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Cited by 733Patient Dignity and PrivacyPalliative Care and End-of-Life IssuesPalliative and Oncologic Care

The DOI matches its Crossref record; 43 of the 45 references it cites were found in a registry or an index.

Dignity in the terminally ill: a developing empirical model

Chochinov, Harvey Max, Hack, Thomas, McClement, Susan, Kristjanson, Linda, Harlos, Mike·2002·Social Science & Medicine
DOI 10.1016/s0277-9536(01)00084-3
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Abstract

Despite use of the term dignity in arguments for and against a patient's self-governance in matters pertaining to death, there is little empirical research on how this term has been used by patients who are nearing death. The objective of this study was to determine how dying patients understand and define the term dignity, in order to develop a model of dignity in the terminally ill. A semi-structured interview was designed to explore how patients cope with their advanced cancer and to detail their perceptions of dignity. Interviews were audiotaped and transcribed verbatim. A consecutive sample of 50 consenting patients with advanced terminal cancer were recruited over a 15-month period of time from an urban extended care hospital housing a specialized unit for palliative care. This unit provides both inpatient services. and coordinates end-of-life care community based programming. Data were analysed using latent content analysis and constant comparison techniques. Four members of the research team independently coded the transcribed data, to develop conceptually meaningful categories of responses. Operational definitions were written for major categories, themes and sub-themes. Three major categories emerged from the qualitative analysis, including illness-related concerns; dignity conserving repertoire; and social dignity inventory. These broad categories and their carefully defined themes and sub-themes form the foundation for an emerging model of dignity amongst the dying. The concept of dignity and the dignity model offer a way of understanding how patients face advancing terminal illness. This will serve to promote dignity and the quality of life of patients nearing death.

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Crossref · 10.1016/s0277-9536(01)00084-3

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Citations

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Research works printed but not linked: 3

  1. Brant, 1998, The art of palliative care, Oncology Nursing Forum, 25, 995
  2. Latimer, 1991, Caring for seriously ill and dying patients, Canadian Medical Association Journal, 144, 859
  3. Pannuti, 1993, Dying with dignity, World Health Forum, 14, 172

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Metadata

Authors
Chochinov, H. M., Hack, T., McClement, S., Kristjanson, L., & Harlos, M.
Affiliations
  • CancerCare Manitoba (CA)
  • University of Manitoba (CA)
  • Edith Cowan University (AU)
  • St. Boniface Hospital (CA)
Corresponding author
Chochinov, Harvey Max
ORCID
Venue
Social Science & Medicine
Publisher
Elsevier BV
Published
2002-02
Volume
54
Issue
3
Pages
433-443
ISSN
0277-9536 (ISSN-L)
DOI
10.1016/s0277-9536(01)00084-3
OpenAlex
W2015893364
Cited by
733
References
45
Citations by year
2026: 34 · 2025: 37 · 2024: 31 · 2023: 30 · 2022: 34 · 2021: 38 · 2020: 34 · 2019: 25 · 2018: 28 · 2017: 40 · 2016: 35 · 2015: 30 · 2014: 30 · 2013: 39 · 2012: 30
FWCI
19.85
Type
journal article
Language
en
Open access
closed
Licence
www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations
  • Social Science & Medicine (publishedVersion)
  • PubMed (publishedVersion)
  • Research Online (Edith Cowan University) (submittedVersion)
  • RePEc: Research Papers in Economics (submittedVersion)
  • eSpace (Curtin University) (submittedVersion)
  • DigitalGeorgetown (Georgetown University Library) (submittedVersion)
  • Swinburne figshare (Swinburne University of Technology) (submittedVersion)
Funders
University of Manitoba
Topics
  • Health Sciences › Nursing › Issues, ethics and legal aspects › Patient Dignity and Privacy
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Keywords
human dignity, dying patients, advanced cancer, end-of-life care, palliative care, patient perspectives, coping with terminal illness, social dignity, quality of life
MeSH terms
Activities of Daily Living, Adaptation, Psychological, Anecdotes as Topic, Attitude to Death, Family Relations, Humans, Interviews as Topic, Manitoba, Neoplasms, Professional-Patient Relations, Quality of Life, Right to Die, Skilled Nursing Facilities, Terminal Care, Cost of Illness, Terminally Ill

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