066)
Topics: Social Sciences › Psychology › Clinical Psychology › Obsessive-Compulsive Spectrum Disorders
Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
Social Sciences › Psychology › Experimental and Cognitive Psychology › Anxiety, Depression, Psychometrics, Treatment, Cognitive Processes
Keywords: obsessive-compulsive disorder, help-seeking, delayed treatment seeking, non-intervention, barriers to treatment, shame, insight, symptom severity, comorbidities, quality of life, underdiagnosis, access to mental health care, educational campaigns
MeSH terms: Humans, Obsessive-Compulsive Disorder, Patient Acceptance of Health Care

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Factors associated with non-treatment or delayed treatment seeking in OCD sufferers: A review of the literature

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