Overwhelming and unjust: A qualitative study of fathers’ experiences of grief following neonatal death
Abstract
Limited research has examined the grief experiences of fathers following neonatal death. Using a qualitative research design, ten fathers were interviewed, and thematic analysis resulted in three overarching themes: ' A complicated grief experience: Neonatal death is highly emotional' , ' Grief is multidimensional' and 'Sense of injustice' . Overall, results showed that grief was a multidimensional experience for fathers, with expressions of grief including strong feelings of anger and guilt and the manifestation of grief in physical symptoms. In addition, the findings also indicated a sense of injustice that contributed to the disenfranchisement of grief for fathers. The results of this study contribute to developing a better understanding of the grief that fathers experience following neonatal death, and can inform improvements in healthcare practices after the death of a baby in the neonatal period, including father-specific programs and adequate provision of information.
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Guilt was a theme reflected throughout papers within this review.
“A theme reflected throughout papers within this review was guilt (Azeez et al., 2022;Horstman et al., 2023;Lacroix et al., 2016).”
From Fathers’ experiences of perinatal death following miscarriage, stillbirth, and neonatal death: A meta-ethnography (2026) · cites this paper as Azeez et al., 2022
Cites
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“This study formed part of a more extensive program of research exploring Australian fathers’ grief and support experiences following pregnancy loss or neonatal death (other results published elsewhere; Azeez et al., 2021; Obst et al., 2020).”
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“Research shows that disenfranchised grief is particularly salient for men experiencing pregnancy loss more generally (Due et al., 2017) and is also likely for those who experience neonatal death.”
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“These differences in mothers’ and fathers’ responses have also been highlighted in pregnancy loss literature (Badenhorst et al., 2006; Vance et al., 2002), emphasizing the need for more father-specific research to inform effective support options and healthcare practices after neonatal death.”
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“Recent studies have acknowledged a gap in understanding regarding men’s grief following pregnancy loss, and researchers have sought to rectify this (e.g., see (Jones et al., 2019; Martinez et al., 2019; Nguyen et al., 2019; Obst et al., 2020, 2021).”
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“…the United Kingdom (UK) or the United States (US) and primarily consists of qualitative studies on the experiences of mothers or parents generally (Clyman et al., 1980; Currie et al., 2019; Redshaw & Henderson, 2018; Waugh et al., 2018), as well as studies that address both neonatal death and…”
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Bradford, B. F., Cronin, R. S., Popoola, T., Bright, N., & Silverio, S. A. (2024) · Women and Birth · doi:10.1016/j.wombi.2024.101622 · Cited by 9 · see citing works
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“I still have guilt that I didn’t do more to try and get them out earlier (Azeez et al., 2022, p. 1449).”
Influential
- Authors
- Azeez, S., Obst, K. L., Due, C., Oxlad, M., & Middleton, P.
- Affiliations
- The University of Adelaide (AU)
- South Australian Health and Medical Research Institute (AU)
- Corresponding author
- Azeez, Shazleen
- Venue
- Death Studies
- Publisher
- Informa UK Limited
- Published
- 2022-02-02
- Volume
- 46
- Issue
- 6
- Pages
- 1443-1454
- ISSN
- 0748-1187 (ISSN-L)
- 1091-7683
- OpenAlex
- W4210570587
- Cited by
- 21
- References
- 19
- Citations by year
- 2026: 5 · 2025: 6 · 2024: 6 · 2023: 4
- FWCI
- 3.65
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Death Studies (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Keywords
- paternal grief, neonatal death, fathers, complicated grief, sense of injustice, disenfranchised grief, anger, guilt
- MeSH terms
- Emotions, Fathers, Female, Grief, Humans, Infant, Newborn, Male, Qualitative Research, Perinatal Death
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