Supporting People and Their Caregivers Living with Advanced Cancer: From Individual Experience to a National Interdisciplinary Program
Open accessAbstract
OBJECTIVES: To discuss the unmet needs of patients living with advanced cancer and their caregivers and to review strategies, including collaborating with community and non-profit organizations, to help improve the experience of living with, and beyond, advanced cancer. DATA SOURCES: Published articles, first person experience (SB), community organization input, and survey data (Canadian Cancer Society). CONCLUSION: People living with advanced cancer face significant challenges, including persistent physical symptoms and psychosocial concerns, difficulties with coordination of care, and possible lack of available resources and supports if the person is no longer being followed by cancer health care professionals. More research is required to better understand the needs of patients and their caregivers living with advanced cancer. Existing resources and supports may be inadequate for this population, and delineation of the unique needs of this population may lead to tailored care plans and, ultimately, an improved experience for patients and caregivers alike. IMPLICATIONS FOR NURSING PRACTICE: Oncology nurses are ideally suited to care for this population to help elucidate their unique unmet needs and collaborate with patients and other clinicians to develop interventions to address such unmet needs. Oncology nurses can liaise with community organizations to identify sources of support and resources for patients and their loved ones and advocate for improved care for patients affected by advanced cancer.
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Patients with cancer require a variety of services, including disease and treatment monitoring, symptom management, medication administration, emotional support, personal care assistance, and instrument care assistance.
“Patients with cancer require a variety of services, including disease and treatment monitoring, symptom management, medication administration, emotional support, personal care assistance, and instrument care assistance [2].”
From Preparedness, resilience and unmet needs of informal caregivers of advanced cancer patients in a Regional Mission Hospital in Kenya: Qualitative Study (2023) · cites this paper as [2]
The “Unmet Needs of Patients Living with Advanced Cancer” section describes needs for symptom management and psychosocial support, and the “Role of Community Programs and Services” section discusses practical and emotional support. The paper focuses on advanced cancer and does not substantiate the full list of services attributed to it, particularly medication administration, personal care assistance, and instrument care assistance. Page numbers are unavailable in our copy. (LLM, conf=0.86)
Experimental — accuracy not yet measuredA study reported significant challenges for patients living with advanced cancer and their informal caregivers, including persistent physical symptoms, psychosocial concerns, difficulties with coordination of care, and possible lack of available resources and supports if the person is no longer being followed by cancer health care professionals.
“A study assessing unmet needs of patients living with advanced cancer and their informal caregivers report significant challenges, including persistent physical symptoms and psychosocial concerns, difficulties with coordination of care, and possible lack of available resources and supports if the person is no longer being followed by cancer health care professionals [2].”
From Preparedness, resilience and unmet needs of informal caregivers of advanced cancer patients in a Regional Mission Hospital in Kenya: Qualitative Study (2023) · cites this paper as [2]
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“A study assessing unmet needs of patients living with advanced cancer and their informal caregivers report significant challenges, including persistent physical symptoms and psychosocial concerns, difficulties with coordination of care, and possible lack of available resources and supports if the person is no longer b…”
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- Authors
- Booker, R., Bays, S., Burnett, L., & Torchetti, T.
- Affiliations
- University of Victoria (CA)
- Canadian Cancer Society (CA)
- Corresponding author
- Booker, Reanne
- ORCID
- Booker, Reanne
- Venue
- Seminars in Oncology Nursing
- Publisher
- Elsevier BV
- Published
- 2021-08
- Volume
- 37
- Issue
- 4
- Pages
- 151169
- ISSN
- 0749-2081 (ISSN-L)
- OpenAlex
- W3183540321
- Cited by
- 8
- References
- 28
- Citations by year
- 2026: 1 · 2025: 2 · 2024: 2 · 2023: 2 · 2022: 1
- FWCI
- 0.21
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Seminars in Oncology Nursing (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Funders
- Canadian Nurses Foundation
- Alberta Cancer Foundation
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Keywords
- advanced cancer, cancer caregivers, unmet needs, end-of-life care, psychosocial needs, care coordination, community organizations, nonprofit organizations, oncology nursing, patient experience
- MeSH terms
- Canada, Humans, Neoplasms, Caregivers
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