The needs of people with dementia living at home from user, caregiver and professional perspectives: a cross-sectional survey
Open accessAbstract
BACKGROUND: Few reports have been published about differences in perspectives on perceived needs among community-residing people with dementia, their family caregivers, and professionals. The aim of this study was to compare these perspectives. METHOD: During 2006 and 2007, one-hundred and fifty two interviews of people with dementia and their caregivers about the needs of the person with dementia were performed by four professionals using The Camberwell Assessment of Need for the Elderly (CANE). Professionals' views on met and unmet needs of people with dementia were obtained for the total sample, family caregivers' perspectives were gained for 125 people with dementia, and people with dementia's views on their own needs were obtained for 125 persons with dementia. RESULTS: People with dementia reported fewer needs compared with the reports of their caregivers and the professionals. The most frequent unmet needs reported by people with dementia, caregivers and professionals were in the areas of daytime activities, company, and psychological distress; however, people with dementia rated psychological distress as the commonest unmet need. CONCLUSIONS: Since the priorities of people with dementia can be different from those of caregivers and professionals, it is important to consider all perspectives when making care plans. Thus, compliance with treatment of people with dementia and also their quality of life could be potentially improved by a more collaborative partnership with them.
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People with dementia often experience numerous unmet needs, including difficulties with daily activities, social engagement, emotional well-being, and access to healthcare.
“People with dementia (PWD) often experience numerous unmet needs, including difficulties with daily activities, social engagement, emotional well‐being, and access to healthcare [1, 2].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [2]
The Results (Needs rated by people with dementia; page unavailable) identify unmet needs in psychological distress, daytime activities, and company, supporting the emotional, activity, and social parts of the claim. The Discussion identifies an unmet need for information about care and treatment, but does not establish difficulty accessing healthcare. The Results report a mean of 1.17 unmet needs per person, so describing these as often 'numerous' also overstates this study's findings. (LLM, conf=0.85)
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Self-citation
- Authors
- Miranda-Castillo, C., Woods, B., & Orrell, M.
- Affiliations
- Bangor University (GB)
- University College London (GB)
- Venue
- BMC Health Services Research
- Published
- 2013-02-04
- Volume
- 13
- Issue
- 1
- Pages
- 43-43
- ISSN
- 1472-6963 (ISSN-L)
- PMC
- PMC3568411
- OpenAlex
- W1991330717
- Cited by
- 163
- References
- 26
- Citations by year
- 2026: 4 · 2025: 14 · 2024: 4 · 2023: 7 · 2022: 11 · 2021: 25 · 2020: 18 · 2019: 13 · 2018: 13 · 2017: 18 · 2016: 12 · 2015: 11 · 2014: 10 · 2013: 3
- FWCI
- 8.53
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Health Services Research (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Americanae (AECID Library) (submittedVersion, other-oa)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- UCL Discovery (University College London) (submittedVersion)
- LA Referencia (Red Federada de Repositorios Institucionales de Publicaciones Científicas) (submittedVersion, other-oa)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia, unmet needs, community-dwelling people with dementia, family caregivers, professional perspectives, patient perspectives, Camberwell Assessment of Need for the Elderly, psychological distress, diurnal activity, social isolation, care planning, quality of life
- MeSH terms
- Aged, Aged, 80 and over, Cross-Sectional Studies, Dementia, England, Female, Health Personnel, Health Services Needs and Demand, Home Nursing, Humans, Male, Middle Aged, Caregivers, Qualitative Research
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