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Cited by 225Autism Spectrum Disorder ResearchDisability Rights and RepresentationFamily and Disability Support Research

The DOI matches its Crossref record; 23 of the 24 references it cites were found in a registry or an index.

How is a sense of well-being and belonging constructed in the accounts of autistic adults?

Open access
Milton, Damian, Sims, Tara·2016·Disability & Society
DOI 10.1080/09687599.2016.1186529
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Abstract

This small-scale exploratory study sought to develop an understanding of the meaning of well-being and social belonging as represented within the narratives of adults on the autism spectrum. Employing an interpretivist approach facilitated the investigation of potential contributory factors to these lived experiences in order to inform further research regarding both this topic, and service provision for adults on the autism spectrum. The project involved a thematic analysis of issues of the magazine Asperger United (AU). Four broad main themes were identified: meeting personal needs, living with the consequences of an ‘othered’ identity, connection and recognition, and relationships and advocacy. Autistic adults reported many barriers to feeling that they belonged in a number of social spaces and the detrimental effect this had on their wellbeing. Fundamental to positive narratives of wellbeing, were feelings of connection and recognition from others and positive accepting relationships, with autistic-led spaces, particularly the Autscape conference, being frequently cited as of central significance in increasing feelings of wellbeing and belonging. This study has demonstrated a need for less focus on remediation and more on limiting the social isolation of autistic people.

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Show all 24 references

Research works printed but not linked: 13

  1. Beardon L., 2007, The ASPECT Consultancy Report: A National Report on the Needs of Adults with Asperger Syndrome
  2. Bracher M., 2014, ADRC Service Evaluation and Development Project: Post-Diagnostic Service Development Study
  3. 10.1111/camh.2007.12.issue-2 · DOI
  4. Cameron L., 2012, Dyspathy: The Dynamic Complement of Empathy
  5. Clarke V., 2013, The Psychologist, 26, 120
  6. Durkheim E., 1897, Suicide
  7. Gephart R., 1999, Research Methods Forum: 4
  8. International Wellbeing Group, 2006, Personal Wellbeing Index
  9. McDonnell A., 2014, Good Autism Practice: Autism, Happiness and Wellbeing, 58
  10. Milton D., 2012, Autonomy: The Journal of Critical Interdisciplinary Autism Studies, 1
  11. Milton D., 2012, Good Autism Practice., 7, 78
  12. Reeve D., 2011, Theorising Normalcy and the Mundane, 2nd International Conference 15/09/11.
  13. 10.1111/ijn.2005.11.issue-2 · DOI

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Metadata

Authors
Milton, D., & Sims, T.
Affiliations
London South Bank University (GB)
Corresponding author
Milton, Damian
ORCID
Venue
Disability & Society
Publisher
Informa UK Limited
Published
2016-04-20
Volume
31
Issue
4
Pages
520-534
ISSN
  • 0267-4645 (ISSN-L)
  • 0968-7599
  • 1360-0508
DOI
10.1080/09687599.2016.1186529
OpenAlex
W2415653571
Cited by
225
References
24
Citations by year
2026: 29 · 2025: 44 · 2024: 37 · 2023: 29 · 2022: 25 · 2021: 24 · 2020: 15 · 2019: 10 · 2018: 9 · 2017: 2 · 2016: 1
FWCI
4.68
Type
journal article
Language
en
Open access
Locations
  • Disability & Society (publishedVersion)
  • Kent Academic Repository (University of Kent) (acceptedVersion)
  • Kent Academic Repository (University of Kent) (submittedVersion)
  • University of Brighton Repository (University of Brighton) (submittedVersion, other-oa)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Sociology and Political Science › Disability Rights and Representation
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords
autistic adults, well-being, social belonging, lived experience, othering, social isolation, advocacy, relationships, recognition

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